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Here are some suggested organisations that offer expert advice on special needs.

SN children

Family life

7 replies

jenk1 · 26/06/2006 11:58

is just so crap at the moment.

Im not coping at all and i find it hard to speak to my HV as she,s not understanding.

Ive got DS at home full time and dont know when he,s likely to be back in school and DD she has started having behavioural problems which we suspect (and paed agrees) is down to ASD.

When DH comes home im in a foul temper because of the kids and take it out on him, the only break i get is when i do the weekly shop or swimming if im lucky.

We cant go anywhere as a family cos DS cant stand noises/smells and dd just screams at everything/everyone, my parents arent interested at all and its so hard.

DH has suggested putting DD into full time nursey, she goes for a couple of hours a day atm but i feel so guilty for doing that, she,s still like a baby cos she has CP/development delay.

Oh i dont know what to do........


right i feel better for getting that off my chest, if you,ve read it to the end then you deserve a medal

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FioFio · 26/06/2006 12:00

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jenk1 · 26/06/2006 12:04

no i havent had any dealings with SS, i dont even know how to go about it.

I just think you know, i should be able to cope because lots of SAHM have more than 2 children and manage, ok mine are both SN but i dont know why im finding it so hard.

I feel very with myself.

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FioFio · 26/06/2006 12:08

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FioFio · 26/06/2006 12:09

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jenk1 · 26/06/2006 12:16

Thanks Fio

I just feel so angry, im annoyed with my parents as they dont help at all and i dont know why because my grandparents used to help a lot with us when we were kids, i dont think i would be able to turn a blind eye if it was my children that needed help but then im not them.

Another thing thats really upsetting me is this and it might sound pathetic but before dd came along i had a really good routine- routines are really important to me as to anyone with an ASD and now my house permanently looks like a bombs hit it, i cant plan for anything and its really hard.

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reiver · 26/06/2006 14:03

Oh jenk, sorry to hear you're having a rough time. I've got the one and still hit rock bottom at times so I can only imagine what looking after two entails. You're going through such much with assessments, appeals, trips to hospital etc that your mind must be in a perpetual spin. It's emotionally draining so don't be so hard on yourself, rant away if it helps, we're here to listen.

If you can't face full time nursery could you up the hours slightly as Fio suggested. Do you get any support from any home visiting service/portage? We had an excellent pre-school teacher who came to the house regularly to spend a session with DD (who found it less stressful than attending a 'public' session anywhere). DD loved it and it gave me a breather.

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reiver · 26/06/2006 14:07

Must remember to read through more carefully before I post .............line 3 should read
"so much".

I'm knee deep in the DLA renewal form at present so can barely think straight on anything else. It's taking hours!

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