DS2 (ASD) 13 yo fainted and seemed to have a seizure 18 months ago. He had a 24 hour ECG with no problems and had just been signed off by his paed and epilepsy nurse.
He just fainted again. This time I was with him. He had just got out of the (rather hot ) bath, was standing while I wrapping him up in his towel. He was talking to me about how to avoid school tomorrow then slumped to the floor, banging his mouth on the sink. Once on the floor he was mumbling, had his eyes open but wasn't with me, IYSWIM. Within 5 to 10 seconds his eyes focused and he asked what was going on. He was right as rain within minutes, but I kept him lying down for a bit.
If it wasn't for the fact that he carried on talking nonsense throughout I would have said it was a classic faint, got up from the over hot bath too quickly. But I have been googling faints and talking and nothing is coming up. Talking during a seizure seems more common. He doesn't remember falling or hitting his mouth or what he was saying while not conscious.
Any ideas? I'll be contacting the epilepsy nurse ASAP, but in the meantime?
Don't think so. He's happily jumping up and down now while killing aliens on the computer. As he's had his heart well and truly checked out I'm not so worried about sudden death syndrome etc, more the epilepsy as it is often co morbid with ASD.
DS1 is a frequent fainter, so was I as a child, (and my mum) so I'm hoping it's just something hereditary but not too serious. A normal faint I can cope with, the talking whilst under was a bit outside my experience, though.
Ah, thanks zzzzz. Keeping him from jumping around is quite tricky, but I will give it a go. His temperature seems fine but the bath was quite hot. DS2 got first dabs, DS3 went in after. Will give him paracetamol too. He's just in his PJs now. Thanks again. X
Right, he's now sitting next to me, has had a precautionary dose of calpol, and is quite cool. He seems completely fine, wasn't at all tired after his faint/seizure, wanted to be up and about quite quickly. I'll ring the epilepsy nurse tomorrow. He's back at school tomorrow. I'll let them know, too.
Erm, if avoiding computer completely isn't going to happen (I DO get that...DS1...), then check EVERY game leaflet & box, and remove any that have specific epilepsy warnings - not all of them will have.
At least that way, he will still have SOME games to play.
He will just have to understand that if there is a risk of epilepsy, though, that his life will change.
(Yes, I KNOW that's easier said than done!! Change = aaaarrrrggghhhh!)
I haven't got one energy saving bulb in my house - I'm particularly susceptible to szs around them!
All old fashioned (and incredibly hard to buy now!) bulbs here.
I don't play computer games like I used to, I used to play 24/7, now I only have a couple of games I play, that I can guarantee have no flashy bits in.
You don't need to avoid computer games forever. Photo sensitivity is only a factor for some epileptics. Dd3 has never had a seizure brought on by lights and she is very seriously effected.
I'd avoid the lights for now, because he's just had a seizure.
Dd3 is mostly unaware of her epilepsy. She takes meds twice a day. She doesn't go up slides or on river banks etc without me near. She doesn't bath alone ever, or swim more than a few meters away from me. She doesn't ride a bike on the road. Mostly she is oblivious to all of that.
Thanks zzzzz, because if he can't play on the computer, life would not be worth living, truly, for him mainly, or for the rest of us. The swimming, bikes, tree climbing etc, he can live without. (Ignores the fact we've just been to Center Parcs!)
I would think he is less likely to have problems with lights if he plays a lot normally. But the triggers etc change so that may change too. Hormones play a role too, so puberty will impact seizure thresholds.
I should think the hot bath triggered it. I put dd3 in a very warm bath last night, I'd forgotten about bath temp..
I've spoken to the epilepsy nurse this morning. She thinks it was more likely to have been a faint than a seizure, but can't be certain. So he's back on 'watch' again and the nurse will talk to our paed today. I'm lucky that DS2's paed specialises in neurodisability (autistic spectrum) and epilepsy, so she's always been DS2's paed and gave him his DX 10 years ago. The nurse mentioned an EEG, but last time the paed ruled it out as his brain patterns are already likely to be abnormal due to the ASD.
Thanks Ninja. I thought I was fine, then cried on the phone when talking to the lovely epilepsy nurse. She just wasn't sure but couldn't say one way or the other. I'm back from work and no message on the phone, so I'm none the wiser. DS2 would find an EEG fascinating.
Dd1 has funny turns, and has ages in between. Neurologist was ready to prescribe meds in fact as she had a few in a row at one point but then she had one in hospital and was diagnosed with reflex anoxic seizures which arenon epileptic and in response to stress or fear. They are not harmful, she has had ECG and EEG for them so it was a relief more than anything.
They are more like a faint and very subtle,she has done odd things coming round so I think we still can't rule out epilepsy too but thought I would mention.
Anyway you've had loads of good advice just wanted to offer sympathy really, it's horrible having these things come back at you.