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Dp has a lump (nodule) on thyroid, I'm so worried it could be malignant

(179 Posts)
Twosugarsplease Fri 11-Jan-13 10:12:16

Dp has seen GP said it could be a nodule, ultra sound confirmed this on Monday.
Went back to hospital yesterday, expecting the biopsy to be done, and hoping for a bit of relief from worry, I was sat in waiting room with our little ds, then my dp comes out and said consultant basically asked him to have ultra sound and biopsy and date will follow, dp has had an ultra sound already,so yesterday was so frustrating, only thing positive was he asked if bloods had been done, which they have, and consultant said 'good' when my dp said they were fine.

Nodule is 33 millimetres in size, with a smaller one at the bottom, I'm so terrified that it could be malignant sad

Dp is fine, not really stressing at all, and telling me not to, we've googled, and he has read there is a 5 % chance nodules can be malignant.
I have constantly got this knot in my stomach and can barely think of anything else, I'm just so worried.

Is anyone a GP or in the know of thyroid nodules ? Thankyou.

digerd Fri 22-Feb-13 09:18:03

Sugars
I did not have any real pain, just a bit sore if turning my head at first, but we were in hospital for 8 days after op just lying in bed most of the time < smile> And unlike Penis, did not have it totally removed.
Which your DP may also not need., but is having the one lobe totally removed, so may be in more discomfort than I was. Although with cancer of the Thyroid it usually is totally removed.

PenisColada Fri 22-Feb-13 10:10:02

I was 'encouraged' to get up and about straight away. I know this prevents DVT and is good for you but I did not feel like it fir a few days !

Twosugarsplease Fri 22-Feb-13 15:57:04

Just had a letter this morning, his op is now on the 11th.
That is 1 week earlier! But then if they were very concerned it would have been done by now, do you think ?

PenisColada Fri 22-Feb-13 17:26:14

My op date was moved about twice due to scheduling. They are obviously not doing it in a hurry so I would not worry.

Twosugarsplease Fri 22-Feb-13 18:29:22

Yes my sensible head tells me that too, I just worry over the slightest thing.
Thankyou for the advice on helping mu dh feel comfortable afterwards too smile
Going to make some nice soft tasty meals, and make sure he gets some peace and quiet, sure he will be happy as larry with his phone and lap-top !

digerd Fri 22-Feb-13 19:39:16

Sugars
I was a bit worried the op was so far away. I am so pleased it has been brought forward a week. Probably due to a cancellation. But in anycase the sooner the better where suspicion of malignancy is concerned. Not that you will stop worrying, I know.
This has been going on since 7th January, hasn't it? When DH first went to GP about his lump. By the 11th March that will be 2 months waiting for an exact diagnosis and prognosis. Poor you and DH even if he's not bothered and 'happy as Larry on his phone and lap top' , bless him.

Twosugarsplease Fri 22-Feb-13 20:50:35

Yes dig I think he is on the look out for a little bell too grin
It has seemed like an age since the initial routine visit to drs back in November, when dh just happened to mention his lump while there for his back.
Going in a week earlier means we are closer to finding out too. He has to be there for 8 am.
Do you think they will tell him whilst he is in hospital what the results are ?

digerd Fri 22-Feb-13 21:19:22

Sugars
I do not know, but hope so. 4 months waiting is awful.
When my cervical malignant cells were diagnosed, I was having the op to take them all away 2 weeks after the biopsy. So, they can't think his is serious.

I was having a medical today which included an ultra sound on my carotid arteries in the sides of the neck that take the blood to the brain. Had one 3 years ago and was told they were both mild to moderately narrowed. so might be due for a descaling if now seriously narrowed. My 83 year-old neighbour had that done after she suffered a very mild stroke, and they threw in a By-Pass of one of her heart arteries as well - despite her not having any symptoms- So she said she was now well MOTed to last another 10 years !!

PenisColada Fri 22-Feb-13 21:27:25

I had my nodule discovered in September then my biopsy was delayed as the biopsy man was on holiday so my op was a long time after first discovering it.

I was told in recovery that they confirmed the diagnosis during the op. they came and spoke to me about the treatment the next day so I am sure he will find out quickly.

digerd Fri 22-Feb-13 21:38:13

Penis
Now you have no Thyroid Gland what dosage of Thyroxine are you on?

Twosugarsplease Fri 22-Feb-13 21:41:17

Ooh dig keep me informed, will they let you know soon. If you have to have an op I will visit you in mumsnet fashion smile to keep you company. Hope it's not necessary but an 'MOT' if needed will benefit you.

PenisColada Fri 22-Feb-13 21:44:23

I am on a short acting one which will be changed after my treatment so I have no idea what dose I will be on long term.
The purpose of the short acting one is that I need less time without it before the treatment.
You take thyroxine dig ?

PenisColada Fri 22-Feb-13 21:44:42

I take it 3 x per day at the moment.

PenisColada Fri 22-Feb-13 21:45:56

Meant to say when will they let you know if you need surgery dig ?

digerd Fri 22-Feb-13 21:46:50

sugars
I actually need a FULL MOT, including a whole replacement body and brain - something like from the "Stepford Wives" will do !! .

Twosugarsplease Fri 22-Feb-13 21:49:09

Thanks pc I would assume he will be too drowsy and won't be twiddling his thumbs if that's what they say to him, do if he is so sleepy next day will soon come around, yet my nails will be bitten off and maybe a few pounds shed !
I'm having a glass of wine.
Here you go dig and pm wine wine

digerd Fri 22-Feb-13 22:03:59

Penis.
Yes, after my op, I didn't need any as was a sub-total Thyroidectomy, and not overacting anymore. It had been very naughty indeed and was very enlarged. I always thought of it 'got too big for it's boots and was cut down to size' to make it behave properly.
20 years later when my DH was battling in vain against a very aggressive cancer, my blood test showed a slight underactiveness, and was put on 50mcg in 1996, and am still on it.
Just wondered what the normal amount of Thyroxine is that the Thyroid gland produces, which you would be on. Suppose it varies on the individual.

PenisColada Fri 22-Feb-13 22:12:43

I have been told it may take awhile to get the dosage right. I will let you know what they put me on after the treatment. I am hoping for a big dose so I lose some weight smile

digerd Sat 23-Feb-13 09:53:55

Good luck with the weight loss.
But do not have too much Thyroxine as when I was very overactive, I wasted away and was constantly eating high calorie foods as was so ravenous every 30 minutes. Tachycardic pulse rate and palpitations and constant sweating. Not nice and dangerous too. I was also bursting into rages over nothing.
I did not know how much Thyroxine I was producing only that it was far too much
How long must you be off it for the RAI treatment?
Am now off to walk my little dog in the slight snow fall < grimace face>

Twosugarsplease Sun 10-Mar-13 19:28:09

It is the eve dp's operation.
Going in for 8 am in the morning. I'm so hoping they tell him something while he is in, so no more waiting.
dig and penis how are you both ?

digerd Mon 11-Mar-13 09:03:53

2sugars
Just remembered the day has come you have been waiting for so long.
Good luck for good news from the results, and for DH's op.
9am now so perhaps he has had it done already?

Thinking of you.

gingeroots Mon 11-Mar-13 09:10:49

twosugars - another one thinking of you .

Twosugarsplease Mon 11-Mar-13 13:26:07

Thankyou dig and ginger
He was taken to theatre at 10.30, I rang at 12.50 but he was still not back, I'm assuming he will have spent some time in recovery too.
I said I would ring again in an hour, and it's going soooo slow.

digerd Mon 11-Mar-13 13:45:22

2sugars
Now 1.45pm so only 5 minutes to go before you phone again.
Hope you get some more news this time.

Twosugarsplease Mon 11-Mar-13 13:50:07

Just rang and still not back, just want to relax that he was ok through surgery, suppose they can't tell me much else though can they ?
I'm really hoping he gets a visit on the ward later from the consultant to give him some news.

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