<sigh> DD's first day back at school

[KatyMac]

Poor DD, no 121, her little friend that used to help has been moved to another class

So she is wandering around lost, late for lessons, doing no work when she gets there

She won't go to Student Services, "Can't you sort it out mummy?"

I was only today wondering how she is getting on. Have you got the energy to fight for her to have a full time 1 to 1?

oh dear. whats the lates with dd btw? not seen an update for a while.

After the whole CP thing at the professionals meeting I'm scared to do anything much

She is telling me she is 'not seeing' but there is some evidence she can see some stuff she can see people but not recognise them

I haven't been allowed the minutes but:
Her 121 was removed
Her VI charity support worker has been removed
She cannot attend any VI events
She will not be supported at school
I should not apply for DLA
I was told there were no current CP issues to answer

You haven't been ALLOWED the minutes. Hang on. This is important stuff about your daughter and they won't let you see the minutes. That's crap.
I'm sorry she's having a hard time, and sorry for you that you are going to have to keep on fighting for her. On the plus side, good that she can see a bit more but they surely can't go from everything to nothing without a bit more of an explanation.

i don't understand why not??

Me neither

If she had anorexia, another psychological condition, she would be supported and helped to overcome it. But with conversion disorder the 'treatment' seems to be ignore it & will go away.

But when she was having support (121, youth support worker, IT aids etc.) she got a bit better, when it was removed she got worse

I could well be wrong but I thought the only reason they could withold information under the freedom of information act was if they thought there were child protection issues, as there aren't you should have them. Unfortunately sometimes they raise cp issues to scare parents off fighting for what the child needs. Have you been back in contact with the charity to see what advice they can offer? Sorry your dd is having such a crap time

Do you have legal support? Because this just doesn't sound acceptible. Can SENSOS or SENDIST help?

I am so sorry it sounded as if things were a little better last term.

I was told to back off, that I wasn't helping DD by being like that

by being like what

do all professionals agree? Is anyone on your side? What have school said about her having no support

By being adversarial, by sticking up for her, by asking for help for her

The school were at the meeting

OMG Katymac I've only just caught up with what's going on!

What level of competence do these professionals have in Conversion Disorder? Should you be thinking about asking for a referral to Great Ormond Street or someone who specialises in this?

Her symptoms are real so how can she manage without assistance?

How is it going to help her to deny her access to her education?

If she has conversion disorder she has a psychiatric disorder which means you have to give her much more support than another child her age in order for her to function - therefore she is entitled to DLA.

I'd be very worried about taking this line with her if I wasn't convinced that the professionals involved really knew what they were talking about. I think I'd want to know who they've approached for advice themselves.

If they have no CP worries you have a right to see the minutes of the meeting. I guess they have been less than complimentary about you so they might not make comfortable reading but you need to know how they've made these decisions.

Is that why they've moved her friend away? If so that's just plain cruel.

Considering ringing the council to find out what the process for de-registering a child is

You may find this helpful:-

www.education-otherwise.org/deregistration.htm

I think it was more bringing it to their attention that I am deeply unhappy but cannot intervene in any positive way

the cynic in me says they are telling you to back off because you are creating more work for them. Are parent partnership any good where you are, may be they can offer some support.

You think?

don't give up katy, you just have to join the don't mind ruffling feathers brigade. I know you all thought she was almost better but circumstances have changed and she needs the support

I'd be putting everything at risk tho' I'm not sure we can afford that

what will be at risk?