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Dp has a lump (nodule) on thyroid, I'm so worried it could be malignant

(179 Posts)
Twosugarsplease Fri 11-Jan-13 10:12:16

Dp has seen GP said it could be a nodule, ultra sound confirmed this on Monday.
Went back to hospital yesterday, expecting the biopsy to be done, and hoping for a bit of relief from worry, I was sat in waiting room with our little ds, then my dp comes out and said consultant basically asked him to have ultra sound and biopsy and date will follow, dp has had an ultra sound already,so yesterday was so frustrating, only thing positive was he asked if bloods had been done, which they have, and consultant said 'good' when my dp said they were fine.

Nodule is 33 millimetres in size, with a smaller one at the bottom, I'm so terrified that it could be malignant sad

Dp is fine, not really stressing at all, and telling me not to, we've googled, and he has read there is a 5 % chance nodules can be malignant.
I have constantly got this knot in my stomach and can barely think of anything else, I'm just so worried.

Is anyone a GP or in the know of thyroid nodules ? Thankyou.

Twosugarsplease Mon 14-Jan-13 14:35:18

Thanks ilove
Yes keep in touch with us, will be looking out for you, stay positive, so much digerd said, is easing my mind for dh.

digerd Tue 15-Jan-13 16:35:49

OP
Oh no, still no date, how frustrating for you!
When you said the lump moved and the DR said that was a good sign, reminded me of my black melanoma, I had removed over 20 years ago. And when I had a lump in my breast examined. The latter could be moved so was told it was just a fribrous cyst. The former which was malignant was rooted firmly in my arm, and after he removed it, he showed it to me and it had a long tailed root, which had fortunately not invaded the bone < have skinny arms>. Actually, I'm amazed myself how calm I was about it all, as when he saw it he said " That's got to come out right now", which he did 10 mins later after the local .

Just so sad my DH could not be saved.
Wish I didn't know so much, which is only from experience.
I have no knowledge of movable cysts on the Thyroid though, as had no nodules myself - just a massive goitre!!!

Twosugarsplease Tue 15-Jan-13 21:08:21

My gosh digerd you have certainly been through it !
No date yet no, nothing today either.
What is a goitre ? Btw, initially I thought some sort of cyst.
I hope you are happy and well now, you have been through so much shock

Twosugarsplease Tue 15-Jan-13 21:13:51

ilovefluffysheep and mrsvander good luck this week.

Ilovefluffysheep Tue 15-Jan-13 23:17:27

Thank you. Can't sleep, so nervous about tomorrow. Luckily I have a busy morning at work to keep me distracted - got to charge a suspect with 18 offences through an interpreter! By the time I do that and get back to the office will be time for the scan.

Twosugarsplease Wed 16-Jan-13 10:33:42

Oooh ! ilovefluffy you have a super exciting job !
Yes I'm sure that will take your mind off things, and you won't be one to be messed with this morning wink
Hoping you get some relief from worrying. Please let us know how you got on, later if you can.

mrsvandertramp Wed 16-Jan-13 10:42:39

Thank you Twosugars, I got the results yesterday - benign thank goodness and the doctor was lovely and we discussed what might happen in the future (lump will probably stay as it is, or possibly disappear by itself OR could have radioactive iodine to shrink it OR could have it removed) So, am very relieved. Good luck to everyone else.

digerd Wed 16-Jan-13 12:38:46

OP

A Goitre is when the whole of the Thyroid gland swells up. had it "cut down to size" < sub-total removal> to make it stop acting up, so to speak - years ago. It was producing way too much Thyroxine which sent everything into overdrive.< Overactive Thyroid/Hyperthyroidism
Yes I was fine afterwards, thank you .
Hope you get the date for the biopsy soon.

Twosugarsplease Wed 16-Jan-13 12:51:46

mrsvander that is excellent ! smile

Ilovefluffysheep Wed 16-Jan-13 18:34:41

Great news mrsvandertramp.

Well, mine is apparently a thyroglossal cyst (so basically a big lump filled with fluid!). I may need surgery to remove it, but DR wouldn't discuss anything like that as he said that wasn't his job, he was just there to do the scan. He sends a report to my GP and I discuss it with them.

Surgery or not, I am highly relieved to a) actually find out what it is today and b) relieved it isn't something more serious which is what I had worked myself up to.

Will get my bladder surgery done next week, then can sort this out after that!

Twosugarsplease - I am a DC. Sounds more exciting than it is! Was pretty chuffed to get someone charged with 18 offences though, although court will probably still give a really crappy sentence!

Twosugarsplease Wed 16-Jan-13 19:31:28

ilovefluffy firstly, fantastic news ! Yippee smile
I bet you feel amazing, what a huge relief for you.

Secondly...well done on a good days work ! Now that's another topic for me , don't get me started, just been having a discussion with my ds and dh, funnily enough, on our own crazy ways to just rid us of horrible criminals once and for all, hoping your day pays off at a lengthy sentencing. Rant over... Moving on grin

Well hope you have a lovely relaxing evening, with a big weight off your shoulders, so happy for you smile

Ilovefluffysheep Wed 16-Jan-13 20:12:28

Thanks you twosugars. Am pretty chuffed, even the thought of surgery doesn't put a downer on it. However, after 5 bladder ops (and 6th next week!) plus 4 other ops, I'm kind of used to surgery, and probably a bit more laid back about it than I should be!

Twosugarsplease Fri 18-Jan-13 18:19:14

Dh has his biopsy on 30 th jan, so hope it goes quickly and I don't think about it as much as last time !

Turningneedssleep Fri 18-Jan-13 19:33:29

Hello Twosugars I have found your thread! Glad you have got a date, hope you manage with the wait. Keep popping over to the DH with cancer support thread, we all know about waiting - we have a name for it, PAT (pre appointment tension) so it you see us talking about PAT visiting thats what we are on about wink . Will be thinking of you on the 30th and hope all goes well.

Twosugarsplease Fri 18-Jan-13 20:08:57

Hi turning thanks for popping in brew
Oh how I wish we could all be in same room, holding hands.
Like I have said all along, dh is fine with this, I know he knows there is a small chance it could be something, but his attitude is to get it out and get on with it, I'm just scared it is nasty and the weeks, months ahead are going to be a nightmare of worry and what ifs.
We have just been out throwing snowballs, we're really fine, give me another week or so and I'll be back to a nervous wreck.
Thankyou for pointing out pat,I'll remember that. smile

digerd Fri 18-Jan-13 21:13:59

Op
The Drs obviously do not think it is urgent, so keep that in mind - despite me wishing it was sooner for you both, as the wait for the results is the important bit.
Smiled at you and DH playing snow balls today. Love his attitude , <I know you worry enough for both of you as we women do>
When is he having the CT?

digerd Fri 18-Jan-13 21:15:52

OP sorry. Got you mixed up with another OP. Your DH does not need one.

exoticfruits Fri 18-Jan-13 21:25:10

I agree - the doctor can't think it urgent. I had some for years- just had a check up every year- then they started to grow and so it was decided to remove them- it was fine.

MrsShrek3 Fri 18-Jan-13 21:28:02

We've bumped into each other a few time elsewhere wink - I think I might also have mentioned that DH had something sort of similar. His was the "nasty" version. As hideous as this whole journey is, the cure rate is absolutely incredible if it turns out to be something unpleasant. DHs was initially diagnosed (probably correctly at the time) as Hashimotos thyroiditis but after several needle biopsies and a surgical one was found several weeks later to be NHL (an extranodal tumour on his thyroid). With rates nearing 90-100% remission expected, this stuff is very very treatable. Not easy, but fantastic prognosis. Hang in there, and PAT is an utter bitch... we had her round for the last two weeks and I'm thoroughly sick of her grin I really hope you're not joining us for real, but I'll hold a hand too when you need it.

strawberrie Fri 18-Jan-13 21:34:23

Hello, just noticed this thread and thought my experience might be reassuring for you. I had a biopsy last May for a nodule which, rather embarrassingly, was only picked up when my GP noticed the swelling.

the biopsy procedure itself was really straightforward, not painful just very minor discomfort for literally seconds. The consultant who did the scan/ultrasound said he was generally unconcerned by cysts which are 75%fluid or more. Mine he thought was about two thirds fluid, one third solid.

When the results came back, there were some anomalies in the sample and so the thyroid consultant decided to remove one side of the thyroid gland in order to completely rule out malignancy.

The operation was very straightforward, I stayed one night in hospital because the anaesthetic made me pretty groggy, otherwise I would have been allowed home the same day. Recovery was better than I expected, just some discomfort in my neck and tenderness for a week or so. In the end they did a full biopsy of the nodule and decided it was just weird, not cancerous. So no more treatment required, and because I still have half my thyroid gland, I haven't needed thyroxine treatment.

It really helped me knowing what the plan would be in the event of malignancy; standard treatment for thyroid cancer is removal of the gland, followed up by radioactive iodine treatment to blast off any lurking cells. This roughlyspeaking involves a few days in hospital after drinking a radioactive solution. Nothing like as onerous as radiotherapy/chemo. There is some really good info on the charity website Butterfly - I know you are scared of the worst case scenario but I wonder whether reading up on the facts may actually help to reassure you.

best wishes to you both, hope the 30th rolls round quickly for you.

PenisColada Fri 18-Jan-13 21:34:59

Well I am having thyroidectomy on Thursday as my nodule is almost certainly malignant.

It is very treatable and 99.9 % of people get completely cured so even if it is cancer it can be sorted out.

I got a call 4 days after my biopsy to come and discuss results so knew it would not be good news as it was so quick. The hospital have been fab and you get a nurse specialist you can contact directly with any queries.

I am frightened of the surgery though.

strawberrie Fri 18-Jan-13 21:42:06

Sorry to hear that Penis. The surgery is honestly not bad, I am a pretty big wuss but it was ok. My biggest issue was the fact that i had some decent pain relief meds post op on an empty stomach, I felt pretty nauseous; but they have good meds for that too wink

digerd Fri 18-Jan-13 21:44:34

There are Mners who have had a total Thyroidectomty for cancer or Hyperthyroidism. I had a subtotal for the latter, and had no pain at all.

digerd Fri 18-Jan-13 21:46:22

Thyroidectomy - removal of Thyroid

PenisColada Fri 18-Jan-13 21:52:58

Ah thanks for the reassurances. I am not good with pain.

The radioactive iodine treatment does not scare me as much as the op. the emotional impact has been pretty tough though. I feel 100% well and going to have surgery does not seem logical.

It will be nice to know for sure instead of being almost certain if it is malignant or not but they are treating me as if it is so they must be pretty sure sad

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