Hi betty They have only had afew trials of it and I dont think many people have been fitted here in the uk but its worth checking with the consultant. The man I saw was not my normal consultant, he was a specialist in Birmingham but he may know of someone to put me in touch with. I have looked on the net at them and do want to speak to someone who has had them but as they are so new it is difficult. Am slighty concerned as the battery life is approx 5 yrs so that means they would have to open my head up to change it that freaks me out! I also want to make sure that they will be a good improvement to hearing aids otherwise maybe it is not worth it, I know cosmetically they will be better as they will be hidden!

Hi jen,
thats great news that something can be done, I've never heard of these.
The website looks quite informative, can you get in touch with anyone who has one of these?
I found it a great help talking to people who had stapedectomys in order to make my mind up, and Im so glad I went ahead.
Maybe your consultant could help you find someone willing to chat?

How do you feel about it though?

Hi Betty
I am ok, I had an appt in birmingham and saw a specialist who thinks it is most likely genetic and it ownt get any better, it may get worse or 'bum out' as he said! He has mentioned implants, middle ear implants, which are not the same as cochlear as my hearing is not bad enough for cochlear. It is something I have to think about really. It involes the whole implant being inside my head so not sure how I go about changing the battery every 5 yrs!!!
here is the website.

Glad you are feeling better though and that things are going well. I bet you will look forward to having the other ear done now knowing it really has helped?

Hi jen, how are you?
Ear feeling fine now, thanks. Teleporting stopped unless I'm very tired.
Should be able to have the other one done in a year or so (fingers crossed).
Any progress on your diagnosis yet?

Ah so glad it has helped you, I bet you are really pleased. So its feeling comfortable too now then? When will you be able to get the other ear done?

Hiya Pod, good to hear from you.

I asked about the conduction test, as the 'rushy' headphones were on my right ear, with the with the piece that transmits sound behind my left.
I thought it seemed odd at the time when the audiologist said that what the end of the test.
I asked if she was going to test my right ear, and she said "Not today".
Then I had to wait an hour to see the consultant and forgot to bloody ask! [brain like a fishnet stocking emoticon].

But, yes it has changed things, although it seems 'normal' now, like it's always been this way IYSWIM.
I can definitely hear better tho, a friend shouted my name, way down the street the other day - and I heard it first time YAY.

Cant wait to get the other ear done, and hopefully chuck away the remaining aid!!!

I'm so glad you thought it was worthwhile!

My understanding is that a conduction test is about assessing the degree of nerve damage as opposed to middle ear trouble and I would expect that if you were having your right ear tested then the headpiece that makes the sound should be behind your right ear, and I think the headphones would be ON your ears and the rushing noise played so that you don't hear the noise via your middle ear transmission. Am not 100% sure I have got that right though!

Has it all changed your life much? Are you still wanting to get the other ear fixed? And how close to normal hearing range have you gotten with your "new" ear?!!

Love Pod x

Hi, things are going really well thanks.
The consultant told me I still have some nerve damage aswell, so hearing will never be 'perfect', but I'm very happy with it.

You know when you have a conduction test?
When they put the headphones on one ear with the rushing sound, then place the other small headpiece behind the other ear?

If I was having my right ear tested, what position would the headphones be in?

May sound like an odd Q, but something has been niggling at me and I cant work out if it's me being daft .

Hi Jenwa, don't look up stuff, the consultants are better than the web, you will just scare yourself silly needlessly! I'm glad they are checking you out properly and hope you are feeling better. Hearing problems are not fun.

Betty how are things now, are you pleased with your results?

I know I am terrible for looking stuff up . I hope things do get sorted though as I hate being like this, I can understand of it wont get better but just dont want it any worse

Glad you feeling well though.