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The 6th form post mc ttc and pregnancy common room Part 2

928 replies

brokenbarrenbrook · 18/03/2011 14:52

Getting us started on a new thread; this one is gonna be a lucky one!

OP posts:
AliTheMinx · 18/03/2011 15:00

Why hello there! Smile xxxxxxx

randomimposter · 18/03/2011 15:00

yay to that my darlin'

brokenbarrenbrook · 18/03/2011 15:09

Lucky for me and thee jollipops, I can smell it!

Hey Ali!

Can you believe that I am ridiculously nervous about asking my GP to prescribe me Progesterone? What is wrong with me! I think I need DH with me to give me some moral support.

OP posts:
MummyAbroad · 18/03/2011 15:10

thought we might need these!

Morning all!Grin

getawiggleon · 18/03/2011 15:22

Ooh, you've moved again!

Collie2 · 18/03/2011 15:25

quick post to say WHOOO for Izzy congrats on your bfp! I've had 2 faint lines yesterday and today so you've inspired me to go out and buy some rip off cb digi. Xx

MummyAbroad · 18/03/2011 15:37

BB when is your appointment? I found these great great tips about negotiating when I was trying to get my doctor to explore AS. I have adapted it a bit to suit your case but otherwise it is completely plagerised from a lovely lady called heather (from AS support group) Hope its in time to help. xxx

First: hard as it is to do, leave all of your emotions at the door when you discuss this with your doctor. You want to win this one based on logic, fairness, and holding the NHS to standards they have set for themselves.

Second: What is your goal? Keep it clear in your head that your goal is to get your doctor agree verbally (?) or put in your notes (?) that they will prescribe you progesterone from the moment of BFP . Is that correct? Make sure you know exactly what your goal is. You are the least important person in the negotiation -- your goal is utmost.

Third: Read everything you can about what the NHS has said about its treatment of women with recurrent mc. Is there any language used that you applies directly to you? Ask them to tell you what, exactly, treatment is for? Is it just for general health considerations or to give you the best possible chance of successful pregnancy? Are they generally willing to try explore more avenues if the initial recommendations have failed?

Fourth: Can you point to ANY instances in which others in your situation or a similar one has received this treatment? (you are looking for recurrent mc consultants/GP?s who have prescribed progesterone in similar cases) Are there other instances for which ?exploratory? prescriptions have been made?

Fifth: Are there any third parties who can intervene on your behalf? This could be (recent) published material recognised by NHS that states that progesterone is useful. Or a letter of recommendation from another doctor? Can you take your case to a RCM consultant and ask what they think of the NHS's policy on prescribing progesterone after 4 mc?

Sixth: Look online at NHS guidelines. What standards does the NHS state it holds itself to (fairness, transparency etc...)? If they are violating their standards in their treatment of your case, it's fair to ask why or whether they are aware of the discrepancy in standards.

Seventh: Try role reversal. Sounds wierd, but it works. Sit down with your husband/friend. Have him play you, and you play the GP. Really think about why they believe you shouldn't get the treatment. If you understand their point of view, it's easier to come up with an argument that gives them a reason to help you. Has there been flood of similar requests in the past ? Is there a fundamental ignorance about what has/hasn?t been tried in your case? Do they not believe the treatment will work/be cost effective?

Eighth: If you get "this is the way we've always done it," be ready to provide examples of other ways the NHS has changed with the times in the past. (It probably has done a U turn on certain medications in the past , for example. Reccurant miscarriage clinics are doing knew trials all the time and making new discoveries etc...whatever is relevant.) Tradition is not stagnant.

Don't take no for an answer. Here, I'm going to quote a negotiations professor: A negotiation is over when you say it is, not before. It doesn't matter how many times the other person says no, or disagrees with you, or gives you a hard time. Keep asking, stay focused on your goals (without making yourself the issue). Persistence, after all, is a focused effort over time to meet your goals. If the other party bridles at your persistence, say something like, "Well, I'm just trying to meet my goals. Is there some way I could do this better?"

Keep asking questions. Value the other party. Stay calm and polite, but firm.

Good luck!

MummyAbroad · 18/03/2011 15:38

congrats collie!!!

Getawiggle how are you doing?

Chloe55 · 18/03/2011 15:50

wiggle I love your little 'one night stand' story from the last thread, seems a much nicer way to think about things. Smile

getawiggleon · 18/03/2011 15:51

Izzy Fantastic news Grin Grin Congratulations Missus! Hope you have a v healthy and uneventful 8 months ahead of you! xx

YRMOTB We only managed two swis last month at the right time and one of them hit the spot so one is all you need!

CD4 here today after last weeks cp. Feel slightly consoled to know that the sperm did finally meet the egg and I imagine that they went on a little date down the fallopian tube only to discover that they were incompatible (I expect egg was too mature) so unfortunately it was nothing more than a one night stand. At least part of the process is happening/ working though and hey, in just over a week we can start all over again - hurray !

Bee I would be interested to know about Dr Shehata too I'm with ARGC at present and had 16 vials of blood sent off to Chicago for immune testing yesterday and depending on the results I will decide whether to stay with them or maybe look into somewhere that focuses specifically on rmc.

BBB I agree with the others that you need to look after yourself and focus on maintaining your own future pg rather than risking another mc for the trial.

IzzyWizzyletsgetbusy · 18/03/2011 15:53

Congratulations collie !! Grin I have to say although the cb digis are a complete ripoff a little expensive, it is so reassuring to see it in writing. When I look now at the faint shadow of a line that prompted me to re-test I can't believe I even noticed!!

getawiggleon · 18/03/2011 15:55

Mummy I'm fine, thanks for asking! Period came and went so back on track now. I've just posted message from last thread as wanted to congratulate Izzy on here too Smile Glad your sickness seems to be under control now

mousebacon · 18/03/2011 16:12

Congrats izzy I'm really happy for you! Keeping fingers crossed for collie now. Grin

IzzyWizzyletsgetbusy · 18/03/2011 17:00

Thanks wiggle I hope you're doing ok too - you sound quite philosophical at the minute, I really hope you get a sticky bfp soon xx

Thanks too to mouse that's really sweet. I hope you are coping ok and not getting any more hassle from your boss x

yrmotb do not despair over shag-timing, we didn't have anywhere near as much swi-ing this cycle as we usually would. There is no logic to it!

mummya glad the meds are doing their job, I've never had proper ms but imagine it must be horrible x

appleblossoms · 18/03/2011 17:58

IZZY!!! Grin Grin must confess i've been lurking the last few days on the look out for any news from you! Just shed a little tear of happiness. Congratulations my love! I know it's early days, but will be hoping and praying for such an easy and uneventful 8 months. Ooh! Enjoy not drinking tonight!! x x x

Blackkat · 18/03/2011 18:38

fantastic news Izzy Grin Grin Grin Grin Grin so delighted for you!!!
Wishing you the most boring 8 months ever.

Mouse just read back and seen what you've been going through (((hugs))), hope things look up soon

to everyone else...back to work!

batteryhen · 18/03/2011 18:51

Just popping by to say hooray for izzy :) that is fab news!!!

And collie too? or did I make that up? :)

Won't do a massive name check as am tired out. Dpo 7 here, some cramping today too, so fingers crossed. I managed to Swi from CD14 - 19 every day so I have put the work in!!

Hope everyone is ok today xx

mamapower · 18/03/2011 19:59

I second that BB I hope this will be a super duper lucky thread Grin

digitalgirl · 18/03/2011 20:02

Congratulations izzy Smile what lovely news!

Good luck to those in those in the 2ww or waiting for the egg.

wiggle sorry to read you've had a cp Sad. But it sounds like you're finding the positives in it.

mouse hope your boss gets a telling off from her superiors for her completely outrageous behaviour.

bbb I asked about progesterone today and my consultant (who's german) knew it was prescribed in Germany bu didn't say whether it would be prescribed for me. Ive asked for a post ov progesterone test anyway and if it's low I will ask for it anyway, regardless of whether it's made a difference in trials. I think it's important to try what appears to have worked for others if it can't do any harm. That's why I tried low dose aspirin with my last pg, it may or may not have helped my pregnancy get to 8 weeks. But I will take it again in my next pregnancy.

Had my nhs follow up appt today and have been referred to St Mary's as my consultant (who is lovely) has effectively given up on me - she has no further tests she can offer and completely understands my need to find answers from elsewhere. I'm not actually holding out hope of St Mary's finding anything new but seemed silly not to accept the referral. We probably won't get the karoytyping results from the baby for another couple of months. So in the meantime I've got my private appointment with Dr Shehata next Thursday. Really looking forward to seeing a proper rmc specialist who is willing to test for everything.

Collie2 · 18/03/2011 20:24

Thanks mummya izzy mouse and battery ! It still hasn't sank in, haven't had the courage yet to move myself to the BFP list on t'other thread!

mouse sorry you've been back in hospital, you've really had a tough ride of it. And your ht is unbelievable. Don't be bullied, glad you've got the unions support.

xx

Youremindmeofthebabe · 18/03/2011 20:24

Marking my place. Having a glass and giving all my money away to comic relief. Not crying though, i've just got a hair in my eye.

Good to hear about the referral digi.

Freezingmyarseoff · 18/03/2011 20:46

Marking my spot.

Big Grin Forizzy & collie

Wine Here's to this being the luckiest thread of them all

Ladybee · 18/03/2011 21:27

Izzzzzzzzzyyyyyyyyyyy, Izzy, Izzy,Izzy,Izzy,Izzy,Izzy,Izzy,Izzy,Izzy,Izzy,

Hoorah!

Wiggle - I've sent you details - I only asked about NK cells though. I think PinkFF is with the same clinic as you and they certainly seem attentive.

A little (weird, wry) hoorah for me today - I actually remembered to test and I'm now definitely a -ve. And drinking wine. Right now. The problem is I'm also feeling a bit 'in the mood' and we have no contraception. Still...I reckon it's too early. Shall I take my chances?

Oooooh and collie too! teaches me to start typing before reading all Grin

Digi I'm looking forward to hearing about your appt with Shehata. I understand why the 'cutting edge' treatments aren't more widely accepted but I do wish some of the other consultants had some access to research budgets to at least try to test the treatments. I haven't the first idea how research goes in the NHS, obviously, how on earth are they to work whether it's right or not if more people aren't being trialled on it??

Aye well. I'm watching Cold Feet re-runs...feels very deja vu even though I never saw the first time around

Freezingmyarseoff · 18/03/2011 22:39

Oh ladybee I meant to say earlier, I'm so glad you feel like you're beginning to emerge slowly from your roller coaster. Sounds like your DH will be too Wink. Of course as we sadly all know emotionally it not quite so straight forward but one step at a time. Anyway extra Smile for you.

Big waves to everyone, sorry for not name checking, will try to do a proper catch up over the weekend.

loola2shus · 19/03/2011 08:41

Hi all,

Just wanted to congratulate Izzy fantastic news chica, I'm so pleased for you! Smile Grin

hope everyone else is well, I'm still in the gloomy place, was dd yesterday so feeling pretty crappy, and think AF is on way too (have had terrible skin break out and I am bitch from hell) but have a very strange chart!

Will catch up with everyone properly soon x