Hi, I'm new here. I have a 3 month old who has congenital heart disease - total anomalous pulmonary venous connection. She was also born with only one lung! I have contacted the British Lung Foundation and they say that they don't know of any other people being born with one lung. Livy is well at the moment but I am desperate to find someone who knows what I'm going through, does anyone know of anyone?
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