Digeorge - 22q11 deletion, speech delay

[DLI]

Hi. I have been a member of mumsnet for a while now but have not really explored the site much.

My 3yr son has digeorge syndrome and i wondered if anyone on here has any experience with the syndrome also? and if so how has it affected your child? and you

[chonky]

Hi DLI, welcome to the SN board. I have no direct experience, however have you seen India Knight's webpage? Her dd had DiGeorge Syndrome.

Isn't she talking yet?

[DLI]

thank you

[SaggarClaus]

DLI - hello. I don't have personal experience of a child with Digeorge but am in touch with a few via the Heartline message board, perhaps you might pop over and visit us?