I just joined Mumsnet today and I'm desperately hoping someone can offer advice.
I had b/g twins who are 9 weeks old. They were born at 33 weeks. My baby girl is suffering with severe reflux and has been for a few weekrg now. She has a history of dusky episodes but has also recently started bringin all her feeds up. After a hospital stay and several dusky episodes she was put on Domperidone and lansoprezole (sorry for spelling). She showed improvement and was discharged but then started with breathing problems again, going dusky and throwing up all her feeds - basically worse than before. She is now also on ranitadene as well as the above. It's doing nothing for her. We tried different milk in case it's dairy related but still no improvement.
Basically, I'm desperate! She's already tiny and needs to gain weight and won't if she continues. Life is pretty difficult as she's still in hospital and separated from her twin. She is likely to be discharged soon, despite all this, because she managed to put on 1oz. This is in spite of the fact feeds are traumatic to say the least and we are allso miserable because she is.
The docs don't kno why the meds aren't controlling it but want to keep her on them anyway. They are only concerned if she loses weight and not the misery and distress that comes with it, not to mention the fear that comes with feeding her in case she goes blue.
Does anyone have any advice? Anything else we could try?
I'm really hoping there's something out there which will work!
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Children's health
Reflux - all meds stopped working! Can anyone help?
Lou175 · 29/06/2013 16:47
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