Would appreciate any advice on this, it was a suggestion made by my hospital today that hadn't occurred to me so I'm just trying to think through the ramifications.
I do not want the nuchal fold test.
(I appreciate others might have differing views to me, and I'm not in the business of trying to impose my views, I think everyone needs to make their own choice in their own circumstances.)
But for me, I don't want the it done because I know you only get a risk ratio, not a certainty. I would not have a cvs due to risk of MC, (& harmony is not an option) so I would not get a definitive answer and would be wondering all pregnancy and have a high level of anxiety about it.
It is my sixth pregnancy after 5 MC so I do need to try and reduce things I'm fretting about.
I also would never abort for downs in any circumstances due to my beliefs, so really I don't think I would gain anything by being given a ratio- I wouldn't act on it so really why do I need it?
I rang the hospital to check they were OK with doing the scan without the nuchal and they suggested having the blood tests anyway and then asking not to be given the downs ratio.
Their thinking is as follows.
My first pregnancy ended at five months due to placental failure. I did not deliver the placenta after labour so had to go to theatre for an erpc and unfortunately the placenta was lost in theatre and so was not available for the post mortem. This means that they can not be sure what the cause of the placental failure was, or the risk of it happening in a subsequent pregnancy, but it is obviously something they are concerned about.
One of the two blood tests, PAPP-a, can give a low result if the placenta is not working well, and a low result might results in extra scans that could pick up a problem, and possibly lead to an early delivery if necessary.
This made a lot of sense to me because it is a test that is actually looking to do something preventative if that makes sense, and I came away from the phone call feeling this was a good solution.
However, I have since done some reading and have found that a low PAPP-a result is also a key marker for downs, and if I get a low result, (and a high HCG on the other blood test) it will suggest a high risk of downs.
I didn't realise this from the phone call and am now swinging towards refusing the blood tests as well as the fold measurement, but am concerned this might mean less growth scans.
Sorry this is such an essay, it is something I'm very concerned about. Any advice would be very welcome.
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Antenatal tests
Anyone had the blood tests and asked NOT to be told downs risk?
16 replies
Armadale · 27/01/2014 11:48
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