SPD persisting nearly 5 months post-birth - any hope or grit teeth and bear it?

(23 Posts)
MiaowTheCat Mon 12-Aug-13 13:09:37

Figured I'd get more traffic specifically aimed at women's bits in here.

Two pregnancies close together. First labour spectacularly mishandled - spinal block and legs pulled apart to ridiculous levels, after one midwife who was determined to yank my knee apart despite being constantly requested not to as it was hurting. Left with some ongoing discomfort mainly in my hips which the post-natal physio woman just yelled at me was my own fault. Gave me some pelvis tilt type exercises to do which I've been doing religiously - they've done naff all.

Second pregnancy - again very early onset SPD... both times I've been essentially housebound from about the 24 week mark. Would end up crying in pain trying to move DD1 from the highchair to the sofa, had to set up a cot downstairs as my body just couldn't tackle carrying her up the stairs. Spinal (again - my placentas get stuck) but handled with so much care that time I thought I'd got away with it all.

It's gradually been getting worse and worse - following the whole pattern of progression it's always had for me - starting with my hips just not feeling right, more and more pain moving round to the nice "booted in the crotch repeatedly with someone wearing a steel toe cap boot" feeling... and my knees are now in pain from whatever shit gait I've been adopting to try to walk anywhere. Trying to walk as much as possible to get some degree of physical fitness back, traded our double buggy around to get the lightest possible one I could find... but not much is providing any relief and the thought of being like this forever is pretty soul destroying to be honest. Funds are very very very limited to afford anything private and to be honest I've held off on going to the GP with it as the post-natal physio I saw (they see anyone with a big tear to tell them to do their pelvic floors basically) was rather confrontational and blamed me from the start (I think trying to absolve the hospital from any blame about how roughly they'd handled me), plus I'm frightened I'll get something flagged up on me that I'm physically struggling to cope and social services will start sticking their beak in (don't belittle this concern - I've got strong reasons for my fear of social services - if people know DD1's birth story they'll understand why - and I cope with that fear by making every effort not to draw attention to our family that might make them take an interest in us). DH really doesn't get the amount of pain I'm in - despite me offering to repeatedly kick him in the nuts as an aid to comprehension (an offer he's never taken up for some reason).

Any hope of a recovery now or is this how it's going to be from now on in?

Go back to the GP and demand a referral to a physio. Unacceptable!! Take an advocate with you to boost your confidence and make sure that they don't blame you.

CrispyFB Mon 12-Aug-13 13:33:09

Long shot I know, but if you're in or near London, the British School of Osteopathy has (or did a few years ago) a very well-regarded specialist in SPD. You do have to pay, but it's much, much, much cheaper than regular private charges because usually you get final year students working on you under the very close supervision of an extremely experienced teacher. There are also concessionary rates.

Obviously you may not want to be seen by students but I can vouch for them from my own neck-related issues years ago.

www.bso.ac.uk/195

I've had SPD (early onset also, leaves me housebound too or using a wheelchair for anything over a few hundred yards) with every one of my pregnancies, and although it's not gone away completely after birth, it's improved a lot and gradually gets better over the next year. What you're describing is not normal if it's not feeling a bit better by now :-( Much sympathy.

MiaowTheCat Mon 12-Aug-13 13:35:30

Sadly nowhere near London CrispyFB but thanks for the hope that it might get a bit better than it currently is cos it's flipping miserable at the moment (I think I flared it up daring to walk a little bit at all last week)

jennimoo Mon 12-Aug-13 13:38:16

My physio mentioned that mine might not clear up until after I stopped BFing, are you BFing?

MiaowTheCat Mon 12-Aug-13 13:46:13

Nope not breastfeeding for various reasons.

ouryve Mon 12-Aug-13 13:49:52

No, don't put up with it. Go to your GP and ask for a physio referral.

yetanotherworry Mon 12-Aug-13 13:51:21

My SPD continued until dd was 3 when I started doing pilates alongside my physio. If you can find a good pilates teacher, then they can advise you on exercises which will strengthen various muscles which help to realign your pelvis.

I had this after I had ds. When he was 3 months I had a lightbulb moment and went to see an osteopath. After 3 sessions it had gone. I am current pregnant with my second and am already seeing an osteopath who has already helped with some bad pain in my sacro iliac sp? Joint. Find someone who specialises in pregnancy problems.

Ask your gp to refer you to an osteopath and it won't cost you then.

DeathMetalMum Mon 12-Aug-13 21:21:58

Watching as I seem to be in a similar position. My spd was only ever moderate in conparison to what I have read about other people but my dd is now 5 months and after what felt like instant relief from any pain after birth things seem to be getting gradually worse.

I had forgotton about breastfeeding having an effect so maybe that is my problem.

littleomar Tue 13-Aug-13 11:30:10

I've had osteo treatment at the BSO as well... But there are other teaching centres, and I know some osteos do reduced rates, so have a look locally. Or try and get a referral from your GP, worth a try at least.

Zoomania Tue 13-Aug-13 19:24:27

http://www.pelvicpartnership.org.uk/

I found lots of info on this site.

Sorry you are still in pain.i would definitely consider seeing a physio. Mine finally went after 18months when I stopped breast feeding.

Social services would not get involved unless you wanted some help at home? But your health visitor could tell you what was available.

I hope that it eases for you soon... It is hideous. sad

5madthings Tue 13-Aug-13 19:30:28

You need a federal for physio and to see a specialist. I and this after ds1 and to a degree after ds2. I had a support belt but preferred to wear tight jeans to hold my pelvis steady. Also do core exercises and the exercises given by physio and your pelvic floor which you know.

I and ultra sound treatment after ds1 I didn't find it helped but some people do. At own point they were talking about pinning my pelvis but as I wanted more children that coildmt be done. What actually helped in the end waa giving birth! Bizarre I know but I saw a consultant and he recommended birthing positions and that helped realign my pelvis.

Have you had it x rayed to see how out of alignment it is and how big gthe gap is at your pubos symphisis?

I had SPD with DS1 and I had to see physio when he was about 5 months - pelvic pain flare ups had continued on and off since his birth, I still got sciatica and my left leg would sometimes go numb and I had lower back pain causing my back to just 'lock up' sometimes. I am pg again now (40+4!) with DS2 and I've needed to see physio twice during this pg since the SPD came on sooner and has been tougher going this time round. If it still feels like this when baby finally arrives I wouldn't hesitate to go back - unfortunately it tends not to improve if you ignore it and there are diff things physio can do to help. Good luck!

harrygracejessica Sun 18-Aug-13 08:33:07

I paid and went private in the end - she sorted me out quickly and it didn't cost as much as I thought it would! Ring around for prices don't just live with it - my life changed so much when I was fixed x

Gooders79 Sun 18-Aug-13 17:44:51

I'd get a referral to see a physio as recommended by pp. check if there's a specialist women's health physio as they will be a lot more familiar with your position. Do you know how senior was the physio you saw last time was? It sounds as though those exercises would be inappropriate to treat the symptoms you are describing (have experience in this area not just a random comment). I'd ask to see someone different...

MiaowTheCat Mon 19-Aug-13 13:56:52

Going to see the GP on Wednesday but I'm expecting to be fobbed off with a prescription for stupid quantities of codeine and a merry wave to be honest. Our physios are good with the "keep yer legs together and don't push pushchairs or shopping trollies" speech but little practical use - and that's all that's on offer round here. We literally don't have the spare money to get anything done privately at all - like most these days - we cover the bills and the roof over our heads and that's about it (well it's better than the situation lots are in of late).

PointyDogs Mon 19-Aug-13 22:06:44

I had moderate PGP/SPD from very early in my pregnancy, and was one of the 8% of sufferers for whom it continues after pregnancy. 13 months on I still have some issues but they have been massively helped by a course of physio at the John Radcliffe in Oxford - they run a pelvic stability class that my GP was able to refer me to (I live in the area). The course is aimed specifically at women with pelvic pain, mostly but not exclusively post-pregnancy.

The exercises are heavily based on Pilates-type movements, stretching and strengthening the core muscles. The physio was also a pilates instructor, and she recommended following up the course with either joining a physiotherapist-led pilates group, or a DVD produced by a group called APPI. The beginners one is called Pilates for Lower Back Pain, and covers a very similar range of exercises to the class.

I do stretches twice a day (only takes five minutes), and was doing the strengthening ones maybe 3 times a week (more during the course, less as I have improved), which takes maybe 30 minutes a time. They really did work, I was able to start running again after a couple of months and then did my knees in instead!! Still fighting to get back to full fitness, but much better than I was.

Definitely do not give up. I was very lucky that the course was available, and my physio was fantastic, an expert in the condition. She very strongly believes that it is fixable with the right treatment and exercise.

slightlysoupstained Thu 22-Aug-13 10:34:57

Sorry for thread hijack - but QuietNinjaTardis, were either of your osteopaths in Bristol area? Am looking for recommendations at the mo, SPD seems to be recurring (I think because periods about to restart?) and want to get things sorted properly.

Slightlysoup have only just seen your post but yes. With ds I went to the family practice on Gloucester road and am currently going to yew tree clinic in westbury on trym. Both are fab.
My current osteopath has already fixed me when I did something to my pelvis and was in a lot of pain and is keeping me maintained so hopefully it won't be as bad as last time. Hopefully one of those is near to you? Good luck.

bronya Fri 23-Aug-13 14:26:43

You need to rest, or it can never heal. That, and an osteo/physio. Could you get an appointment privately as a xmas present from a relative, perhaps? Then you have that to look forward to. Another thing for xmas - pilates DVD perhaps?

For now, you need to do the minimum and not keep pushing through the pain. That will only make it worse. Your ligaments stretch and eventually tear (that's when it never goes), the muscles around them are constantly pulled and torn with doing a job they weren't designed for. You need to allow them to heal (so don't walk more than you absolutely must!).

Osmiornica Sat 21-Sep-13 15:00:39

Mine continued long after the birth (still get it a bit now 4 years on) but the best thing I ever did was go to an osteopath. I went about 2 years after the birth and after a few sessions it was the first time I'd not been in pain for years. If you're gp won't help can you see another one?

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