My 10yr old DD has had ongoing health problems for years, original diagnosis IBS, more recently Joint Hypermobility Syndrome, which does cover IBS & all her other pain problems, which I can see is correct, but every time I start googling to try & find ways of helping her cope with the various symptoms, up pops Celiac info, again & again & I never did feel this was properly ruled out, though or GP insisted it was & refused to retest her - I've even now read of links between JHMS & Celiac - add to that a thread on here linking long lush eyelashes to Celiac & it being the same gene responsible for both - DD has eyelashes to die for, thick dark & about half inch long, so it got me thinking again about Celiac & the original blood test DD had.
I KNOW from trial & error & years of dealing with this, that when DDs stomach problems flare up, she becomes wheat & dairy intolerant, so I will take them out of her diet for a while, at ither times she is okay, or seems okay with them, though i do wonder the more i read - we don't eat processed foods & I cook everything from scratch anyway, always have done, barley & rye are just not a normal part of our diet, so I believe if DD isn't eating wheat, chances of her eating any gluten foods are practically nil ?? -
When DD was tested for Celiac it was during a period of ongoing bad stomach problems, daily diarrhoea, pain etc - we weren't told to load up on gluten & DD wasn't eating it, hadn't been for a couple of months - all her tests for deficiencies were fine, our GP insisting this meant she wasn't celiac & when i later found out about gluten loading, she also insisted a re test wasn't necessary as DD would have eaten enough gluten for the test to be accurate & I got nowhere trying to convince her otherwise, she also wouldn't accept that DDs nutritional tests been good was down to the fact that my knowing her body was basically throwing out food before it had time to be properly digest meant I have been fanatical about making sure she gets the best nutrition possible, balancing every meal & supplementing with Spirulina, DD also loves healthy food - I've noticed she gets ill if this slips a bit & she eats a more normal diet.
Anyway having read a few things this week & knowing its in our family, I've decided to look into Celiac again as I feel it still needs to be properly ruled out, I spotted the home test kits & went & chatted with the main pharmacist in a big chemist - she confirmed that the way the test works, if DD wasn't eating Gluten at the time of the then there is no way it can be accurate.
So having it confirmed they do work & are accepted medicalky, so our GP cant balk at it, I've bought the test, but realise I forgot to ask about gluten loading & finding info on the net confusing -
My question -
DD has been eating wheat lately, but its not a huge part of our diet as its affected me too, she has been eating more lately & I'm now having her eat 3 times a day, but realise I don't know how long to do that for to get the most accurate test results
Thank you :)
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Children's health
Celiac Home Test - Help Me Get the Best Out Of This Please...
15 replies
rockinhippy · 06/03/2013 10:14
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