Hoping to hear some success stories from anyone in a similar boat to myself to cheer me up. I came off the pill in September 2011 after taking it for a good 12 years and since then... nothing basically. I've had two random bleeds - I wouldn't really describe them as periods as they are so brief, plus one after a trial of progesterone (again so minimal I barely noticed). Scans all normal (so no PCOS) and I don't know the exact numbers but FSH/LH tests revealed no cause for concern.
I saw a gynaecologist in November 2012 who told me to put on some weight (my BMI was 21 at the time so I'm really not in eating disorder territory), which I have done (around half a stone, which is quite a bit for 5ft nothing!). He also told me reduce my exercise which I have also done. Maybe worth noting that I had a stress fracture in this time which almost 2 years of no periods couldn't really have helped.
I think the next step is Clomid, but have read some stuff about it not being very successful in people who don't have periods anyway. Anyone had anything similar happen to them?
Ah, I thought my thread had disappeared into the archives! Thanks so much for everyone who has shared their stories. Congrats to those who eventually got their BFP. Gwen, Diane & Cherry sorry to hear of you're going through similar. Poundland do you know what tests they did to diagnose hypothalamic amenorrhea?
My FSH, LH & Prolactin were all normal. I'm abroad for 2 months at the moment, taking a break from everything, doing no exercise and eating a helluva a lot of rice so we'll see if any of this helps. I'm going to get AMH tested when I get back and husband had sperm analysis done before we went away so hopefully will be armed with more info soon. I'd hoped to get the Clomid at the next appointment but the gynae has now said protocol is to test my tubes first. It's really annoying as I see it we should get me ovulating first and I don't really want an invasive procedure and anaesthetic when I don't think there's any indication that I have a tubal problem! Grrrrrr.
(Stupid) doctor told me that I would never conceive naturally since I had polycystic ovaries (but totally normal hormones, something he conveniently forgot...). He put me on metformin which did nothing. Came off metformin and started a really clean diet, put on some weight, reduced my exercise levels. Periods came back. Fell pregnant first cycle trying with DD.
Got cancer. Had an ovary removed. Made some frozen embryos. Had two rounds of chemo. Defrosted embryos and they didn't survive. Specialist at the fertility clinic told me my AMH levels were so low as to mean menopause.
Conceived DS first month of trying (once waiting the requisite 6m post-chemo).
You cannot predict anything (and should never use the fertility clinic I did...). Best of luck.
Have never written on a forum before but did a search for post-pill amenorrhea and thought I'd join in. It's really great to hear some of the success stories on here.
I came off the pill in January 2013 after 10 years on it in the hope of starting a family. We are now in September and still nothing. I've tried taking Agnus Caste daily as well as going to see a Chinese herbalist for a month - at a cost of £50 a week it's something I couldn't afford to keep up. Blood tests have shown normal hormone levels but I'm still worried my periods won't come back! I was regular before going on the pill but it feels like so long ago now.
I wondered if anyone had tried accupuncture? I read online that has been successful for some people. I only wish I had known about the risks of being on the pill before now! I also wondered whether people have noticed a massive increase in spots on their face?! Mine have never been so bad, even as a teenager! I wish all you ladies lots of luck and all the best in your quests. Any further tips to bring my period back would be so much appreciated!
Hi Jayjay I don't know much about acupuncture but I would push to make sure you get a scan too. The lack of periods and acne could point towards PCOS maybe? I wish I had happy news to share but unfortunately my AMH came back low and when they looked at my bloods again it turns out my FSH was on the border between normal and high so it's looking increasingly likely that some kind of premature menopause is happening. I'm just in the process of having all my bloods repeated and starting a Clomid challenge. To add insult to injury DH sperm count was also low. I'm pretty annoyed that I let them fob me off for a year whilst they told me to put on weight and stop exercising when all along that high FSH should have prompted them to think about menopause. Will keep you updated anyway. Sorry for not being more positive, but read all the stuff above. Plenty of people got a BFP in your situation.
Sorry to hear that DrSocks must be frustrating and scary to be hearing that after so many reassurances hormone levels were fine. I hope you get some answers soon. I think knowing is the first step towards dealing with stuff.
Jay I have regular acupuncture and find it really helps with my general well being and energy levels, emotional stability, the lot. It obviously couldn't 'fix' my problem but hopefully will help to put me in the best possible place for successfully carrying a child. We're now on the waiting list to be matched for DEIVF.
Congratulations flowers yup, we should all believe in miracles too! One of the reasons I've opted for HRT to control menopause symptoms is because it's not a contraceptive. If the stars align with jupiter during a full moon, well you just never know!