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Think we will have diagnosis

5 replies

MovingOnNow · 02/01/2013 08:44

Hi my son has been through assessment for ASD inc ADOS and we are due to see comm paed for outcomes in next couple of weeks. School have already applied for statement for him and all their responses on medical quest etc were v similar to ours. It was school and speech therapist who first suggested we have him referred in the first place. I can't imagine that he won't be diagnosed but I feel like I am going crazy and keep thinking will they say no just rubbish parents or diagnose him with something else or will it turn out they something happened at birth, he was cs delivery etc, not that they would be looking to admit that I'm sure. In my heart I think maybe moderate ASD and moderate LD but what if its even worse than I think? I was in denial for a bit, not any more, but what if its worse than I've even allowed myself to think? He can seem so normal at times and yet in some situations he stands out like a sore thumb. Has anyone else felt like this? I think we have been lucky in a way, the process has been quite quick, six months but I am so nervous about the outcome now.

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Handywoman · 02/01/2013 09:22

Sounds like things have moved quickly for you but this is the most intense part, knowing that a conclusion is 'out there' and you are on tenterhooks.... since this just about changes everything, the having a diagnosis for life, even though it changes nothing at the same time. Not where you are at yet but I'd say a bit of turmoil right now is inevitable. Massive honks (repeat to fade) to get you through the next couple of weeks, moving .

Handy xxxxxxx

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Ineedmorepatience · 02/01/2013 10:40

Hi moving, I remember that feeling of not knowing very well and it is horrible.

By the time the day arrived for the psychiatrist to feed back to us I had totally convinced myself that Dd3 would not be getting a diagnosis.

In fact she did and we were right all along, she does have ASD.

I did wonder afterwards if it was my way of preparing myself to not be too upset and to start looking at what we would do next.

I cant give you any advice I am sorry but please try not to get too stressed.

Good luckSmile

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Ineedmorepatience · 02/01/2013 10:41

Oh and honking for you Smile

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MovingOnNow · 02/01/2013 10:54

Thanks. I knew I would feel like this. Been able to put it out my head over Xmas but now I am staring it in the face, almost. I am pretty sure there will be a diagnosis but my imagination is running riot. At this stage, to not get a diagnosis would be worse I think.

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coff33andmintspies · 03/01/2013 01:00

More honking here for you :)

I could tell you not to stress, worry, think about it, fret but I wont as you wont listen lol as I was not able to switch off any of these

Brain plays ping pong, want to know, dont want to know, know you are right, want to be told you are wrong, I know what I am saying, what if they tell me I have gone bonkers!

You are nearly there and it will be ok. Let us know when and we can hold your hand along the way x

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