DD is OK (ish)

I am being silly

Sounds goo Katy.

How is he doing? How are you and DD doing?

My dad has written him a letter to sign:

I would be very grateful if you would ensure that my wife, KatyMac, is given up to date information about my treatment and is permitted, as appropriate, to discuss it, with my doctors and medical advisors. The situation is complicated to communicate and discuss on a second-hand basis and I value her counsel and need her full understanding of my treatment and condition.

Hopefully that will help

stanausauruswrecks is spot on - you need to get your husband's consent to share info with you documented in his notes. Without this, staff should not be sharing information with you. I know that sounds harsh but you would be amazed how often people ring up pretending to be relatives when they are not (and, even if you are the next of kin, it is still your husband's choice whether you are given any info). The nurses could lose their jobs if they gave you information and your husband then objected.

Also agree with stanasusauruswrecks about contacting the consultant. If you speak to a doctor on the ward it will be some random junior doc who probably doesn't know your husband and will be winging it.

My Godmum has pointed out that combined with the upset of being in hospital, the chest infection & the antibiotics, and DH's particular personality, DH will be struggling to understand the doctors & what they tell him

She feels I must point this out to the staff as he has a potential borderline undiagnosed learning difficult

Me too

He had 2 weeks of IV AB last July (funnily enough) and that reduced his infections from 10-12 a year to about 6.....but the 6 he had seemed worse (if that makes sense)

Causing little or no symptoms .

I suspect from what you have said they are going to treat until he is clear from chest infection....kepp him under obs for a few days and see if his respiratory function declines when he is off ABs - as the ABs he is on are likely to knock the mycoplasma back a bit he will probably be better than ever for a few days (which I think you have said has happened in teh past?). So they will probably either

See he is great after ABs because ABs have kncoked back mycoplasma...send him home and he will start to decline for a few days...they will deny it was the mycoplasma...you start another circle

OR they will keep him in a bit longer so he can get over the post AB peak and start declining again...see he needs mycoplasma treatment and you might finally be on a more permanent road to improvement.

I know that it means he may be in longer...but for your longer term sake I hope it is hte latter

But apparently because it is causing little or no symptoms they might not treat it?

I glad you are making some progress.

I can give you the diagnosis regarding the mycobacterium....if he was tested positive for it 3 times and hasn't been treated (for 6-18m as we have discussed previously) then it is still there.

Mycoplasma doesn't go away on it's own.

Chin up. Try and be positive for DD. try and be positive for yourself. He is in hte best place and if they get him sorted properly you will have you DH back to do the laundry, bins and rushing around.

I am really sorry, wish there was something I could do/help.. always a listening ear.