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SN children

Here are some suggested organisations that offer expert advice on special needs.

Take your case history to your M.P.

9 replies

Broomy · 04/02/2011 12:53

When local authorities fail to deliver govt funding for social care where it was intended, suffering occurs such as that which Riven Vincent's case outlined.

She won't be alone. It might feel that you are "peeing in the ocean" (put politely!) to see your MP. I am going to see mine today and I'm wondering what the point is. But hey. I'm posting the bones of my covering letter re my appointment. If it encourages any of you to do the same then that would be great.

If we all did it, who knows who might start to listen. People change things. But we need to work together, it's more powerful than in isolation.

Good luck to you all. X

The Rt Hon. MP,
The House of Commons,
Westminster SW1A 0AA February 4th, 2011
Dear

Re: Government funding for Social Care, additional £2bn vs Local Authority ?Freedom?

Thank you for taking the time to see me today. I am leaving evidence with you regarding the case history of my daughter, which demonstrates the distress families of disabled members can suffer when local authorities either

  • make ?mistakes?
  • have their staffing levels reduced so meaningful support for families is eroded
  • reduce families? support as a result of public spending cuts

The Daily Telegraph echoes the feeling of such families when it cites that local councils are to blame for countrywide distress suffered by such families, of which Riven Vincent and I are but two examples.

I am not asking you to intervene with Council on my behalf in my daughter's ongoing situation, unless further problems arise with them in future that prove insurmountable.

However I will be most grateful if you can make a strong representation among your fellow MPs at Government level, for the need to insist that the social care funding you are making available to local authorities for such disabled families, is used for that purpose.

It is an abomination in 21st Century Britain that money has to be ?ringfenced? to be applied to it?s destination. No one wins when local authorities decide to redirect those funds to other areas, and they shouldn?t be allowed to. It isn?t far short of stealing from the vulnerable.

I will always deal with our situation myself to the best of my ability, but my heart quails for other families who don?t always have the resilience for what, unfortunately, is ?the fight?. It shouldn?t be a fight. Living is a fight. When Governments help such families, that help must reach them.

In addition to the above, eventual Government abolition of Incapacity Benefit and Disability Living Allowance is making the plight of the genuinely disabled children, who have become adults, even worse. It is set to erode the foundation upon which those in supported living have been able to leave home, unless successfully re-assessed. Atos has not made the appropriate distinction between disability and the workshy culture. 40% of appeals generated by it?s inadequate processes have been upheld and the DWP Harrington Review insists its assessments reflect peoples? situations accurately. It is shameful that there was a need for the Harrington Review in the first place, and a further waste of public funds.

Please, use my case history to encourage those in a position to help, to do so. To sit down and take a realistic overview of families whose disabled children become adults, and who are currently suffering with public spending cuts and abolished support routes further done the line, to the point where they are battered from all sides.

No other sector of society is bearing these disproportionate burdens to redress the banking deficit. There was plenty of noise re the abolition of child benefits above a certain level of income. How much greater is the suffering of those with actual, real disabilities?

Yours sincerely,

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WetAugust · 04/02/2011 17:52

We've been round this one several times.

It's the Councillors that should be accountable if they use Govt money provided for social support on other things.

wasuup3000 · 04/02/2011 18:11

Our local council has a parentcarer forum which has meetings so that they are listened too - apparently? Have just been asked to join so will see what goes on it anyway.

WetAugust · 04/02/2011 18:41

That'll be interesting Grin

Broomy · 04/02/2011 19:14

I did go and see my MP. I told him I thought it was a waste of time but what the heck. He said it wasn't. He took dd's case history, said he would speak to other MPs and is personally passionate about councillors not redirecting intended social funding.

He said that David Cameron understood such families as a result of having had his son. He was shocked when I replied that the people I know, at least, felt more betrayed by DC than supported by him, as he more than anyone, ought to understand the need to ensure that social care funding goes to its specified target.

I told him that local councillors are undermining govt social care policy, infuriating families and causing real anger towards MPs, and that MPs should do something to ensure their freedom to redirect funding is stopped. I can only hope it encourages him.

If we all did it, it would make a point, although I know it feels like a waste of time.

We shouldn't he having to ask!

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Peachy · 04/02/2011 19:41

I did

He sent me an email sayiong oh poor you how terrible nobody would ever affect you

they ahve and he is labour FFS- stuffed!

beautifulgirls · 04/02/2011 20:36

My MP was totally useless and sent me a letter telling him everything I had already sent him in the original letter and didn't get anything sorted. I complained and pointed this out and then got a reply months later saying they hadn't heard back from social services did I want them to look into this? Given my whole complaint was about speech and language provision and had nothing to do with social services I just didn't even bother to reply. Clearly my MP is as much use as a chocolate teapot.

wasuup3000 · 04/02/2011 23:07

Hi wet

Yes it will be interesting as the letter says about how frustrated they feel with the current system. Wink

streakybacon · 05/02/2011 10:02

I met with my MP back in November about the lack of access to special needs support for children who are electively home educated - my ds has Aspergers/ADHD but whenever I ask for help I'm told he's my responsibility because I chose to home educate Hmm. Incidentally, this came from the Head of Access and Inclusion Hmm.

I left a full case history and explained that it was a background to where we were now so he could put current issues into context. He completely misunderstood my request and the LEA couldn't understand why I was (allegedly) complaining about a lack of support and statutory assessment two years after ds was taken out of school Confused.

I'm now having to start all over again, but with further damage to my reputation with the LEA.

It's a great idea to use your MP to help with SN issues, but they do get it wrong sometimes, in some cases spectacularly so.

Broomy · 05/02/2011 10:07

Hat trick!

...and direct payments make 3 Biscuit

  1. Yep, local authority reduced spending on social care was one of our issues, along with everyone else, let's call it the 'starter'

  2. Incap Ben and DLA abolition is going to be the next one - 'maincourse'

then yesterday, on coming back from seeing my MP about the letter above, plus how reduced staffing levels in social care make intelligent support a joke, there was a letter in the post from direct payments. My care manager had agreed my dd an amount towards costs related to trying to find supported living a year ago.
DP letter referred back to spring 2010 asking my dd to return that amount to them because the care team hadn't authorised it.

Obviously they had or she wouldn't have used it, but the care manager was 'let go' months ago. I can't find my paperwork because at the time I had pneumonia and was seriously ill for months.
So, this is the dessert :)

Life would probably be less stressful without 'support' but I get the feeling that's what MPs are hoping for.
So. No rolling over.

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