Here some suggested organisations that offer expert advice on SN.

Moose here - again. Following on from my epilepsy thread.

(639 Posts)
moosemama Thu 14-Mar-13 16:45:40

Hi folks, we were up to 995 posts, so I thought I'd better start a new thread

moosemama Thu 14-Mar-13 16:47:23
LeonieDelt Thu 14-Mar-13 16:56:20

thanks for this moose.

your posts are teh highlighted ones yay!

moosemama Thu 14-Mar-13 16:58:24

What's this about highlighted posts?

No-one is highlighted on mine - is that because of the MN view I have? confused

LeonieDelt Thu 14-Mar-13 16:59:55

getting a bit above her fucking station telling the neuro to haul me in for ambulatory monitoring? That's for people they think are psychogenic /faking it / putting it on.

LeonieDelt Thu 14-Mar-13 17:14:28

could be, moose. i have mine set to highlight the OP's posts - that's how i can easily tell yours from couthy's...

moosemama Thu 14-Mar-13 17:20:31

Did the GP actually put that in her referral letter! shock angry

I hope she is suitably cowed by his response.

LeonieDelt Thu 14-Mar-13 17:38:28

i havent had the referral letter, but the responses are telling.

He replies to her that "I dont think there is any clinical reason for doing an ambulatory EEG."

- therefore she must've requested it in her referral letter.

and "I have to admit that the history i got today was entirely consistent with complex partial seizures rather than a panic disorder."

- therefore she must've suggested it in her referral letter.

She wont let me have a copy - she claims the surgery manager must approve it and she's on hols for two weeks.

LeonieDelt Thu 14-Mar-13 17:39:32

i have pain in my neck for the first time in 9 days.

What the fuck kind of choice is this, my immune system blowing up OR going back to chronic pain, nevermind seizures?

moosemama Thu 14-Mar-13 17:40:01

I am stressy tonight.

The panel met yesterday to decide if they are happy to meet the funding band that the indie want for ds1. Statementing Officer was off yesterday and in a meeting all day today (we knew this in advance) but said she would try and get back to the office and email us the outcome if she could, if not we will have to call her tomorrow.

No email today. sad

Ds1 is an absolute wreck and he doesn't even know that his place isn't definite.

I had him up sobbing for hours last night because he just can't cope with the thought of leaving his primary school. He was inconsolable. sad Then he was up half the night with nervous tummy and late this morning, because he was sat on the toilet again.

His TA sent me a note today asking when he will be going to visit his school again because she wants to start transition support, but I can't tell her.

If they ever bloody finalise the details and name the school I want to call an emergency AR and bring in the indie to be heavily involved, because at this rate he's not going to make it that far - he doesn't just need transition support - he needs holding up and carrying through the process. I am worried sick about him.

Distracting myself in the morning with a haircut. Having several inches off and a full fringe - hoping to hide some of my wrinkles! blush

moosemama Thu 14-Mar-13 17:41:05

Oh Leonie, I hope they can find a good alternative for you quickly, you were doing so well. sad

LeonieDelt Thu 14-Mar-13 17:42:39

DD1 is also going to react the same way wrt schools - she's already worrying and she's in Y4 fgs.

I hope they hurry the fuck up for your DS. your LA is even worse than mine, and that's telling!!! sad

moosemama Thu 14-Mar-13 18:00:00

My LEA have a rep that goes before them. IPSEA can't stand them.

He just opened a letter he was given to him at school today. It was from the 'looked after child' who was moved to an EBSD (sp?) school last week. Lovely boy, I really liked him, but he was always getting himself into, often dangerous, scrapes through his curiosity, zest for life and lack of impulse control. Ds was heartbroken when he left, but he came in today to say goodbye and gave ds a letter thanking him for being such a good friend and asking him to keep in touch. Ds was so pleased. smile

It really backed up what I told him last night about how his true friends will want to keep in touch and they will find a way to stay friends, be it email, writing letters, phone calls or regular meet-ups.

LeonieDelt Thu 14-Mar-13 18:52:57

aww, your DS. too sweet. Its lovely when friends stay in touch with them outside of school - its hard for DD1 for this reason, her best friend doesnt go out much (cultural/religion i guess) and DD1 struggles to get any outside contact. and face it, a 4 1/2 year old autistic sister isnt much for companionship when you're 9... they love each other to bits, they really do, but sometimes DD1 just needs that bit more, you know?

LeonieDelt Thu 14-Mar-13 18:54:18

his true friends will want to keep in touch

exactly. this is so hard for them moving upwards but so true. bless him.

moosemama Thu 14-Mar-13 19:17:37

Ds rarely sees his best friend outside of school, but I've promised we will arrange regular contact/meet-ups when they are at separate secondaries. He lives within walking distance and has promised he will walk over to ours regularly. We can't allow ds to do the same, but I've told him I will follow him to his friends, a hundred yards or so behind with the dog, so it doesn't look like I'm 'with him'. I can then make sure he get's there safely and can do the same in reverse when he wants to come home.

We're getting him a mobile before he starts secondary as well, so that will help.

LeonieDelt Thu 14-Mar-13 19:22:26

Mobiles are cool. DD1 has one, but she doesnt use it much! argh.

LeonieDelt Thu 14-Mar-13 20:23:10

I hope Couthy's ok. Beetlejuice!

LeonieDelt Thu 14-Mar-13 22:35:47

I may finally have the rash. O.O

MerryCouthyMows Thu 14-Mar-13 23:56:31

Oh god, Leonie, your GP really is a douchebag, isn't she?!

Am ok-ish, pain hit a high that had me sobbing in a taxi on the way home from Tesco this morning (after a barney with twat ex). Ex did carry bags in the end, but I got hurt packing the trolley in Tesco, hence the row (he got distracted by DS2 who was off school sick bloody vomiting bugs can eff right off now ta ).

Then took naproxen on pharmacists advice. Helped lots, left me feeling half pished though.

Then took a call asking for a home visit tomorrow from a housing officer because I might be being given a full size 4-bed+ dining room house just up the road, where I need to be, with room for everyone.

Only problem? Visit tomorrow + Skaggy house = tidying up when I should have my feet up...

Ex then redeemed himself by being significantly less twatty than usual and did most of the tidying, just letting me direct him. Which NEVER happens. But it did. So I am most thankful for him suddenly being UN twatty!!

House ok -ish now, and 4-bed+ dining room house that I'm being interviewed for will be ready in 8-10 weeks if I get it...

<<crosses any body parts that haven't recently been burnt away...>>

MerryCouthyMows Fri 15-Mar-13 00:01:21

I have the opposite problem with schools - DS1 is sobbing that he still has to wait till July to get the fuck away from the school that he's IN.

Mostly because he is so unsupported there. This is a child that HATES change, would wear the same clothes for 30 days in a row if it meant not having to run the risk of wearing less comfortable clothes etc, a child that hates going out at the weekend unless it has been planned for 3 months in advance...

But he so NEEDS to be out if this school where he is so unsupported.

I need to go order some rice milk chocolate substitute so that I can make DS3's Easter eggs, but I shall return...

MerryCouthyMows Fri 15-Mar-13 00:02:45

I'm getting really worried about you, Leonie. If you have the rash, please go to A&E, your GP isn't taking you seriously, and I want you to get seen by someone who will take you seriously.

NoHaudinMaWheest Fri 15-Mar-13 00:09:15

Couthy good luck for tomorrow. Crossing everything for you too.

LeonieDelt Fri 15-Mar-13 07:17:19

I have four bumps around my buttom, mucosal type skin. Last night they were like pimples but when i touched them they popped.

Today they are flatter and broader with a red ring around them.

If there arent fewer of them by the weekend, i will go to A&E cos the fucking GP isnt believing me, and it is just too coincidental to get these spots THERE, where i NEVER get spots, you know?

Good luck to everyone for today xx

LeonieDelt Fri 15-Mar-13 08:19:40

i've never been spacy off naproxen - just heartburn, and lots of it!

i hate NSAIDS anyway.

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