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Children's health

What do you think possible hypermobility dd 8 of so what now?

12 replies

lexcat · 27/02/2010 15:59

DD has had ankle pains for about 2 years now they have become more frequent with time. It has now lead to knee pains. Going to the Dr 2nd time round he agreed she does roll her feet inwards and referred us to the physio.

Physio was amazed that she had never seen us before as dd ankles jut right out on the inside, her knees are also turning inwards. Personally it's the worst it's ever been. We have been referred to orthopedics for insoles for her shoes. In a different thread a couple of mums mentioned it might be hypermobility. If it is does it need to diagnosed or been aware that she might be hypermobility is fine.

I have noticed that one ankle will nearly touch the floor when she standing relaxed. Both knees when straight go just beyond 180 degrees and her elbow too. One hand she can just touch her wrist with her thumb. Watched her hopping a minute ago and the knee really over flex as she was landing, that you would think they would give way.

She had really bad pain in her ankle and knees the other day and she it felt like her ankles or knees might give way any minute.

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lexcat · 27/02/2010 16:07

Oh forgot to ask her knees have been sore for the last few days and ankles are not great. They get to the point she has to sit down but gets better (still pain but bearable) with a short rest. Been an active child she's trying her best to ignore the pain but it gets worse as the day goes on.

In the past I put tubigrips on her ankles which mostly always helped should I do the same for her knees, just for a few days.

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lexcat · 27/02/2010 21:27

BUMP

Anyone or is the wrong place for this thread?

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cory · 27/02/2010 23:55

I was one of the mums on the previous thread.

Basically, hypermobility in itself is not a disability: lots of people are hypermobile without ever experiencing any pain. If you do get pain symptoms with hypermobility, it's known as hypermobility syndrome. Pain occurs either when joints are slightly out (sbuluxated), or the movement of joints has caused ligament damage, or simply with the effort of holding joints together when they are too bendy. Treatment can involve insoles, piedro boots, physio, and pacing (not overdoing it).

It is a wide spectrum: some children get a little pain which they then grow out of, or occasional bouts of pain, others end up disabled. I'd say mine are at the more severe end of the spectrum, but definitely not the most severe.

Hypermobility is diagnosed using the Beighton/Brighton score www.hypermobility.org/beighton.php

A rheumatologist is the person most likely to know about it.

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BelleDeChocolateFluffyBunny · 28/02/2010 00:01

My son is exactly the same as your daughter, he also gets alot of pain in his feet, he also used to fall over alot and has really flat feet. I brought him some boots last year, the sturdiest ones I could find (timberland ), they have really helped him, he rarely falls over now but still complains of pain, just not as much. He has had insoles in his shoes for the last 2 years aswell but the boots have worked wonders. We are waiting to hear about some physio. He's really hypermobile.

If I were you I'd invest in a pair of boots!

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mrspoppins · 28/02/2010 00:13

My dd aged 12 is hypermobile...she just lives with it..she's had numerous finger dislocations when under 8, does get knee pain but ortho insoles have helped as does brufen and paracetamol on bad days. She broke her collar bone once when playing as her shoulder dislocated and then she leant on it buit you knw what, she rides her bike, jumps on the trampoline, rushes about like a whirlwind and is a scout...going on a lonk hike tomorrow...It doesn't stop you...can ease with age and muscle strength. just medicine on bad days x

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lexcat · 28/02/2010 08:05

Thanks did the test and dd would scored 5.
I now hold out great faith for her insoles. She has walking boots that she lives in outside of school, because she gets less pain, but they don't stop the pain.

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mrspoppins · 28/02/2010 08:32

Did the test for mine and she got full marks!!! Yeh!!! always knew she was clever!!

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BelleDeChocolateFluffyBunny · 28/02/2010 13:04

The boots will help with some insoles to raise her arches. If you talk to the school about her condition then she should be allowed to wear her boots in school. My son's always found PE a problem, his nanny also has hypermobility and is trained in pilates, she says some types of exercise (such as football) are really bad for him because of the running and kicking, she is registered as disabled because she has severe problems due to the hypermobility. It's often genetic, I have it aswell but the inside of my ankles do not almost touch the floor when I'm walking like ds's (hence the boots, they help to keep his ankles straight). He still gets achey legs/ankles/knees but they are not as bad as they were, I sometimes give him paracetamol and rub them for him which helps, he can't walk very far without being in pain so I'm hoping the physio will help

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mrspoppins · 28/02/2010 13:34

Hi..try too ibuprofen/ calprofen depending on age as it is anti inflammatory unlike paracetamol which isn't. xx

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lexcat · 28/02/2010 14:38

Exercise DD reallys into swimming and has been from a young age, I guess that's a good one been non-weight bearing. Her second love is walking and she would do 3-4 miles mostly, easily and happily. In the last few months it's dropped to 1-2 miles with lots of rests and snacks and even struggling to manage that on some days. So as long as she up to it are long hikes o.k as I love our walks together and we had been building up the distance.

Thirdly is running, she was in a running club but gave up because she hated been the slowest, plus slightly teasing because her lack of speed. I'm sorry to say she really is slow most of the Year 2's (dd Y4) could out run her, bit sad really as she's a keen runner. Mind she still like's to go to the occasional fun run, in-fact got one next week only 1 mile. Is running O.K if she feels up to it.

Lastly for cory piedro boots are they the little lace up boots. I always those were only for toddlers with problem walking to help them with extra support to get them walking. Please do correct me if I'm wrong.

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mrspoppins · 28/02/2010 14:42

Also try ortho trainers..aesics...they come with medial arch supports. My daughter wore these for school.

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cory · 28/02/2010 18:04

Piedro boots are lace up boots specially designed for people who need support. You can get them through an orthopaedic department. Not just for toddlers, my 9yo has them (only problem being that his wrists are so dodgy from hypermobility that he can't really do the lacing either).

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