My father died of a brain tumour aged 87, 4 months after diagnosis.
First the positives, and there were some. He had been fit and well up to then, so no slow decline. He was not in pain. The end for him came in the form of a bleed in the brain, not uncommon apparently. So he died in his sleep at home, just at the point when he was starting to be incapacitated, and need extra support. I was able to visit almost every weekend and, for some reason each time seemed to be a clear and sunny autumn day. Looking back it was quite a special time, when I was able to offer support. A reversal of the previous relationship when my father would have offered me advice, but never taken it.
A few points:
- He was frightened, though he mainly coped by denial.
- My mother was frightened. In her case problems were exacerbated by unacknowledged early dementia. At times this took the form of real anger towards my father for "leaving her".
- Instinctively or explicitly I think my father knew what was going on and was very concerned that I would continue to support my mother.
- My approach was to visit frequently but not for long. I certainly did not want to be a "guest", and so always claimed to have eaten beforehand or even picked up nice things from M&S on my way down and then left the excess in their fridge. To a large extent they seemed to want to deal with it all on their own.
- It is worth though seeing if you can provide practical support for hospital visits, and more. Sort out a disabled badge so you can park at the hospital. There is a form of emergency Attendance Allowance for those with terminal illness. Seek a referral for a MacMillan nurse etc. (And read MacMillans very helpful website.)
Now paper. I failed to recognise how bad my mum was so although I took over the management of a rental property which my dad had started fretting about, I did not insist he handed the rest over to me or briefed me. I would suggest you talk to your dad about him taking you through stuff so that you can properly support your mother. Losing a partner at this age is a major shock, and though she may be perfectly capable this is one area she might delegate to you. It is far from unusual for the surviving partner to become depressed or ill.
I instead had to sort stuff out after four years of chaos. So a skip full of paper, and even then a pile 4 foot high pile taking over the whole of the living room floor. No tax returns done, my mother had changed utility companies every couple of months, had about a dozen set of expensive insurance on her Sky box, had tied her money up into inflexible long term stock market linked savings vehicles on the advice of her bank and lots more. If anyone ever has something similar I advocate a hole punch and ring binders, with lots of dividers. Sort first into category: utilities, insurances, banks etc. Then resort by provider, date etc. It took four months to clear her flat and I was still finding important documents right to the very end.
If you can get agreement from both parents to your support try the following:
- Wills, probate etc. If there is a Will find out who will responsible for Probate. If a lawyer check what will be needed. As I recall, even though everything was left to my mother, my mother had to have details of bank accounts, pensions and life insurances, and of properties owned, NI numbers etc. My father had left this in good order, so my mother was able to present a list. The lawyer, who was responsible for probate, was then able to inform pension providers, the land registry, banks, Inland Revenue etc in a fairly straightforward manner. Worth encouraging your dad to do as I think there is a deadline on submitting getting the probate done.
- Power of Attorney. If you can persuade your father that you need to be involved try to get him to sign a POA. If you take legal advice you might be able to do something which enables you to run things but gives your mum full say. She should also sign something appropriate. This will take about three months to come through, but I found that the very fact that my mother had signed a POA, when she finally did, meant people were willing to talk to me.
- Third Party Mandate. You can get forms from the banks. This adds you to the account and means that you can see statements, have your own cheque book etc. It happens within a week so far quicker that the POA.
- Mail redirect. You don't say how capable your mother is, but imply your dad has always been in charge. Being recently bereaved is not a good time to start managing household finance if you have not done it before. When the crisis struck (my mum had a fall and broke her hip) I typed out letters to pension providers, utilities etc for her to sign asking that mail came to me. I also got her to sign a mail redirect form. One option might be for you to do this for a year, whilst she has other things to concentrate on.
In short though, talk to your dad about your taking on some of the admin burden leaving him and your mother to focus on the important things.