Here some suggested organisations that offer expert advice on SN.

They're chucking some ideas at me and I don't know where to bloody turn.

(15 Posts)
Veritate Sun 06-Jan-13 10:56:14

I think you should certainly look at going to an occupational therapist, as it does look as if she may have both motor control and sensory issues.

ilikemysleep Fri 04-Jan-13 20:29:33

I wouldn't rule out dyspraxia (more properly developmental coordination disorder) on the grounds that she has no fine motor issues. Fine and gross motor difficulties can and do develop separately and it's possible to have few issues in one and a great many in the other. My ds3 is very 'core' dyspraxic. He is very very clumsy, falls over a leaf, always covered in bruises but hardly notices any pain. He was slow to potty train and still aged 5 has frequent dribbles of urine and 'near miss' poo accidents because he doesn't notice the feeling until very very late. He also sensory seeks orally- he dribbled until nearly two years old, was a late talker, stuffs his mouth with food, and sloshes squash around his oral cavity before he swallows ( he is 5 1/2 now). However, so far his fine motor skills, whilst not brilliant, are keeping up with his peers. This is the direct opposite of my ds1 who has dreadful fine motor skills -really, really sever handwriting issues- but is not otherwise clumsy or hyposensitive. I think both are dyspraxic, ds 3 more generally so whereas ds1 has aspergers which is undoubtedly the primary need.

As far as I know an OT or pead would be the people to see if you think it might be dyspraxia :-)
Good luck, let us know what happens.

mymatemax Thu 03-Jan-13 20:18:30

Isla
Go to your GP and ask for a referral to a paediatrician and a paediatric physio, here you cna self refer to the physio but it may vary between areas.

The paed & the physio will both be able to identify any physical or developmental causes.

IslaValargeone Thu 03-Jan-13 20:16:30

Thanks for your advice both.
Much appreciated.

IslaValargeone Thu 03-Jan-13 20:12:23

She was induced and then ventouse followed by retained placenta for me, all rather crap.
Not into alternative stuff either, but dh has been to this chap and he has helped him no end so it seemed a good first port of call
She has had a massive growth spurt this year.
I'll go to my GP, I'm just a bit worried about looking like I need her pigeon holed with a 'syndrome'

MrsDeVere Thu 03-Jan-13 20:08:03

osteopathy blush

I think the 18 week rule is still in place. There is always a long wait for physio but an intial assessment by a consultant shouldn't be too long.

MrsDeVere Thu 03-Jan-13 20:06:15

Retained reflexes are usually connected with early extreme trauma are they not?
Did your DD have a very difficult birth?

I am not usually one for 'alternative' stuff but I am quite keen on a bit of Osteotherapy.

But I really would get her looked at by a doctor. Children are growing rapidly at that age. There is a hip condition that can affect girls of your DD's age (I cant remember what it is but I know I was checked for it).

IslaValargeone Thu 03-Jan-13 20:05:34

I'll go to my GP and see what he says then.
What would be a reasonable wait for a referral do you think?

IslaValargeone Thu 03-Jan-13 20:04:09

The pain is subsiding, we have been are doing various exercises, she has incredibly tight hamstrings and a weak 'core'
Not helped by her reluctance to do sporty things as she is such a spanner!

IslaValargeone Thu 03-Jan-13 20:02:18

MrsDeVere We presumed there would be a ridiculously long wait for a referral via NHS so had considered just doing it ourselves, via OT or physio?
Yes you are probably right about an Osteo not being qualified to make that kind of diagnosis, I was initially just expecting a quick "Don't worry it's not life threatening" type of thing.
Her spine is straight so it's nothing like scoliosis or anything like that.
It's just after the retained reflexes suggestion, I looked it up and some things are very 'her' so I thought I should follow them up. Especially as there has been an escalation of the emotional issues of late.

MrsDeVere Thu 03-Jan-13 20:01:46

I have used osteopaths for DS2.
However...with the sort of issues described in the OP I would be seeking advice from a paediatrician via a ref from my GP.

If a child suddenly changes the way they walk and complains of pain, it needs looking into ASAP to rule out anything very serious.

mariammama Thu 03-Jan-13 19:48:44

Sounds like she could do with a paediatric physio with all those musculoskeletal things though. Is her spine straight?

mariammama Thu 03-Jan-13 19:46:54

Depending what you believe about osteopathy, they're either totally unqualified to diagnose, or possibly the best possible person to have involved wink.

MrsDeVere Thu 03-Jan-13 19:44:39

osteopath is not qualified to make those suggestions.
Take your DD to the GP and explain your concerns about her gait etc.
You could ask for a ref to CAMHS for her social/emotional issues but there tends to be a long wait.

IslaValargeone Thu 03-Jan-13 19:39:32

This could be long confused Took dc 10 to an osteopath some weeks ago as I noticed she was holding herself in a somewhat twisted fashion, one hip higher than the other, she had also been complaining of leg pain.
Osteo gave her some manipulation, acupuncture and massage and she has had several sessions of this over the past few weeks.
Retained reflexes has been mentioned so dh and I looked at INPP wbsite with a view to getting an appointment after Christmas.
Today osteo has mentioned dyspraxia, something my dad mentioned a while ago as dc is really quite awful when it comes to sport and general co ordination.
I ruled out dyspraxia though as she doesn't have problems with writing or fine motor skills. Osteo has said she definitely has 'issues'
If I list a few of them can you tell me what you think and where you think I should head next?
Couldn't coordinate herself on a swing until this summer.
Has poor posture
Not great with bats and balls
Quite highly strung, prone to anxiety/temper flare ups if there are changes in circumstances.
Issues with labels on clothes.
Terrible fear of vomitting and being too hot- which leads to passing out if she thinks this will occur.
Gets completely overwhelmed in school playground and similar social situations.
There are probably more but I can't think off the top of my head.
She has no learning disabilities though, great reader, writer, just passed 11+
Thanks for reading, if you can give me any advice I would be most grateful.

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