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Here are some suggested organisations that offer expert advice on special needs.

Not sure what to do next...long

19 replies

3rdnparty · 15/03/2011 20:38

ds (nearly 6 ) yr1 has been dx with Dyspraxia after OT assessment instigated by his school. The OT also thinks there may be audio processing issues as well ..but I am waiting for more OT treatment sessions when there is one available where they are going to investigate that more.

I am worried about how they are managing him in class though - his reading is fine 8.3 on scale and hes articulate and behaves well generally - but has minimal handwriting and his teacher says he isn't doing enough work to be properly assessed in literacy/numeracy and needs 1 to 1 to get stuff done or he just drifts off and doesn't do anything .. although she says has ability -

since hes been for ot assessment got IEP hes been put in the group of kids with v poor or no reading/numeracy/literacy when previously was in mid/high ability groups....

just feel he's being labelled......... am new to this and hes my only so v confused with myself ....do I say something or what to do

OP posts:
proudmum74 · 16/03/2011 09:13

Hi - my DD is still pre-school age, so I'm afraid I can't really help, but I'm bumping for you in case anyone else can

Minx179 · 16/03/2011 09:52

I would be concerned that he has gone from mid/high ability groups to a low ability group. Have the school given you a reason for this? Easier to give support to? More targeted support? Was he moved prior to, or after diagnosis?

If he has ability, what support are the school putting in place for writing for him to show that he comprehends the tasks and what is required, even though he can't express himself when writing?

I would push for the OT sessions; did your OT give you a reason why he needed OT? Major/minor motor control issues. Can they give you any suggestions for exercises for you to do at home prior to any therapy starting?

To be blunt, you do need to start asking questions and pushing for help, sooner rather than later.

Read around the issues, which will help increase your understanding of the difficulties your son can face and give you ideas/strategies to help support him at home, which you can then share with the school if they will listen.

Look at the

Dyspraxia Foundation www.dyspraxiafoundation.org.uk/

Auditory Processing Disorder
www.apduk.org/

3rdnparty · 16/03/2011 10:04

thanks for bumping PM

Thanks Minx - thats how I feel but not sure how to put it into words and worried bit paranoid ..

will check those sites - OT says has major and minor control issues - with shoulder and hand strength/co-ordination...but no specific exercises to do..except take him swimming/monkey bars at the park - have to wait for an OT to have space in their workload - no idea how long that will take - may have to investigate private no idea how much that costs though...

school have now told me they are giving him 2 hand strengthening sessions with a TA a week - just in passing though....communication is not one of their strong points as an organisation so will arrange a visit for a proper chat...

OP posts:
Minx179 · 16/03/2011 11:14

Two sessions with a TA aren't really enough, can you find out what they are doing and do the same exercises with him at home - you only usually need to do 5-10 mins daily usually. Keep a diary as to any changes.

Try to get hold of Madeline Portwood, Developmental Dyspraxia or Amanda Kirby Dyspraxia, both are good, well written books. Madeline Portwood gives some ideas on how to build core strength.

Link to other resources, books www.dyspraxiausa.org/index.php/Resources.html

It may be worth taking him to a BABO www.babo.co.uk/ or INPP www.inpp.org.uk/practitioner to see if there are any underlying visual perceptual difficulties which may be having an impact on his ability to write

Don't be worried about feeling paranoid, we all do at some point or other. Go with your instincts.

moosemama · 16/03/2011 12:04

Hi

If the school are aware that the issue is handwriting/coordination rather than ability, they should be supplying whatever support he needs to reach his potential, rather than moving him to a lower set.

If you feel you need more evidence of his ability being higher than his achievements to date, you can ask for the Ed Psychs to do an assessment. My ds had the WISC IV test done (this doesn't rely on handwriting to assess ability) and it showed that he is very bright but his physical/visual/motor problems and processing delay are holding him back.

As a result, he is still in the top groups for everything at school, but has an Alphasmart (like a very basic laptop or electronic typewriter) to do larger pieces of work on. In order to do be able to do this, we got him to learn to touchtype using the BBC Tap Typing online programe, which is good fun and he really enjoys. He started off doing about half an hour three times a week and now he does ten minutes a night.

He still writes short pieces and numeracy at school and on the advice of the OT we use his spelling homework as 10 minutes handwriting and letter formation practise a day, using either the stablio ergo pencil (which helps children with poor grip to hold it the right way) or his yoro pencil (he's non-dominant but prefers his left hand for writing). The OT also recommended that he shouldn't be forced to learn cursive writing, as print is easier for him to manage.

He does have extra support in a small group in addition to being in the top groups though and a lot of the other children in that group are low achievers for various reasons, but they all need similar basic help and support, which is why they do it as a group rather than individually.

We've also bought him some caring cutlery which means he's actually cutting up his own food for the first time ever.

There'some great advice on here, I would definitely second the BABO assessment (we are doing this with ds1 soon) although its worth either going to an ordinary Optician or asking your GP for a referral to the NHS Paed Eye clinic in the first instance to rule out any other problems.

We were also advised by the OT that pilates and a martial art will help with his core strength (ds's core strength is particularly poor) as will him using a wobble cushion in class and at the table at home. We bought him a balance board last summer and he's getting quite good on it now.

For hand strength, google Theraputty. It comes in different strengths and kids love playing with it. Just squeezing and stretching it will help with hand strength to some degree, but you can also google exercises to do with it. Hama beads are great for fine motor, they come in different sizes and you can get kits that make cars and trucks etc - both my dses (almost 7 and almost 9 years old) love doing hama beads.

The key for us so far has been to find fun things to do so that he doesn't know he's doing exercises and keep the sessions short but regular.

Take some time to let yourself take in the diagnosis and do some reading and research, nothing has to change overnight.

Good luck.

Minx179 · 16/03/2011 12:27

I know it's information overload, but these may be worth looking at to help you determine where he has difficulties. You are not then purely dependent on information from professionals, but you also have an insight into what they are talking about when you do see them.

For info on gross/minor motor control difficulties
learningdisabilities.about.com/od/gi/p/grossmotorskill.htm

TheMaleyDail · 16/03/2011 12:32

Are you able to say where roughly you are in the country? People might be able to give you some links to local groups or support.

auntevil · 16/03/2011 13:56

Most bases covered above by Moose and Minx. 2 sessions of hand strengthening is not enough - daily plus any other targeted sessions to improve core strength as well.
I would also be asking the teacher to find alternative ways of monitoring your sons learning and abilities other than mark making.
I know that in yr3, my DS gets extra projects to google at home to find out about related subjects. He then does a verbal presentation in class - he's been known to give out printed handouts as well! Also to make sure if they are working in groups that your DS is asked verbally to speak for the group etc. This can help with confidence issues and dispel any thoughts in the class that your DS is not bright!
I've often found that DCs who struggle to mark make develop better skills at learning in other ways. My DS has a near photographic memory for facts (less so for remembering how to get dressed!). Get the teacher to play to his strengths.

moosemama · 16/03/2011 14:04

Oh yes, auntevil good point.

My ds is allowed to do his homework on the pc/mac. Before he could type properly I was allowed to type the larger pieces for him while he dictated, but he enjoyed researching on the internet, finding pictures to use and having a go at setting out the page. In fact he created some lovely posters last year.

Auntevil, its funny that, my ds is just the same - walking encyclopedia - but still can't remember what order to put his clothes on. Confused

auntevil · 16/03/2011 14:12

I keep meaning to ask the teacher to do a topic on getting dressed - but i'm sure he'll google something different to what i tell him! I bet your DS can out Satnav the Satnav as well!
I have managed so far to keep my DS very positive about school and education - he wants to be a Dr Hmm . He knows he is inept at drawing/writing etc - but has learnt to play to his strengths.
I find it harder to keep him positive about the differences between him and his younger brother. They are both very alpha male - both need to be winners - at everything. I find that conflict harder than school tbh. He can be out run, jumped, etc etc by someone smaller and younger, he finds it hard to take.

3rdnparty · 16/03/2011 18:47

oh wow this is amazing - thank you all so much am going to print out and have a good read/research before seeing the school next week... I am sure I will feel better once I know more

just some points OT thought martial arts maybe too much for him now - has suggested gym and trampolining for a start..and also going on monkey bars - but he won't even try those...Sad

have seen an optician who I thought was good will arrange another visit and discuss a referral - and read through the BABO/INPP stuff looks interesting

We are in West London... and I am worried that gaps are starting to appear between him and his friends as the physical running/jumping stuff becomes more apparent...one of his friends already mothers him a bit and another does his colouring in for him ...

his main loves currently are flags/maps/globe/what language they speak(?) ... where things are in the world, how long it takes to get there and what animals eat Grin

OP posts:
moosemama · 16/03/2011 19:28

He sounds lovely. Smile

I see what your OT means about martial arts. My ds is a bit older and has already tried a couple of lessons at school and enjoyed it, so the OT felt it would be a good way to work on his balance.

Trampolining is another really good thing to do - and of course the bonus is that most children love it and don't really think of it as exercise. Worth getting some lessons at first though if you can, so he can learn the right way of jumping and landing.

My ds won't even try the monkey bars either.

Sounds like you are well and truly on the case.

Good luck with your meeting with the school next week.

Minx179 · 17/03/2011 16:14

3rd - be careful with 'an optician'.

High street opticians aren't trained to look for visual tracking difficulties or problems with perception. The majority are usually only checking for 20/20 vision and will not pick up additional visual difficulties; which makes you as a parent believe that LD's cannot be due to visual difficulties, but the eyes are used for so much more than 20/20 vision.

(massively interesting subject, some really interesting American research out there where they have taken Behavioural Optometry into schools/prisons to study the impact)

IndigoBell · 17/03/2011 16:22

Probably the reason he won't try monkey bars is because he is not nearly strong enough for them.

To strengthen the upper body one of the first exercises is wall press-ups.

When he can master them, then move on to wheel barrow rides, or knee press-ups....

If he can't do wheel barrow rides, then he won't be able to do monkey bars....

dolfrog · 17/03/2011 17:13

3rdnparty

Auditory Processing Disorder (APD) is about not being able to process what you hear, or a listening disability.
APD is a genetic issue, although some children can acquire APD as a ruselt of having Otitis Media with Effusion(Glue Ear). There is no cure for APD

APD is a diagnosed by an Audiologist, and it is recommended to have a multi - discipline (multi professional) assessment so that you get an overall picture of the problems which APD may cause, and your sons ability to develop coping strategies to work around any APD issues he may have. Great Ormond Street Hospital currently offers this option. Unfortunately APD and Dyspraxia are not the best co -morbid conditions to have, as Dyspraxia can increase the APD processing delay.

thos who have APD have problems processing all sound based information, which includes speech, and as a result have problems following conversations, and verbal instuctions. children who have APD need a great deal continual re-assurance that they have processed verbal information correctly and that what they have mananged to understand is correct. (better with 1 to 1)
Those who have APD can have problems with large groups of people, for some more than 3 people is too large a group.

moosemama · 17/03/2011 17:19

Minx makes a good point, my ds1 has better than 20/20 vision, but extremely poor visual processing. We know from testing the Ed Psych did with him that he has poor tracking and visual processing delay. He's visual stress problems that have come to light recently as well. None of those would be picked up by a normal optician.

The optician we took him to for his standard eye test, did however, notice that he has extremely poor convergence and binocular vision and it was her that recommended further testing by a behavioural optometrist. Not all opticians would make that recommendation though, as it isn't widely accepted with 'old school' opticians.

3rdnparty · 18/03/2011 14:43

Thanks for the info about opticians - called the one we've been too and she said he had fine binocular and spacial but was not very clued up about dyspraxia ....

dolfrog the info about APD is interesting but a bit depressing as having had a brief look I can see some of the signs in DS -(did you hear me has been a frequent refrain since he was small) He did have a cleft lip though not palate which is often conected to glue ear - although he seems to be more hyper sensitive- but does mean he has contact with a team at GOSH already but we're not due to see them for a couple of years! -they tested his hearing at birth but not since-

I am going to contact them again regarding an eye referral and the audiologist as there is one as part of the cleft team so thanks for the pointers...

I have ordered some theraputty and the Madeline Portwood book -DH especially needs reference material to work through in logical way...

Indigo - thanks for that will try wall presses - also have got him on good fish oils as you suggested on another thread..

Seriously thank you all for this info/support its really helping me...

OP posts:
moosemama · 18/03/2011 19:58

It sounds like you are really getting on top of it now 3rd.

I read the other day about a game where you hide small things in the theraputty, tell them how many things there are and then they have to find it by pulling it apart and manipulating it. You can use, coins, beads, small toys etc.

Then they get to hide things for you to find and again this means they have to manipulate the theraputty to hide the objects.

I'm going to give this a go with ds1 - he's always up for a challenge! Grin

3rdnparty · 04/04/2011 11:09

just to say thanks for the info - we are loving the theraputty and also the Madeline Portwood book is really clear...

have spoken to BABO optician and they have advised to wait 6mths... OT waitiing list for further sessions 3-4months so investigating private options in the meantime

got meeting with the school after the holidays though as they have the report from the OT etc but don't seem to be adjusting how they work with him... think I may give them the Madeline Portwood book to read Sad think they think I'm neurotic but don't care

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