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Allergies and intolerances

Dermasalve stockists????

8 replies

JenniferYellowHat · 09/05/2008 11:34

After a recommendation on MN, I ordered Dermasalve Infant and Baby Cream online and it's brilliant!!! DD's skin has improved dramatically - still a bit itchy but all the redness and dryness has disappeared. No other cream has done this (most make her skin worse) so it's a real breakthrough.

I went to the GP who agreed to prescribe it but Lloyds Pharmacy are unable to order it in - their suppliers tell them it's unavailable or discontinued.

Has anyone else managed to get this cream through a chemists and if so which one? I will continue buying it online if I have to but it's quite expensive so I'm really hoping I can get it through a pharmacy on prescription. Thanks!!

OP posts:
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JenniferYellowHat · 09/05/2008 19:22

bump

any ideas anyone?

OP posts:
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ACL · 12/06/2008 14:09

Hello

Lloyds Pharmacy have ordered the Baby and Infant Dermasalve for me direct from the manufacturers as they are unable to obtain it from their catalogue/usual suppliers. Perhaps your Lloyds Pharmacy could do the same? Great to know you can get it on prescription. I will have a go with it first to see how it works for my daughter.

I have also Pure Potions but I am not so sure it is working for her.

I find Epaderm helps flares but it is full of paraffin and even sodium l sulphate but it works! Also have Diprobase. I am however trying to find alternative creams without all the nasties!

The Eczema Clothing Company - Cotton Comfort - do super jimjams and tops with mittens for car journeys. Look also at the Allergy and Gluten Free Show (this weekend) at the exhibitors as there is a company which will show tops with mittens - looks good to me and they are only half tops - you need to see the website - sorry I cannot remember the name.

My daughter has been tested for allergies - skin prick tests - and is positive for peanuts (argh), pollen (grasses - so look out for reactions outdoors), dust and cats. Consider looking for any food allergies. She has had a cows milk allergy in the past. Foodsmatter.com have a fab magasine re food allergies.

Oops gone off topic!

Good luck with Lloyds.

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beezneez · 12/06/2008 16:18

Hi ACL. I've name changed since my first post last month, but thanks for the reply - Lloyds have since managed to order it for me too which is a relief.

You're spot on about the allergies unfortunately - DD had skin prick tests 2 days ago and has tested positive for milk, egg and peanut allergies so I know how you feel. She wasn't tested for pollen, dust or cats (or many other common allergens such as fish, shellfish, etc) so there could be more to add to the list.

DD is still only 8.5 months. It's all a bit of a shock to be honest and a lot to take in. It sounds as if a lot of children grow out of milk and egg allergies so fingers crossed.... how old was your daughter when she grew out of cows milk allergy? Thanks...

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ACL · 12/06/2008 17:19

Hello

Great to hear from you and I like your new name!

I think my daughter's milk allergy went when she was approx 2 and a half yrs old.

At six months old, she caught bronchiolitis. Her eczema was starting to go bananas just before. Then it went to a weeping stage. Once the dermatologist said that she may have a milk allergy, she tried a hydrolysed milk formula however she refused to drink it! It tasted of bleach to me! She then went onto soya formula. I think now that they say that infants under one year should avoid soya - not sure. Soya can also be an allergy! When she was just over a year, we moved onto goats' milk. This improved her eczema - so I am suspicious that she was a bit allergic to soya. Goats milk has less big proteins I think so is easily digested - I think in eczema, you can have leaky guts so absorbing the larger cow's milk, can make eczema happen - I think you have to find foods with small particles. Not 100% sure of this! I then moved onto organic cows semi-skimmed milk at two ish and everything seems OK - touch wood!

I found the info at www.foodsmatter.com extremely useful plus help from a dietician from the children's hospital. The dietician worked out how to get enough calcium eg soya yoghurts, certain green veg. I also learnt how to look out for cows milk items in food eg casein. I did try some cheese substitutes and they were OK eg Cheesley (sp?). Do search goats milk at the Foods Matter website and you should see what I mean. Some dermatologists are sceptical tho about how useful goats milk is. There are goats milk formulae but we never used these. Using goats milk was helpful in cooking and for her drinks, however it was too sour for our cups of tea etc and she was the only one who had it in hte breakfast meals. I think some doctors think the goats milk has the same type of proteins as cows milk but others disagree. Yes, cows milk allergy DOES go for most in time - I think my daughter was average when she did not react to milk.

There are some good books on the web re allergies and diets. Re peanuts, I have just found The Peanut Allergy Answer Book by Michael Young - very useful.

I have only just noticed the pollen allergy apart from the skin test eg lots of sneezing, however her skin has always been worse during the spring and summer.

Yes it is a lot to take in as well as look after such a young baby. I was a little disheartened to know that we now have further allergies. I have Epipens for peanuts and also Piriton (the doctor should
work out for you how much is safe for
your daughter's age - you may need to use
a syringe to get the right amount re helping
reduce the amount of histimine and therefore
itching/scratching when it is at its worst
eg overnight. My daughter reacted
to handling peanut butter when making some rice krispies, sesame etc shapes. Watch out for eczema creams - some have peanut oil inside eg we used Boots Zinc and Caster Oil - fab for bottoms but has peanut oil inside. Also I think Oilatum cream has/had it.

Glad to know that the Dermasalve is working fine - do you just use it once a day?

My daughter reacted to Aqueous Cream by the way so we avoid that one.

Working out what to eat is a nightmare but in time, it does get easier. Look at the free from sections in supermarkets, and they give you lists of products which are free from or which do have the allergic item. It is a completely different way of thinking but in time, if feels normal. It also makes you look at labels - you can often meet others and compare allergies when scrutinising the labels at supermarkets! Watch out too as some brands can change their ingredients and include the allergic item at a later date - Truefree Custard Creams did this I think re milk.

I will try to think back and remember what I found useful with the milk allergy.

It is great you know early on what allergies you have - these may change with time.

Cheerio
Alison

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ACL · 12/06/2008 17:24

Oh yes, her eczema was not so bad on a cows milk free diet, and improved more when off soya formula.

We use PURE Organic dairy free spread.

There is a dairy free website somewhere - good website and message board.

Cheerio
Alison

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beezneez · 14/06/2008 12:19

Hi Alison

Thanks so much for all the info. We've also been prescribed epipens and piriton. I gave her some Piriton yesterday when I saw nettle rash on her ankle - I don't even know what she'd reacted to though. I don't think it's anything I gave her to eat so maybe something she's found on the floor...

I've been on a dairy-free diet myself for over a month now (I'm breastfeeding still) as I'd already figured out she was allergic to milk, and it's really improved her skin - it feels less dry and so much softer than before. Luckily she tested negative to soya so I can drink soya milk.

I have been using Dermasalve twice a day up until now but have been told I should use it 4 times a day in future. It's really good - everything else prescribed made her skin really bad (looked like she'd been burned!) so she's obviously allergic/sensitive to some of the ingredients.

I'd really like to know how you manage with the peanut allergy and what effects it has on your day-to-day life. Has your daughter had any reactions to peanut? Have you ever used the epipen? Do you manage to eat out, take her to friends' houses, birthday parties etc?? Was it OK at nursery / pre-school etc? At the moment I'm overreacting slightly and feel we'll never be able to do anything!!

thanks again - I really appreciate you taking the time to type such a long response!!

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ACL · 16/06/2008 12:46

Hello!

Thanks for your ideas re Dermasalve. So far, so good with this! Yes other creams have made her red. I have tried some natural creams - more salves really - but they do not seem to work for her despite all the claims - maybe it is the essential oils?

Anyhow you asked about peanut allergy. Back in Feb, my daughter was handling peanut butter and sesame seeds in a mixture of rice krispies etc (from Annabel Karmel - teddy bear recipe) and she suddenly developed hives all over, swollen eyelids and lips, went red, hot, and felt "princessy" (ie spinning around - faint?). As far as I know she had not eaten any of the mixture however the allergy doctor thinks it may have been absorpbed by her skin in her hands, and by rubbing her face (esp if it gets itchy with the reaction). Before then, she was OK eating peanut butter, and one small piece of Snickers, and some peanuts as a topping in Kedgeree (altho she did pick them out and avoid eating them).

I have only just seen the allergy doctor so I am now trying to think about how to cope with it. All OK at home as you can control what you buy. My older son is good at checking the ingredients when helping shop! I have decided to risk her eating things that say "may contain nuts" esp if they have been in a nut free environment (it is amazing what can be written on packets!). Others here may strongly disagree with idea. I have never used the Epipen but have two (just in case one does not work). We are yet to do birthday parties - I think I may take a plate of food but tell the parent to make sure she does not handle other food - tricky. Some parents stay at parties - I may do this if I doubt whether the parent may be vigilant! At nursery, all is OK however it is not nut free - she thinks she sits next to someone who has peanut butter and I tell her not to do this alth the playschool says that she is wrong in thinking her friend has peanut butter. School (in Sept) is nut free - and you have trust those who pack the pack lunches!

I have to watch out for peanut oil in creams - Boots ZInc Castor Oil has it and she had that for her bottom for quite a while.

I think people are more allergy aware now. My daughter (nearly 4) is very aware of what she eats - just this week she asked me if she could eat a friend's jaffa cake - so little ones can start to be allergy aware! I think also their mouths can feel itchy if they eat something allergenic so they stop eating it.

Yes I feel sad that now when we go out for cake :-) that I will have to ask about peanut so may take our own but that spoils some of the fun, doesnt it but maybe this will play safe. As you can see, I am getting used to all of this too. What do you think?

Must dash and get her from playschool
I wonder how lunch has gone!
Cheerio
Alison

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ACL · 16/06/2008 12:48

oops I meant to say "may contain TRACES of nuts"

Sorry
Alison

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