Mumsnet Talk

I think DH may have it. He's 34. He's had blood in his stools for a few months. He's also had dreadful mouth ulcers and small lesions on his hands. And has complained of feeling nauseous in the evenings sometimes.

He's waiting for a colonoscopy following a preliminary investigation that didn't find piles (as we'd hoped) but saw a bit of redness further in.

DH's mum as Celiac Disease. I don't know if that's relevant.

I'm frightened. I'm disabled and we have a small child. I rely on DH a great deal. I hope the stress of that hasn't brought this on in any way.

If he has it, is he going to be ill a great deal? Will it impact his life a lot? Is it possible that he will die? Will he be in pain? Is he likely to be able to work? Does it get worse?

Please don't panic. I don't know a lot about it but I think it can be managed well so that people can live a more-or-less normal life. I've never heard that it is life-limiting

I know someone who has it who has been well for decades! It can flare up from time to time but can be managed

That's very reassuring educating, thank you.

I've lived with ulcerative colitis now for 18 years. Luckily it is very well controlled. UC is similar to Crohns but involves a different part of the bowel. Good luck to your DH.

I was diagnosed with Crohns just over a year ago but my dr thinks I've had it for about 10 to 15 years . I've been really well for the last year & I'm on medication. I'm having a small flare up at the moment bug it's manageable. The NACC website had loads of information & they're really helpful. Good luck to your DH.

Sorry also meant to say my consultant says you can live a normal life with Crohns you just need to be more aware of how your own body functions & learning to manage the flare ups is the hardest part.