Hello all,
Have just had a foetal heart scan at 20 weeks following a high nuchal translucency measurement, and unfortunately they found that the baby has severe aortic stenosis - a narrowing of at least one and possibly two of the main arteries. They seem to think that it's fairly likely to lead to Hypoplastic Left Heart Syndrome by the time the baby is born, which is very severe and the baby would die within a few days without major surgery.
If we go ahead, the baby would need surgery within a day or two of birth, followed by two more ops before he reaches school age. the fist op carries a 30% mortality risk, the second two are less severe.
So now we're trying to decide what to do - which is proving a bit difficult, to say the least..... Neither option seems like the obvious thing to do.
anyone had this experience? how on earth did you go about making a decision?
any thoughts welcomed.
LittleMy
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Aortic Stenosis / Hypoplastic Left Heart Syndrome at 20 weeks - any experiences?
239 replies
LittleMy34 · 28/01/2008 14:17
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