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AIBU?

AIBU to worry about EEG for DS?

5 replies

M0nkington · 09/11/2016 11:21

The school have reported that DS has had at least three periods of 'seeming like he isn't there' in class and he recently had a bad fall in playground needing stitches. The paed has referred to a neurologist for an EEG tomorrow. AIBU to think they think it is epilepsy? No family history but he had a bad Kiellands forceps birth. DS is 5 and in reception. (I know the world is in turmoil but I am worried) Confused

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ginpig · 09/11/2016 11:49

Please try not to worry- EEGs are relatively straightforward and painless.

It does sound like it is being done as part of investigations for a potential epilepsy diagnosis, but please dont worry about this either. The periods of seeming like he is not there could be indicative of absence seizures, which are more straightforward to pick up on EEG than other types of seizure, in which case the fall he had might be entirely unrelated.

If it is epilepsy then it is important he gets appropriate treatment sooner rather thwn later and if it is childhood absence epilepsy, he would probably 'grow out of it'. The fact that this had already been noyiced and acted upon by the school is a really good thing.

Try not to worry, but if you want more info / support then take a look at the Epilepsy Action website which has some really good information and advice

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mintthins · 09/11/2016 11:55

An EEG is nothing to worry about. DD and one at the same age, and though having the wires attached felt a bit odd to her, it was in no way uncomfortable or worrying for her. She was just annoyed that she wasn't able to see the wiggly lines on the monitor.

The great thing about it is that the information is real, and visible, and as far as I know easily interpreted. For us, this was vital, and meant we got a prompt diagnosis confirmation (after pushing for an EEG for months because our GP said she couldn't possibly have epilepsy).

Try not to worry, and make it a fun day out.

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M0nkington · 09/11/2016 12:06

Thanks for the reassurance, I've thought things have been 'off' with him for a while but you just don't consider epilepsy because you just think of the convulsing seizures that some people have and think that is what it's all about.

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mintthins · 09/11/2016 12:25

DD had a different type too. Try not to fret. Flowers

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sueelleker · 09/11/2016 13:23

Main problem is getting the electrode gel out of the hair afterwards!

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