Webguide: special needs

  • ADDIS - attention deficit disorder information and support service
  • Afasic - supports children with speech, language and communication impairments
  • Ambitious about Autism - the national charity for children and young people with autism
  • Amy and friends - support and information for parents with children who have Cockayne Syndrome
  • Angelman Syndrome Support Education and Research Trust - info, helpline, newsletter
  • Association of Child Psychotherapists - the main professional body for psychoanalytic child and adolescent psychotherapists in the UK
  • ASBAH - info and advice about spina bifida and hydrocephalus, including a helpline
  • ANSWER - antenatal screening web resource
  • BIBIC - British Institute for Brain Injured Children offers families practical help
  • Bliss - support and care to families of premature and sick babies across the UK
  • Brainwave - home-based programme for children with brain injuries/genetic conditions
  • British Association of Play Therapists - advice for parents of children with emotional and behavioural difficulties and listings of registered play therapists
  • Calibre Audio Library - provide audio books to those with sight impairment and dyslexia
  • Cerebra - support and information for families of children with brain-related conditions
  • Child Brain Injury Trust - provides information and support for the effects of of 'traumatic' injury on a child's developing brain
  • Child Death Helpline - for anyone affected by the death of a child, from prebirth to adult
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  • Child Growth Foundation - information about conditions causing growth problems
  • Children's Hospices UK - hospice care and services for children and young people
  • Cleft Lip & Palate Association - feeding equipment, volunteer parent contacts and info
  • Climb - information for families of children living with inherited metabolic conditions
  • Contact a Family - info on specific conditions and rare disorders, plus support group lists
  • CP Sport England - organisation which promotes sport and physical recreational opportunities for people with a disability and especially those who have cerebral palsy
  • CReSTed - register of schools which provide support for children with specific learning difficulties
  • Cystic Fibrosis Trust - info, advice, support and funding for anyone affected by CF
  • Daisy Garland Trust - focuses on children (up to 12) with difficult to control epilepsy
  • Daytrippers - helps children with disabilities, life-limiting or terminal illnesses enjoy experiences that might otherwise not be available to them.
  • Department for Work and Pensions - info about benefits such as Disability Living Allowance and Carer's Allowance
  • Disabled Parents Network - for disabled people who are parents or hope to become parents
  • Disability Grants - guide to different grants available to people with disabilities
  • Disability Sport Events - support and promotes opportunities for disabled people with all impairments to take part in sporting events
  • Down's Syndrome Association - information by life stages, support and helpline
  • Down's Heart Group - information about heart conditions associated with Down's syndrome
  • Down's Syndrome Scotland - info and support for people with Down's and their families
  • Down Syndrome Education - educational opportunities for children with Down syndrome
  • Dyspraxia Foundation - books, suggestions, a teen newsletter, and an adult support group
  • Dyslexia-SpLD Trust (The) - a collaboration of voluntary and community organisations funded by the Dept of Education to help children with Dyslexia/ SpLD succeed in school
  • Easyhealth - accessible health information for parents, supporters and carers of people with learning disabilities, and people with milder learning disabilities themselves
  • English Federation of Disability Sport - national charity for developing sport for disabled people in England.
  • Epilepsy Action - info and support for children and adults with epilepsy and their families
  • Family fund - offers grants to families with severely disabled or ill children aged 17 and under to have choices and the opportunity to enjoy ordinary life
  • Mumsnet Talk special needs forums

  • Face2Face Network - befriending service for parents of children with special needs
  • Fledglings - identifies and supplies practical, affordable products to help with everyday life
  • Fragile X Society - support, information and helplines for families of children with Fragile X, plus promotion of research
  • Genetic Interest Group - alliance of charities supporting children and families affected by genetic disorders
  • Heartline - support and help for children with congenital heart conditions and their families
  • HemiHelp - support for children and young people with hemiplegia (hemiparesis)
  • HE Special - for families who home educate children with special educational needs
  • Hop, Skip and Jump - play and support centre in Bristol for children with special needs
  • I CAN - supports speech, language and communication development in children
  • IPSEA - provides free legally based education advice to families with children with special needs
  • Kangaroos - runs activities in Mid Sussex for children and young adults with learning disabilities
  • Kidz Events - free exhibitions to showcase products and services to enhance independent living
  • Klinefelter's Syndrome Association UK - info and support around Klinefelter's syndrome
  • Living made easy - practical advice from occupational therapists about equipment for children and young people with disabilities
  • Load2Learn - accessible textbooks and images to support dyslexic, partially sighted or blind learners
  • Makaton - for anyone interested in Makaton sign language
  • Mencap - support and info for families and carers of children with a learning disability
  • National Association for Gifted Children - info on support for families with children who are gifted, and have a disability or learning difficulties
  • National Autistic Society - info about autism and Asperger syndrome, support and schools
  • National Centre for Young People with Epilepsy - info and resources for young people with epilepsy
  • National Deaf Children's Society - help for deaf children and young people, and their families
  • National Parent Partnership Network - statutory services offering support to parents and carers of children and young people with special educational needs
  • Netbuddy - tips and bright ideas from parents, carers, teachers and therapists with experience of learning disability
  • New Life - information and grant services for funding equipment
  • Office for Disability Issues - A-Z of government departments and disability organisations
  • Ouch! - blogs, news, features, info, podcasts from the BBC
  • Partnership with Parents - advice for parents of children with special educational needs
  • Peach - promotes early behavioural intervention for young children with autism
  • REACH - support and advice for children with hand or arm deficiencies, and their parents
  • Rett UK - information and support for parents of children with Rett syndrome
  • Scope - helpline and factsheets for parents of children with cerebral palsy
  • Sense Toys - educational toys and games for children with special needs
  • Sibs - charity for people who grow up with a disabled sibling or parent
  • Sickle Cell Society - info and counselling for people with sickle cell disorders and their families
  • Signalong - provides resources and training in visual communication for children with communication difficulties
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  • SNAP Childcare - specialist recruitment agency for special needs nannies and care workers
  • SOFT - support for families affected by Patau's syndrome, Edward's syndrome, partial Trisomy, mosaicism and related disorders
  • SOS!SEN - free confidential telephone helpline for people looking for information, advice and support on special educational needs
  • Special Educational Needs Advice Centre - (SENAC) confidential advice line for parents looking for information on statutory special educational needs provision in Northern Ireland
  • Special Kids in the UK - contact, info and support for families of children and young people with special needs throughout the UK
  • Steps - support for parents of children affected by lower limb conditions
  • Talk about Autism - a safe and friendly online community where you can share experiences and get support
  • Totally Yours - a directory of useful resources for parents raising children with special needs
  • Turner Syndrome Support Society - information and support for girls and women with Turner Syndrome
  • Tourettes Action - information and support for people with Tourettes and their families
  • Unique - nformation, networking and support for anyone affected by a rare chromosome disorder, their families and the professionals who work with them
  • Whizz-Kidz - provides mobility equipment, training and advice
  • Young Minds - works to improve young people's mental health; info and helpline for parents