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The doctor says lots of people are getting/being 'Post viral' this winter; are they?

(129 Posts)
KatyMac Sat 19-Jan-13 21:04:53

DD hasn't 'picked up' after sinusitis & the dr said lots of people were struggling this way this winter

Are other people finding the same?

rockinhippy Fri 15-Feb-13 12:57:56

aruiane I now now a bit about EDS, so kniw they are similar/same conditions & same here & what keeps going round in my head is what the specialist that diagnosed my DD said - JHMS is closely linked to Fibromyalgia - even the NHS blurb describes the over sensitivity to pain etc & I know too well that with FM if I over do things & push through being ill to get things done etc, I get very ill indeed & it IS very much like flu, known as fibro flu - but I don't think to ask as the time & asking our GP & school nurse has been a waste of time - I do have a referral myself, so I am hopin to get an answer then, because I see so much of the same in DD that I deal with myself, though they now think my M.E. diagnosis is more likely JHMS too, hence the Rheumy referral - if I get an answer I will post it

Katy a lot if that sounds so familiar to me - it took 5 years for me to finally get a Rheumy referral for my DD, though my initial worry was that she had FM too - I was patted on the head & told not to transfer my own health issues onto herangry it took my getting really stroppy & coping notes from GP appointments & submitting it back in writing to finally be taken seriously & I was right, though I only learnt about JHMS due to a friend who has it on Facebook sending me a link that joined the dots of all my DDs symptoms into one condition - including her diagnosed IBS - DH & I are both hyper mobile - ie extra flexible, at least I was, so to us DDs bendiness was all just normal, we had no idea it could be a medical condition.

I would recommend you look into it - joint hypermobility syndrome - how you describe your DD mood sounds very familiar too & is also a symptom & I remember you posting about her dance, the flexibility of JHMS/EDS DCs gives them an edge with things like dance, gymnastics & guitar & like I said above, they now think it is my real diagnosis too - not M.E

rockinhippy Fri 15-Feb-13 12:59:49

Sorry should have said - it's a hereditary condition

KatyMac Fri 15-Feb-13 17:00:38

Oh I don't know - it's all a bit much atm

rockinhippy Sat 16-Feb-13 13:57:01

sad sorry Katy - I know how you feel & I absolutely hated that DD actually did have something, even though I knew it, I would loved to have been wrong, but I also realise now that having a diagnosis for her, means that she gets the physio & advice that I never had, so she won't do all the wrong things in life that I did, which ended up making things so much worse - I lived in heels for example - a big no no for JHMS, lots more things that she's learning about now - as well as the bonus of guitar lessons as we also learnt that she might be good at it - turns out it right, she is a natural smile

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