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General health

smear

30 replies

samandemmasmum · 27/02/2007 22:07

had a smear test 4 weeks ago and got my results today.... could hardly breath the reasults came back as severe dyskaryosis or after reading a leaflet enclosed also known as cin3. well i have planned my funeral in my head also who will look after the kids. doctor can only see my tomorrow and will refer me on but wants a chat first. the will go to the hospital any advice out there. on my third large glass of red wine

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ScoobyDooooo · 27/02/2007 22:09

I am sorry the result was not good, i am however unsure what this is, but just wanted to let you know this has been read, take care xx

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samandemmasmum · 27/02/2007 22:13

from what i can find out from nhs direct etc this can be the first signs of cancer of the cervix ........so cant wait to find out what the waiting list will be to see a specialist?

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ScoobyDooooo · 27/02/2007 22:16

Oh no i am very sorry, i do know my riends mil was in 3rd stage i think it was of cervical cancer & she has been fine for a few years now.

I am sure you will get more answers after seeing your gp, sorry i can not be of any more help. Goodluck x

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samandemmasmum · 27/02/2007 22:20

the info they send you is a little leaflet and ask you to call your gp what you want is answers now or at least a idea of what all the info is about so found myself looking on the internet. sure the doctor will tell me i shouldnt have looked but with only a leaflet to look at i wanted to know more..

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AngeG · 27/02/2007 22:21

Samandemmasmum - I had an abnormal smear and follow up colposcopy - where they look at the cells under a microscope, they also took a biopsy, it came back as CIN3 they took great care to reassure me that this was not cancer but precancer, ie it could develop into cancer over a period of years.

I had the cells removed by loop excision and now have to have smears/colposcopys every 6 months as a precaution.

Try not to worry. Glad that you've got an appointment with the doctor for tomorrow, hopefully they will help to reassure you.

Posted this on another thread but just seen this one.

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samandemmasmum · 27/02/2007 22:21

can anyone give me some hope.....

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samandemmasmum · 27/02/2007 22:23

ange how long did you wait ?

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Aimsmum · 27/02/2007 22:26

Message withdrawn

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AngeG · 27/02/2007 22:27

Not long I don't think. I had the loop excision in june last year. Trying to find my last year's diary to see how long I waited. Will post if I can find it.

I know it's scary, but honestly in can take years for CIN3 changes to develop into cancer. When was your last smear before this one?

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samandemmasmum · 27/02/2007 22:28

reading the leaflet yes as they descibed it a severe so will hopefully know tomorrow what the waiting list will be..

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samandemmasmum · 27/02/2007 22:30

my little girl is two and 1/2 so think about that long. I know that i have always had smears as soon as they send the letter reminding me.

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samandemmasmum · 27/02/2007 22:32

cant believe how better i feel. never used mums net before for a chat and feel a lot better now thanks girls.........

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AngeG · 27/02/2007 22:37

I'm so glad you're feeling better

Let us know what the doctor says tomorrow.

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samandemmasmum · 27/02/2007 22:39

amismum was your test a cin1 2 0r 3 seems that they send women for colposcopys for both 2 and 3 . i have to look how to spell this every time ......

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joolsandoliver · 27/02/2007 22:42

Firstly big hugs, really sorry to hear that. Secondly I think you can stop the funeral arrangements for the moment as you DO NOT have cancer! And yes I was shouting that !!

CIN 3 admittedly is the worst kind of dyskaryosis that you can have but it isn't cancer. Approximately 1.8% of CIN3 will invade to become cancer per year, or 36% over a 20year period (that means that 20 years later almost 2/3rds of people with CIN3 still won't have developed cancer). CIN just means it has the potential to become an invasive malignancy but CIN by definition does not have any malignant properties. The fact that yours has been detected means that it can be treated, the abnormal epithelium removed and so all goes back to normal.

It sucks a lot, not least because it means that you are going to need regular check ups and no-one likes exposing their bits. But it most certainly is not a death sentence providing you have treatment. I really really want to stress that you do not have cancer.

What will happen next is that you are referred on for colposcopy. Normally a gynaecologist does this although some GPs with a special interest in this also do them. Colposcopy is a bit like a smear but usually they have a special chair so your legs are on stirrup rests. The scope itself is basically the normal speculum they use for a smear but it has a special camera attached so that it's a bit like a microscope and will put a picture of your cervix onto a screen so the doctor can get a really good look at it. Then he or she will swab your cervix with vinegar (yes really) as this turns any abnormal proteins in your cells white (the abnormal cells are not visible to the naked eye). There are a variety of ways to remove the abnormal cells and your doctor will probably explain which method they are going to use to you first. They will give a local anaesthetic into your cervix which will hurt a little bit but won't be too bad, then the abnormal area will be removed. The doctor will probably put some antiseptic cream on a tampon but then tell you not to use tampons until the spotting finishes which may take a week or two. The tissue taken away then gets sent to histology and they check they have got it (the dyskaryosis) all out. After the all clear on this you will need regular smears for a minimum of 5 years but different areas have different protocols.

I hope this helps, I'll watch this thread so please feel free to ask any more questions if I haven't explained anything very well. If it helps at all I have CIN1 and I'm totally chilled about it, although admittedly CIN 1 can revert to normal and CIN3 won't. Professionally the worst cases that I have seen have been people WITH symptoms (usually bleeding between periods or after sex) that have complete denial for whatever reason. You have had a problem detected and so long as you take action, and have the follow up, you're kids are still going to have to worry about who looks afer you / chooses the nursing home for you!!

Lots of hugs and best wishes
Julia x

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samandemmasmum · 27/02/2007 22:49

you know your stuff....

just find it really hard that they send you info in a leaflet and then you have to wait until you can see your doctor for any further info. do you think i will have to wait a long time for my colposcopy ?

and yes thanks i feel a lot better now.(blush)

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Aimsmum · 27/02/2007 22:50

Message withdrawn

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AngeG · 27/02/2007 22:57

joolsandoliver, wish you'd been around when I had my letter

I too thought I was going to die. I only went for the smear because I was bleeding after sex and between periods, so wasn't totally shocked with the result.

I should have had my 6 month check up at Christmas but was told by my consultant to cancel it because I was pregnant. I have rearranged it but do you know how long after having the baby I should go back? Don't want to leave it too long obviously.

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AngeG · 27/02/2007 22:58

sorry to gatecrash samandemmasmum.

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samandemmasmum · 27/02/2007 22:59

glad im not the only one that had a heart attack..(shock)

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joolsandoliver · 27/02/2007 23:15

AngeG - I don't want to give individual advice as it isn't safe and I don't know what your smear results were. So obviously I would suggest you discuss this with your Consultant or GP. However as a general rule... smears during pregnancy are not very accurate as your hormones change the cells in your cervix. After birth you have lots of white blood cells that can cause a smear to come up abnormal so the earliest smear recommended would be about 12 weeks after you've given birth. This could still show up abnormal and if it was the first time you'd be told to wait around 6 months for a repeat smear. However your consultant might feel differently depending on what grade your last CIN was. So please do discuss it with them, they really won't mind. It won't disturb your pregnancy though, so enjoy that while you can!!

Sam and Emmas Mum - I don't think you will have to wait too long for a colposcopy although a few weeks will obviously feel like an age to you at the time. There are lots of government protocols on stuff like this so it really won't be age and you most certainly will not be left at risk. I'm glad you feel a little better and please do not blush (unless it's from the red wine!!) as freaking out would be completely normal. x

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AngeG · 28/02/2007 10:00

Thanks for the reply joolsandoliver. Will discuss it with consultant next time I see him. It was CIN3 cells that were removed so I'm obviously a little anxious, but after they were removed I fell pg immediatley and had been trying for almost a year previous to that so it obviously did some good

Samandemmasmum do let us know what the doctor says today.

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samandemmasmum · 28/02/2007 17:58

went to docs today and they have refered me to the hospital. the consultant will call me to book appointment hopefully within 4-6 weeks.

the doc did say that the cells wouldnt change over night so a short wait wouldnt do any harm. easier said than done though feel a lot better today and know that the cells will not turn to cancer that quickly and would infact take years means no rush to a private clinic as that really wouldnt help...thanks for all your advice and support and will keep you posted

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Chocol8 · 28/02/2007 18:17

Samandemmasmum - i wish i'd had Joolsandoliver's advice when i had this nearly 20 years ago!

When i called for my results i was told by the receptionist that i had a year to live...! I had CIN3 too and it was dealt with within a few weeks.

However, a word of warning: They tell you not to lift anything heavy for 2 weeks afterwards, so i waited then carried 2 heavy bags of clothes (no car at that time). I ended back at hospital for 3 days with teabag sized clots falling out of me every 10 minutes (quite amusing after a while - i had to laugh or i'd have cried). So, do NOT carry anything heavy - i think they recommend you do not "operate a kettle" nowadays, as i went in to have a cervical polyp removed on Monday and was told this.

You will be fine, don't worry - keep us updated won't you? x

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EdieMcredie · 28/02/2007 18:43

The reason they do smears is to detect things early enough for treatment. You are probably appropriately reassured by now but again: don't worry, I have a friend who had severe (cin3) and she had laser treatment and is now fine. My mum had laser treatment too. My aunty left her smears for years (that rhymes!) and had to have quite a bit of treatment but is also fine now.

I had an abnormal smear last year (!) but am now pg and they were happy to leave it, (that was only the mildest abnormality but still it apparently takes any abnormal cells down there a long long time to turn into anything sinister if at all).

You will be fine

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