Mumsnet has not checked the qualifications, experience, or professional qualifications of anyone posting on Mumsnet Talk and cannot be held responsible for any advice given on the site. If you have any serious medical concerns we would urge you to consult your GP.

Dp has a lump (nodule) on thyroid, I'm so worried it could be malignant

(179 Posts)
Twosugarsplease Fri 11-Jan-13 10:12:16

Dp has seen GP said it could be a nodule, ultra sound confirmed this on Monday.
Went back to hospital yesterday, expecting the biopsy to be done, and hoping for a bit of relief from worry, I was sat in waiting room with our little ds, then my dp comes out and said consultant basically asked him to have ultra sound and biopsy and date will follow, dp has had an ultra sound already,so yesterday was so frustrating, only thing positive was he asked if bloods had been done, which they have, and consultant said 'good' when my dp said they were fine.

Nodule is 33 millimetres in size, with a smaller one at the bottom, I'm so terrified that it could be malignant sad

Dp is fine, not really stressing at all, and telling me not to, we've googled, and he has read there is a 5 % chance nodules can be malignant.
I have constantly got this knot in my stomach and can barely think of anything else, I'm just so worried.

Is anyone a GP or in the know of thyroid nodules ? Thankyou.

Twosugarsplease Wed 23-Jan-13 20:00:39

Hi dig hope your daughter is not so sore today, yes to be young and carefree would be nice, not a worry in the world.
Is it snowing in Germany too ?

digerd Wed 23-Jan-13 21:13:34

I don't live there any more, since DH died. We don't know what real winters are here, you know. Months of -15 -18 during the day. Looked lovely when the sun was shining and snow still didn't melt.
Haven't heard from DD as she is Yoga teaching tonight. She was worried she wouldn't be able to demonstrate as she normally does.
I'll see her tomorrow after work and hope she's OK. I've felt exhausted all day - the effects from yesterday's trauma.
The sooner your DH has his biopsy and results < that it is benign> the better.

digerd Wed 30-Jan-13 16:53:23

How did the biopsy go today?
Good news for DD - all benign. They even apologised for putting her through those awful 5 biopsies procedure.. But is better to err on the side of caution, as the saying goes.
Hope same results for your DH but hope his biopsy was not so traumatising as DD's.

Twosugarsplease Thu 31-Jan-13 10:21:53

Hi dig that is great news for your daughter !
Thanks for the update.
Dh went yesterday, biopsy he said was fine, had to do it a couple if times as didn't get enough to test.
I feel quite relieved at the news that there are no other nodules that have spread, so if it is malignant, which she said is rare, but not always, they will be removed.
I just feel a huge sigh of relief that they are contained in one area, so far so good.
He is feeling bruised a bit uncomfortable last night, but at work today as normal, so just waiting for results now.

digerd Thu 31-Jan-13 11:15:24

Good that is over, now the wait for the results. I think I remember you saying your DH said if it is benign, he would rather leave it there than have an op? <grin- men!> But only 5% chance of being malignant?
Better than DD's - 20%-, and so relieved all 5 biopsies were benign. She didn't want the op either mainy due to her not being able to teach her Yoga for a couple of weeks.
She did feel unwell the next day after, but had 5 in different areas.
Of course your DH said it was "fine" - he's a man. But shame he had to have it done twice.
Was he told like my DD when he would hear the results?
Good Luck

Twosugarsplease Thu 31-Jan-13 12:28:33

They didn't tell him when he would hear anything, I presume during next week, will he get a letter or be called to see the consultant, do you think ?

digerd Thu 31-Jan-13 14:52:00

I was surprised that the consultant saw DD and said she would phone in 8 days with the results. As your DH was not told that, I'd expect a letter will be sent to GP or as in my cases with the mammograms and smear tests I have had, I get a letter, but those are only screening tests.
After my cervical biopsy 30 years ago, I did get a letter myself telling me I had to have another op, as biopsy was malignant, and a bed was reserved for me on the Sunday to have the op on Monday. Those days we stayed in hospital a week, now it's in and out asap.
Are you sure DH wasn't told?

MortifiedAdams Thu 31-Jan-13 14:55:17

Do they always do a biopsy on a lump on the thyroid? Ive had one since dd was born (1.1) and was sent for a scan about 6/7 months ago, Dr said it was a cyst, totally normal, nothing to worry about. Would they do a biopsy in this case or jist leave it?

digerd Thu 31-Jan-13 15:04:38

Not if it is an obvious cyst full of fluid. Some cysts are not that clear and have to be biopsied to make sure.
I had lumps in one breast, but just a feel of them by an expert, concluded they were fibrous tissue lumps and wasn't even sent for a scan.
Another woman had had a bopsy as they were uncertain and although benign, it was one that could turn malignant, so had biopsies, on a regular basis to keep a check on it.
If your cyst has not got any bigger or has disappeared, I wouldn't worry about it. If it causes you any problems, go back to GP.

Twosugarsplease Thu 31-Jan-13 20:00:00

Dh just saying now dig they would send an appointment through the post.

kissmelittleass Fri 01-Feb-13 06:55:35

Hope everything goes well for your dh twosugars, my little dd has a fatty swelling at the front of her neck which was picked up by the health visitor 17 months ago.
She had a thyroid scan last september which was normal and a blood test which was also normal, my doctor called it a goitre and said as everything was normal she wouldn't need any more blood tests which shocked me to think thats it forget it.
She is seen in paediatrics for another minor problem so as we were there shortly after her thyroid scan I mentioned it to a lovely consultant there who checked her results and examined her and said as she is seen with him twice a year if there are any worries he will check and do a blood test if needed. He didn't agree with my doctor calling it a goitre he said it was an enlarged/swollen thyroid he said goitre was not referred to on her scan results.
I must admit it frightens me as she was not much past 2 when HV picked up on it, I cannot really notice it as there is no visable bulge but compared to other little ones at playgroup I can see her neck looks slightly padded with fat.. doubt anyone else would notice though.
It worries me as she is so young and its not common in children..anyone know of any children affected by this? Hope you don't mind me posting this on your thread twosugers.

digerd Fri 01-Feb-13 13:24:36

I don't know any child who had one, but I did in my early 20's. But mine was swollen due to being very overactive for a couple of years - before it was diagnosed. Your DC has had Thyroid tests and they are normal - mine were not. Mine was also called a Goitre by my GP.

If DC is otherwise her usual self, it will not be affecting her. But it should be regularly checked.

Twosugarsplease Sun 03-Feb-13 13:02:41

Hello kiss I haven't heard of anything like this in children either, but I would be rest assured if your DD's consultant is happy with it.
I mentioned in one post that my dh seems to think he has had this for sometime, he even questions himself he might have had it growing up !
It's just never bothered him, but when mentioned to our GP during a visit, he was sent for tests, and here we are. But this is a nodule, a tiny one attached growing alongside it, his thyroid isn't swollen.
I did work with a girl years ago who had either an under or over active thyroid, which ever one it was made her always on the move, she was excellent to work with on shift grin
She took thyroxine tablets daily and that was all, [digerd] would that perhaps cause a swelling ?

digerd Sun 03-Feb-13 17:43:27

That just shows how different it can be for each person.
"On the go all the time" is the initial stages of an overactive Thyroid, but you don't take Thyroxine for it, that is for an underactive one, when the Thyroid is not producing enough of it.
If she had been underactive, signs are sluggish and slow, but with too much Thyroxine given it could make her "Hyperactive", but would eventually become ill. Or she was back to her normal energetic self. A swollen Thyroid , in my case, was caused by my Thyroid producing too much Thyroxine, which is usual.
Don't know if an underactive one can sometimes cause a goitre.
That case is a bit puzzling.
Main symptom of overactive Thyroid is losing weight, underactive gaining weight. But there are always exception to the rule.
I suspect she was taking too much Thyroxine- but she would have become thin and ill - normally.
Not got your appt letter yet.? Your DH is a typical man- you had to drag the info out of him<grin> Bless 'em.
.

Hi, twosugars, hope all is well, any updates since his biopsy? x

Twosugarsplease Mon 11-Feb-13 17:45:53

Hi everyone <waving hi crushed
We got a phone all today, dh to see consultant tomorrow for results,would they still have to actually see you if all is ok ?

For any results, I'd say so yes, as they're not allowed to give results over the phone smile
Good luck to you both xx

digerd Mon 11-Feb-13 21:56:59

Twosugars
Just seen that your DH has his appt at last tomorrow. Good Luck.

Twosugarsplease Tue 12-Feb-13 10:09:22

Thankyou dig will get back here tonight.

Twosugarsplease Tue 12-Feb-13 18:34:43

Dh saw consultant today, he said he will need half of his thyroid removed,( thyroidectomy) under general anaesthetic.
Apparently there are 5 stages...1=biopsy was inconclusive 2= benign 3=85% chance of being benign 4= suspicious of being malignant 5= malignant.
Dh is stage 4.
dig was this the case with you ?

digerd Tue 12-Feb-13 20:38:22

Hi two sugars
No, I didn't have malignant cells, Thyroid went into overdrive and produced too much Thyroxine = Overactive or Hyper thyroidism.
Your DH has been diagnosed with Stage 4 - suspicion it could be malignant?
But the best course of action is, if in doubt where cancer is concerned be overcautious.
People I know who had cancer of the Thyroid diagnosed, it was always contained in the Thyroid and had not spread, and they had the whole Thyroid out.

PenisColada Tue 12-Feb-13 20:40:33

Mine was a 4. Had my thyroid removed just over 2 weeks ago. Ask me any questions you like.

PenisColada Tue 12-Feb-13 20:41:19

Are they going to do a frozen section during the op to get a definite answer ?

Twosugarsplease Tue 12-Feb-13 22:26:21

Hi dig yes that's right stage 4, I so hope it is all contained. What will happen after the op ?
peniscolada hello, how are you ??? I could chat all night, can you come for coffee. grin please go into detail, at what stage are you right now ?
dig please come along too, (you are my very own medical encyclopaedia ) thanks x and x

Twosugarsplease Tue 12-Feb-13 22:32:12

penis consultant did tell my dh that he will find out what it is during the op, so sounds like a frozen section yes.

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now