Education Welfare are on my back

[jenk1]

i have posted on here before about my DS problems with him going to school.

Some days he works himself up into a right state, vomiting,soiling himself and i dont send him in when he,s like that.

Well the other day i got a letter from the welfare officer asking me why ds has been having odd days here and there off.

Its not like i dont tell school whats going on, i ALWAYS phone and explain, so the officer is coming to see me.

I telephoned the hospital and complained that DS has been waiting since April for the next stage of his assesment for AS/ASD, apparently he is at the top of the list and will be seen in early jan06.

When i explained about DS anxiety the doctor told me to give the school his name and number and he would speak to them, he was quite annoyed and said "for goodness sake DS has a medical problem im fed up of unsympathetic schools not being understanding-get them to ring me"

So i have!!!

As for the welfare officer-bring it on, the way i feel at the moment i dont care what they have to say i simply CANNOT send DS into school when he is having an anxiety attack.

Right rant over got that off my chest feel better now

[hana]

sadly there prob isn't a lot of communication between the ed welfare officer and the school, so she may not know about your situation.

[jenk1]

she does though, thats what annoys me

[hana]

oh
yes you have every right to be
hope it goes ok

[PeachyPlumPudding]

Go for them, Jenk1! They're completely out of order piling et more stress on your family and you are doing exactly the right thing.

Crap, isn't it, what we have to go through for the kids who deserve so much help.

[baka]

jenk I don;t know if it's suitable for your situation but have you seen the book "hone educating our autistic spectrum children-paths are made for walking" published by Jessica Kingsley?

[jenk1]

no i havent seen that baka,can you provide a link for me?

TIA

[PeachyPlumPudding]

Jenk, sorry to butt in but I was wondering how long it took you to get your dx and was it easy to get your Gp to do it? Paed asked us to watch for other adults with As and we keep coming abck to one- me. I'm reading a book by someone with AS who wasn't diagnosed as a child, and it may as well be by me. Was it worth going through it all? Honestly?

[jenk1]

Peachy,i too realised i was AS by reading things and having my son dx,d.

It wasnt easy,my GP refused to entertain the fact that i could be AS,she said i was probably a bit depressed!

I stuck to my guns and insisted that she refer me to psychiatry at the hospital to which she said they,ll probably want you to go on antidepressants, i think she thought i was going doolally which made me angry

The psychiatrist was lovely, he asked me to write down (before the appointment)why i thought i was AS and my DH wrote him a letter explaining the difficulties especially sensory issues that i have.

He diagnosed me after an hour, he also added that GP,s could do with being retrained as most of them seem to have the opinion that AS is a sort of "trainspotter" syndrome.

Was it worth it?- YES definately for me, i felt a big huge relief that after all these years of not fitting in and thinking that i was weird that i now knew what it was, i have a condition which makes me think and act slightly different to everyone else and that has given me real peace of mind.

Be prepared for close family not accepting the diagnosis though as mine wouldnt, some have but some still wont accept it-but i dont care.

Oh and i put everything in writing for my GP to go on my records.

[PeachyPlumPudding]

Hiya. I spoke to DH, who asn't sure until I went through the book I mentioned earlier and that you said yoou read. Lots of things made sense to him too, particularly making friends (I'm great in a smaller group but useless in a crowd) and the spatial awareness- took me six attempts to choose the door to the shopping centre that I needed yesterday, they only have two doors, and an hour to find my car today!! The pedantic langauge thing gets me too. All in all I'm probably a classic Aspie! I have lost count of the jobs I have lost because 'you're very nice and your work is fine, there's just something not quite right....' Actually, it's 4 jobs.

I'm not good at Dr's surgeries but am going to get up the courage to go in over then next few weeks. Funny thing is, if we hadn't moved away, from all the people I knew and where I could find my way, I probably wouldn't have noticed, Huge famillies have their benefits, for instance a social group you don't have to understand