(This may be in the wrong place,I wasn't sure if I should post here or in childrens health,sorry.)
2.6yr old DS has HMS, (as do I) he is under a paed at the moment and due to see a paediatric rheumatologist and a paediatric gastroenterologist (for stomach problems i think may be related to the hms)next month.
On Friday the corner of one eye went red and a small white/yellowish spot appeared,we had it checked out on Saturday evening at the local minor injuries department,they checked it over and found no foreign object or scratch.
Today we saw the GP,who says it is Pinguecula,he had no idea why a child of DS age would have one,and told us it was a harmless degenerative condition normally found in people of middle age who have had a lot of exposure to sun and wind. And to keep an eye on it.
Once home I had a quick google to find it is actually caused by a degenerative COLLAGEN fibre,which leads me to think it's linked to the HMS.
Which would explain why it's happened to him and so young.
Does it sound likely?
Do you think we should be concerned about it considering his age?
Or will it just go away as the GP predicted?
Anyone have any experiance in this?
(Thanks if you've read this far btw...I babble when nervous 
)
Here are some suggested organisations that offer expert advice on special needs.
SN children
HMS and Pinguecula
FriggFRIGG · 08/04/2013 17:24
I have just been looking at an article about HMS couthy, my Dd3 has also never been seen by a rheumatologist but I am thinking she should be. there is a history of immune system disorders in my close family. The article suggested that HMS should be taken more seriously. I will try to <a class="break-all" href="//linkrheumatology.oxfordjournals.org/content/40/5/485.full" rel="nofollow noindex" target="_blank">//linkrheumatology.oxfordjournals.org/content/40/5/485.full
I am also worried about how often she falls.
She is better with her orthotics but today even in boots she fell quite badly and the other day she fell and hurt her hip
I know I read it, feel for you but couldnt really add anything helpfull
There are some other articles linked on the page too.
DS has been referred to a rhuemy for the HMS,yes.
We seem to have stumbled apon a brilliant paediatrician.
He is 2.6yrs old and was DX about a year ago,his HMS is pretty bad but I have certainly heard of worse. We have a strong history of HMS in the family and also Marfans syndrome (which he does not have) he also has a Speech delay and stomach issues (he wakes every night screaming,is a very picky eater and sometimes wont eat for days) so I'm not sure if all this contributed to his referral,or my pushyness....or just the general wonderfulness of his paed.
I think he needs orthotics,I figured the rhuemy would be able to get these for him? Who arranged them for your DD Ineed ?
I certainly think HMS needs to be taken more seriously,any medical professional who has disputed this in my presence has been shot down fairly fast 
Physio referred her to podiatry, they issued her first pair but couldnt issue them again as the HA had stopped using the manufacturer for adult sizes [she is a 5]. so when she needed new ones I bought them direct from the manufacturer and the podiatrist checked them and said they are identicle to the children's ones and that it was fine for me to continue to buy them direct if I was happy to do so. I decided that as they are the best for Dd3 I would continue to do this.
So now the podiatrist has discharged her too. I feel really bad that she is not being checked by anyone and her joints could give her trouble later on. Her posture is awful and she is seriously floppy.
Ho hum, back to the GP for me for yet another referral
Dd3 is 10, she was only diagnosed when she was 8 by an OT who assessed the top half of her body and then recommended physio for the rest
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