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Dp has a lump (nodule) on thyroid, I'm so worried it could be malignant

(179 Posts)
Twosugarsplease Fri 11-Jan-13 10:12:16

Dp has seen GP said it could be a nodule, ultra sound confirmed this on Monday.
Went back to hospital yesterday, expecting the biopsy to be done, and hoping for a bit of relief from worry, I was sat in waiting room with our little ds, then my dp comes out and said consultant basically asked him to have ultra sound and biopsy and date will follow, dp has had an ultra sound already,so yesterday was so frustrating, only thing positive was he asked if bloods had been done, which they have, and consultant said 'good' when my dp said they were fine.

Nodule is 33 millimetres in size, with a smaller one at the bottom, I'm so terrified that it could be malignant sad

Dp is fine, not really stressing at all, and telling me not to, we've googled, and he has read there is a 5 % chance nodules can be malignant.
I have constantly got this knot in my stomach and can barely think of anything else, I'm just so worried.

Is anyone a GP or in the know of thyroid nodules ? Thankyou.

digerd Mon 11-Mar-13 14:03:40

I'm sure he will be fine from the op, but very drowsy for a few hours while he sleeps the GA off. You want to know if they have tested the tumour and got the results and if he's had his whole Thyroid out or was not necessary. Or if he has to wait < not again!> for the result, to see if he must have another op to take out the rest of his Thyroid.

Doubt if they will tell you these details over the phone, though.
Horrible for you this endless waiting.

I'm off-line now until 3.30pm. Will pop in afterwards.

Twosugarsplease Mon 11-Mar-13 14:11:48

My mil just rang, she too is say by the phone, they told her they would ring her back as he is till in recovery, they rang her back and said he is still there but fine.
Just read back on some posts from penis they told her during recovery the results. Can't bear not being with him if it's not good.
I'm going to wait until 6 ish, if I can and call back, hopefully he has skeptic it off by then.
We have been messaging on touch this morning, so I'm hoping I get a ding dong on my phone soon from him beforehand.

Twosugarsplease Mon 11-Mar-13 14:12:55

slept it off by then. confused

Twosugarsplease Mon 11-Mar-13 14:25:57

Thankyou dig yes that's exactly what I want to know.
I will remember those for the next call, although I have a feeling dp will be untouched before then, I'll get back later, thanks again dig in my hour if need, literally smile

digerd Mon 11-Mar-13 17:29:26

2sugars
Just checked your other update and he was taken down to theatre at 10.30.
I was given a large dose of Valium at 8am. and I think I was taken down 30 mins later.
All I remember is that I was back in my ward by 1pm, but mine was just reducing the size of the whole Thyroid. But did sleep for hours afterwards from the GA and the long procedure.
I know how you must be worrying, but even if they did decided to take the whole Thyroid out, that is actually the best thing, and what Penis insisted on.
Get rid of the wretched thing once and for all, so no more worrying about it.

Hope you have managed to eat something, today.. That'll be both you and MIL worrying yourselves sick.

It's horrible waiting for the phone to ring, Hope you get some assurance soon.

Twosugarsplease Mon 11-Mar-13 20:55:08

Just got back from visiting, he was back on the ward about 2.30,
He was told during recovery that the op went well, consultant has been round and according to dh their attitude was very laid back, told him he has to go back in 5 days for his stitches out, and 10 days to discuss results ! 10 DAYS !! But all very relaxed about it. Only had half the thyroid removed.
So we feel there is no alarm bells ringing, but still don't bloody know sad
He has a drain in his neck and as long as the blood draining doesn't go over 80 mls he can come home tomorrow, it is sat at about 20mks now and has done since he got back on the ward he said. So that's good.

gingeroots Mon 11-Mar-13 21:19:52

I feel your pain twosugars .

10 days ...

Still ,sounds like op went well .

Keep on keeping on .
x

digerd Mon 11-Mar-13 21:49:40

2 sugars

Thank goodness. I thought you were visiting DH. So he was back in the ward at 2pm. About the same time as I was under my op, about 4 hours.
But still no diagnosis or prognosis, so another 10 days waiting for you all.

Hoping for good results. You all deserve it after waiting all these months.
I stayed in hospital for 8 days in 1974, and went home with a gauze bandage round my neck. They must have taken the staples out before going home, but so long ago, I don't remember that specifically or having a drain.
But didn't have half of my Thyroid removed just reduced in size.

At least the first hurdle< and hopefully the last> is over now.
Good luck for his healing.

.

kissmelittleass Mon 11-Mar-13 22:37:18

Just want to wish you all the luck in the world,I know you don't know me from adam but I am thinking of you and your dh x

Twosugarsplease Tue 12-Mar-13 11:25:31

Thankyou kiss , ginger and dig
The drain was taken out this morning, so just waiting on my SIL bringing him home, around 12.30, bed is all ready with some strawberries and ribena and clean pj's out.
Got all my jobs done this morning, just little man to collect from nursery. Will just be glad to have him home smile
Wished I could have been there yesterday when consultant spoke to him, to ask more questions, dp was at that time quite spaced out, as still was last night, maybe today he can recall more of what was said to him when he gets home.

digerd Tue 12-Mar-13 18:29:20

2sugars
Saw your post on MrsShrek's, that he was home.
Just remembering my last GA for a cartilage op on my knee, 6 years ago.
I was crying out in pain afterwards, but hazy and thought I might have dreamt it, but nurse said I was crying out and they gave me a morphine shot. So embarrassing.

Hope DH is doing OK, but it will take a while. I had far more pain with the knee op than my Thyroid as don't remember being in pain at all from that op. Bit sore and can't move your head. As we all had staples instead of stitches, we joked we looked like Frankenstein's Monster.
But I had to walk on knee not my neck.

Hope he soon gets back to his old self, playing with his favourite 'toys'.
Remember he shouldn't turn his head sideways or upwards until skin has healed.

Twosugarsplease Tue 19-Mar-13 17:58:35

Hi everyone, but of a pointless update, but wanted to sound off.
Today is results day, as consultant thought 7 days after op would be fine, instead of 10, and that way dp gets his stitches out.
Stitches out, no results !!
Apparently they are not back, consultant asked nurse to ring them, and they said results are done and were there, just not processed ??
Aaarrrgh! I felt like running to wherever and getting them my bloody self !
So more waiting....sad

MrsShrek3 Tue 19-Mar-13 18:00:50

noooo sad not more waiting. <offers hand>

Twosugarsplease Tue 19-Mar-13 18:31:41

Yes mrsS so bloody frustrating.
I'll pop over your thread and see how you are all getting on, you have all been going through this so long, I truly admire your strength.

gingeroots Tue 19-Mar-13 18:51:10

twosugars - unbelievable the waiting for results you've had !

I honestly don't know what to say .

I'm 100% certain that when I was told last Thursday about my CT scan being brought forward that they had the biopsy results ,even tho they said they hadn't .

I was told that there were technical problems at lab and then ,when they could no longer deny that they were available because also saying that consultant would discuss the results with me ,that they were on the system but like a cake not available for viewing .

So that's my trust in them shot .

I feel so much for you - I would so ,so much rather be the patient than the relative .

Believe me I know how hard your waiting must be .

Twosugarsplease Tue 19-Mar-13 19:25:09

Thanks ginger it hasn't gone well for you either...technical problems !? I mean this is people's lives on hold not a bloody sound check !
I sat in the same chair in the waiting room, (because it beside the play area for ds) and I thought maybe I shouldn't as last time I did, dh came out with no news too, but I thought not to be so silly and sat talking in my head to my late dad, to please let us have some good news.
Within a few minutes dh was back with no result.
He is as usual fine, and looking on the bright side, and I feel I should too, this is hard enough for him without me going off on one, so chilled tonight and we are going to have a wine
What is next for you ginger ?

gingeroots Tue 19-Mar-13 19:47:17

Another endoscopy tomorrow ( fingers crossed a larger dose of sedative ) ,multidisciplinary mtg ,and I suspect agreement on more tests to determine more about nodules extent .

So hard for you being on sidelines and simultaneously being so involved ,
And looking after family ,cooking ,running house....

Twosugarsplease Tue 19-Mar-13 20:29:34

I will be thinking of you tomorrow ginger*
Everything is normal inbetween, although always at the back of our minds, then as appointments get close, it's at the front.
Tea was made twice for dc's during his op, it was all I was thinking about, and as it was a naff lazy 'out the freezer tea' I burned it shock
Please let us know how you get on. Will you be going to sleep or getting a relaxing sedative ?

MrsShrek3 Wed 20-Mar-13 23:58:44

how is it going? Still here and thinking of you.

digerd Thu 21-Mar-13 07:59:36

2sugars
Just read this, and have been wondering about DH having his stitches out.
They did originally say his results would be at a later date. But to change their mind and then results still not available, is just not good enough!

You have been waiting far too long.
Is Dh still so laid back about everything?

Twosugarsplease Thu 21-Mar-13 13:57:55

Hi all, and thankyou, yes he is very laid back dig
But very positive about treatment should it be cancer.
He is happy that during the biopsy they said there was no spread, all in one area, I'm just hoping that is still the case.
Hospital rang yesterday, to tell him Tuesday 26 th is his new appointment.
He seemed very quiet before the operation, and first few days after, I thought it had finally got to him, but he insisted he was just sore.
Sure enough back to his usual chirpy self.
I just can't rest until we know.

digerd Thu 21-Mar-13 15:34:20

So glad he's back to his normal 'chirpy self' - you've got a diamond of a man there.
So the results are next Tuesday, now.
Keeping fingers crossed for a long awaited good result.

Twosugarsplease Thu 21-Mar-13 17:29:33

Thankyou smile

Twosugarsplease Tue 26-Mar-13 12:11:57

Hi all, just updating, dh has thyroid cancer got results today.
God this is shit, will need another op and radio active treatment.

digerd Tue 26-Mar-13 15:48:31

I as wondering about your results today, and saw your post on Mrs Shrek's.
After all this time of them faffing around, I also had a feeling they'd made a mistake. But NO, not this time.

Penis, I think will be undergoing the radioactive treatment now/soon.
But 1st DH has got to have the rest of his Thyroid out. 2 ops, poor love, and be given replacement Thyroxine tablets.

But take consolation in that it has not spread and is an easy cancer to cure needing no chemo. But a few more weeks/months to go yet before everything is back to normal, which it will be.
Chin up 2 sugars.

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