We are due to see a child psychologist tomorrow, DS (7) has been having tics for approx 18 months. They can vary between eye roll, head jerking, arms lurching, grunting, making a noise like an internal hiccup, coughing. He always has at least one motor and a vocal tic at any one time. Currently he's head jerking and grunting.
I feel he's going to be diagnosed with Tourette's syndrome , so I want to be prepared. Are there any questions we should ask the psychologist?
It's really rubbish as he's currently also going through chemo, the stress of which I'm sure is making his tics worse
That does sound like Tourette's. I would try to talk about the following 1) what treatment is available (prob cbt or drugs in very severe cases) 2) prognosis (and how to identify if it is getting better/worse and what to do) 3)support in school/socially 4) DLA or some written documentation for him to show in cinemas/clubs etc 5) support groups and/or courses you/he can access.
The snotty/choke/throaty ones count as verbal tics and Tourette's is just TIc Disorder that includes verbal tics so he sounds like that will be the result. Sleep and no stress are what help most.
Am sorry you are going through so much at the moment.
My DS is 8 and got a diagnosis of mild tourettes at 6. He also has type 1 diabetes and frankly, the tourettes just felt like another kick in the teeth.
When his tics are bad, it's like he's a puppet to his own brain. He gets sore in the areas when the tics are unrelenting and I have found massage great for helping relieve muscle tension and giving him a different physical sensation to focus on for a time. I'm not massage trained, I did a 6 week course in baby massage and took it from there.
The head jerking is a difficult tic as it's hard work on the body and interrupts any activity which requires focusing ahead, such as walking. My DS has on occasion been head jerking and wandered off the pavement into the road or bumped into a parked car!
We talked to school and they seat DS somewhere he can do his tics without kicking another child. The thing we find now is that it affects his concentration at school but we are trying out some ideas to help him.
Good luck for tomorrow - a diagnosis will be useful for talking with teachers etc and helping your DS.
Yes it was a bit of a blow for us too. I'm not sure why, it just felt so unfair for him and like you I wanted to shield him. Post appointment he tics less and seems more relaxed about it. The consultant was epic . Totally got what to say and what not to.