DS got another allergy - cant seem to get help

[vnmum]

my Ds is 7.5 months and has already got a cows milk protein allergy. the symptoms for this are hives and projectile vomit. he has since developed an allergy to egg with much worse symptom IMO. these are: hives, vomit, stomach pains, diarrhea and going all floppy and sleepy.

My paeds nurse and hv dont seem to think that this is a serious allergy as ds can tolerate pasta. im just concerned if he accidentally got exposed to this again and had a worse reaction or reacts badly to another allergen. all the medical staff seem to reccomend is piriton as they say ds would need to collapse before i would get an epipen.

My paeds appt (not that i have much faith in him, but thats been on another thread)has been brought forward to next month and they say they will do blood tests but that nothing will show up unless i feed ds the allergen for 2 weeks before. im not going to put him through this.

Has anyone any advice as to how i should handle this situation and what i can do during the rest of the weaning process?

[vnmum]

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[vnmum]

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[williamsmummy]

hello,
I would not recomend feeding your child food that you know already is causing a problem.
I know that many HV and Peads know little about IGE allergy. ( in fact you more than likely know more than them)
I sugest that you phone the anaphylaxis campaign or allergy UK for advice.
I suspect that they will say that you should go back to your GP and ask to see a pead consultant immuneologist . This may be difficult, ask to go to the nearest allergy clinic.
Getting the medical help you may need may depend on where you live. However if you are prepared to travel, bear in mind the first appointment may take some time. ( as waiting lists are long)

If you are removing dairy products and egg, get reffered to a dietian. But dont expect them to know much about allergy either. ( if they do take it as a bonus) However they will advise you on how to balance a diet with those foods removed.

Buy this book and read it thoughly,
the complete guide to food intolerance and food allergy, by prof Brostoff, published by Gamlin books.

I know this all sounds depressing, but take heart, your child still has a very good chance of outgrowing both allergies by the time they are 5.
As for epi-pens, UK docs are not that keen to prescribe them to infants under 25 lbs. This is because of a chance of brain hemorrage. However this is v rare, as also is full blown anaphylaxis. In the vast majority of cases,(in babies and young children) quick mouthful of prition seems to stop a reaction.
But its worth considering moving on to a epi pen once you have examined life from all angles with the responsiblites and restrictions that epi's bring.
Peace of mind is a good reason to have epi pens while you are waiting for proper medical support.

This is all my opinon, and may differ from yours , but the anaphylaxis campaign are the people you should be talking to. They helped us.

our son has recently grown out of his egg allergies and he was very allergic to egg.
He has also grown out of all his tree nut allergies. We still have hope that he will grow out of his kiwi fruit allergy.
However his peanut, all bean allergies are life long.
he is also highly allergic to yeast extract, and dog.

and has others to tree pollen, hay fever, dustmite, cat.

he is 10yrs old.
hope this helps

[foxinsocks]

I've never heard that about feeding the allergens before the appointment - my dd's allergies were diagnosed without me giving her any of the food she was allergic to (other than the time she reacted)

at your ds's age, we had a virtually identical situation (except dd was soya allergic aswell) - we just excluded the problem foods from her diet until she was 2 and then went back and saw the consultant and tried milk (in the ward) as a food challenge. At your ds's age, you can completely control what he eats so just exclude egg and dairy for the time being and wait till your paed appointment and I agree with william's mum, ask for a dietician appointment. They can be very helpful (your consultant will prob arrange this).

We never had an epipen but that's because her allergic reactions never affected her breathing badly (just hives, some minor swelling, vomiting etc.) but your consultant will be able to judge your case and see what he/she thinks. Definitely get the piriton though.

[alison222]

We have an epi-pen but didn't get it until DS was about 3.5 but his allergies weren't diagnosed until about 16mths.
He has never collapsed though. They prescribed it shortly after he started school nursery - School were very concerned about dealing with his allergies.
So far I have never had to use one but I have come close.

As everyone else says - you can control his diet so exclude all of the offending items.
Egg is in a lot of things but dairy is definatley worse.

Hope your paed appointment goes well

Williamsmum - when did he outgrow the egg allergy? DS is now 5.8 and is still very allergic. I'm still hoping it might eventually disappear

[williamsmummy]

william grew out of the cooked egg allergy at 7yrs, and this year passed his raw egg challenge at 10yrs.

[alison222]

Anniemac - I did think that too, but assumed that vnmum meant the egg pasta not the dried stuff

[vnmum]

i have fed dried pasta and i too thought it had no egg in it but the paeds nurse said if ds can tolerate pasta then it is not a severe allergy.

does anyone know if the proteins in milk are changed when cooked or skimmed as ds can tolerate tinned foods that contain skimmed milk but cant tolerate others? also should i avoid all milk including things he can tolerate until hes outgrown the allergy?

i have a dietician appt on 23 aug so will hopefully find some more things out then.

Does anyone know wether the bllod tests for allergies test for a range of allergens even if ds hasnt been exposed to them or are they for individual allergens?

sorry for all the questions, i just know i'll get more help from you lot than the docs

[alison222]

If you read the ingredients on the packet you will see if it has egg in. Most don't but there again some of the "posher" ones do so I guess it depends on what you bought.
Can't help with the milk thing though. TBH I would avoid everything for the moment but that is just me.