Spinal muscular atrophy

[SarahKM1980]

Hello,
I'm new to mumsnet but my baby who is 6 months old has spinal muscular atrophy type 1. He was diagnosed at 3 months.
We are trying incredibly hard to focus on all the joyful aspects of our situation, our baby is a smiley beautiful wonder :)
It's obviously incredibly difficult too.
I wondered if there were any other mums out there experiencing the same?
Thanks
Sarah

[amarmai]

hi sara, your choice to focus on the +ve will help you every day . Hope you find a support group.

[YellowDinosaur]

So very sorry to hear this. There is another mum here who is going through the same. I wondered if you might like to be in touch?

www.mumsnet.com/Talk/life_limiting_illness/2454376-Anyone-elses-child-terminally-ill