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Allergic bronchopulmonary aspergillosis (ABPA) - anyone know anything about it?

(4 Posts)
spicemonster Sat 21-Nov-09 22:00:04

My sister has been ill for months now and having ruled out TB, cystic fibrosis and pneumonia, she has now been diagnosed with bronchiestasis and ABPA.

I understand that neither are curable but can you lead a 'normal' life with them? Or is she going to feel pretty rubbish on and off for ever?

Any info gratefully received.

teatotal Sat 21-Nov-09 23:39:47

Yes, it could be caused by what is known as sick building syndrome, in the home or workplace. I am a victim, as well as many celebs. I rented a beautiful home and paid a fortune for the family to be very sick. Aspergillus, stachybotrys and more were found in air sample testing. Read the book Get Well Soon-Remove The Cause The Effect Will Astound You by United Authors also see a site mold-help.org. I hope this is helpful. x

nightcat Sun 22-Nov-09 14:17:06

Sounds like her immune system is very low, has she been on long-term antibiotics?

The only context on this I have come across was a complication of leukemia treatment, where immune system is v. low.

spicemonster Sun 22-Nov-09 16:04:42

I don't quite know how she got it - I think she's had bronchiestasis for years and then she got a chest infection. It might actually be connected with her over-exuberant mixing of her compost which seems a bit of a bizarre way of getting very ill but is a likely cause.

Can you lead a pretty normal life once the steroids have got it under control? Or is she going to be pretty weak and frail for ever?

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