DS4 has hydrocephalus, immature brain and a repaired cleft lip and palate (with all the usual hearing/speech issues that go with it). He has had 9 operations for various things so far with another 2-4 planned for next year. He's only 2 so very early to be thinking about this but I keep worrying about the support (or lack of support) he's going to get at school.
Most of his problems are health related. People say he isn't that bad because he "only" has 2 therapists (OT and SALT) but he has 6 consultants (general paed, neurosurgeon, ENT, eye dr, genetics and plastic surgeon) as well. I'm worried he will slip through the net as most of his problems are related to health rather than education.
He is currently at a SN preschool 1 morning a week where he and most of the other children there get a ratio of 1 adult to 2 children. They are going to do a development assessment on him next term and the senco from my older sons school is coming to see him at preschool in the summer term. So it's all being organised but I keep thinking that they are going to say he's not going to get any help.
Thing is, if I was asked why I wanted him to get extra help it would be because I want him to be wrapped in cotton wool at school like I do at home and there's no way the school would employ a 1-to-1 for that. I keep worrying that if he has an emergency with his shunt then in a class of 30 the teacher wont notice and his brain will get more damaged than it already is. Although one of the staff at preschool reminded me that a malfunction with the shunt will start of very gradually and even in a class of 100 the teacher would notice if he got to the emergency stage as he would be puking and/or having seizures. Even if they didn't understand why, they'd know they would need to contact me quickly.
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support for children with chronic health problems at school
4 replies
elliejjtiny · 21/12/2015 16:25
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