Postedin chat but been sensibly advised to repost here.
Canâ??t talk about this to many people in RL so thought I would try here!
 DP failed his peripheral vision test last time he went for an eye check up (just a standard on). He was referred to the hospital and had his appointment on Monday. The ophthalmologist told him his retinas are extremely thin and that he wasnâ??t able to tell him what was wrong and he would need to see a specialist. He said he had rarely seen anything like it and seems to suspect it might be Retinitis Pigmentosa.  DP also has night blindness which is a classic symptom.
I have done a lot of research into RP and I know I should have stayed away from the internet but it really is seeming like it is the only thing It could be. If DP fails the peripheral test on his next appointment he will lose his driving licence which he is gutted about. I am absolutely terrified.
I am maintaining a very upbeat and positive vibe at home but today at work I am really struggling to keep it together. Iâ??ve read so many things to say that many people with this are legally blind by 40, that gives him 10 years. We havenâ??t had children yet and DP said his immediate thought was that we wouldnâ??t be able to drive his children to birthday parties at the weekend! I feel total panic like I need to marry him and have a baby immediately while he still has vision. Also, if it is a genetic condition then we need to seriously consider whether we would be cruel to bring children into the world knowing they might go blind. So much to think about.Â
I donâ??t drive so am booking an intensive driving course for next month. DP is doing this â??eye yogaâ?? thing which is supposed to help improve peripheral vision and I have ordered him vitamin A tablets because that is supposed to help with Retina function. We have 4-6 weeks to wait for the appointment and I feel like I am going to scratch all my skin of in despair!
DP is pretending he is OK and just getting on with trying to train his eyes but I know he is trying to be brave and I feel awful for him.Â
Does anyone have any experience of the condition who could talk to me, or maybe just a hand to hold? Â I am so sorry if any of this is insensitive to any sufferers, I donâ??t mean any offence I am just in shock and a bit hysterical! I feel silly being so upset when we havenâ??t had the diagnosis confirmed and I am so sorry if I seem melodramatic, Iâ??m just bloody scared
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General health
Retinitis Pigmentosa
Jenda · 26/02/2014 15:57
Hi NK thank you very much for that. I have devoured RNIB and will definitely contact them if the diagnosis is what we think it is, would feel like I was wasting their time until we have the facts.
If it is RP I would love if it you could contact your cousin. If my DP could talk to someone who is living with it I think it would be helpful. I really appreciate the thought, thank you so much
Just been stocking up on oily fish and vitamin a in the vain hope it will help. DP pointed out that we might get a labrador out of this, good to maintain a sense of humour I guess 
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