Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

Does this sound like it could be gluten intolerance in a Year 8 child (sorry tmi)?

(37 Posts)
isithometime Sun 03-Feb-13 21:28:32

DS tires very quickly, he is currently getting around 12-14 hours sleep a night and 7 or 8 hours after he wakes up he looks awful, puts his pyjamas on and says he needs to go to bed.

He has always had loose stools, normally 4 or more times a day. They are quite pale in colour and often float. He has to go on waking, at least once more during the day, at bedtime, usually half an hour after getting into bed and now in the night too (making the morning visit much less urgent).

His iron levels have been tested before and are relatively speaking low but within the normal range.

Nowadays it has become worse with the fatigue, his need to poo in the morning is causing him to wake after around 10/11 hours sleep and he says he feels awful and needs to go back to sleep.

To get around this he sets his alarm clock for the middle of the night (hmm), wakes up, does a poo, goes back to sleep and is then able to sleep in longer in the morning.

Thats all well and good and an ingenious solution, but he still isnt living a normal life when he is awake, within about 5 hours he is very tired and over emotional.

Do you think this could be a gluten intolerance, the tiredness is long running but worsening, the pooing is long running but worsening

isithometime Tue 05-Feb-13 09:01:50

thank you seeker, I appreiate it - some parenting choices are tough arent they

isithometime Tue 05-Feb-13 09:03:26

I suppose i mean, endless investigations wouldnt make his condition (whatever it is) worse, but if they reveal nothing they will most likely have added something worse to his life

How mature is your son?

Do you think that if you and the dr explain the options to him and allow him some input and choice he would handle it better?

FWIW I understand y you would be so reluctant to do invasive testing , no one wants to see their kid go thru that!

But you don't have to agree to anythin , you will have time to talk to him , research the test and ask on here for feed back from those who chose to have it done.

The dr may well suggest an exclusion diet first anyway. It might give you the option if it works to put off the more invasive testing til he can be more involved in the choice x

seeker Tue 05-Feb-13 09:19:26

Some parenting decisions are tough.

Not this one.

This one is a no brainer.

Ring. Now. You are being irresponsible not to get this investigated.

It seems to me that you are projecting what you think a GP will say on the situation even though you haven't even been yet! Have you had a difficult time previously? At least give them a chance to treat your son! Most people haven't even heard of CAMHS not to mention thinking their child will be referred for a real physical issue? For the sake of your son please try and get past this and give him a chance to get these symptoms assessed. There could be a very simple solution

titchy Tue 05-Feb-13 09:38:30

Jesus you're not going to your GP because you know they won't find anything? How the fuck do you know that? Are you a doctor as well?

How could a simple blood test possibly make his life worse?

Just make the damn appointment.

Agree with seeker and others.

I faff around all the time trying to self-diagnose myself - but if it's the DC it's straight to the doctors. They're not going to start poking him around like a lab rat - I know it's worrying but surely it's more worrying not doing anything about it?

2madboys Tue 05-Feb-13 09:44:53

Along the lines of 'we won't go to the GP because he won't find anything', my DH did a home coeliac test to prove to his mother that he didn't have it - you can guess the rest! In retrospect we both think he had it for at least 10 years before that. Thankfully, he doesn't have osteporosis, cancer, we were able to conceive ok, etc, but just thinking what could have been is quite scary. We have a relative in a similar situation to yours (although symptoms not quite so severe) who is completely burying their head in the sand about this issue. I just want to shake them and tell them what damage they could be doing to their child by not getting it checked out sad

landofsoapandglory Tue 05-Feb-13 09:46:39

What Seeker said. If this was my son I would have had an emergency appointment months ago.

I had problems with my hands and had one simple blood test to see why, it showed raised antibodies for coeliac, so I had to have an endoscopy to take a biopsy from my stomach. I was told by the Consultant, in no uncertain terms, not to exclude any gluten from my diet in the 6 weeks prior to the tests because it could show up a false negative.

Fortunately for me the test was negative anyway.

Please, please take you son to the doctors. He is ill, he needs treatment. He doesn't need kits from the Internet and a mother self diagnosing. He must be feeling rotten.sad

Charmingbaker Tue 05-Feb-13 12:58:34

Loose stools 4 or 5 times a day and extreme tiredness are not very early stage coeliac symptoms that mean his blood won't show an issue. Your son is exhibiting quite obvious signs of having coeliac disease, if he has coeliac it will most likely show in a blood test. It is not a difficult procedure to have a blood test done. My oldest son tested positive with hardly any symptoms at all, certainly nothing as bad as your son. If it is negative at least you can rule out coeliac.
Also as I said before coeliac can no be diagnosed by bloods alone in some cases (my youngest was diagnosed via bloods alone).
Your son needs you to take control of this situation and help him feel better.

cestlavielife Tue 05-Feb-13 15:38:27

and if it isnt coeliac it is something esle which needs treatment from propoer medical people.
DO NOT exclude anything until he has had blood tests and please come abck and tell us he has been to GP and tests have been done/ordered. he cannot like being ill. my dd doesnt like being ill or tests but she knows it is part of a journey to get to the cause and make her feel better.

we all getting a bit cross with you op because we are upset on behalf of your DS .... please please please take him now to GP and dont second guess what the outcome will be. ask for nurses or gp to explain why he needs blood tests - it is his fears or yours? if he (or you) has serious anxieties you can also get help with that too .

cestlavielife Tue 05-Feb-13 15:41:25

which tests have been done in the "2 years of investigations and being labelled as "unwell" or "in need of medical investigation" cannot be good for anyone, especially a preteen or teen" ??

or are you projecting and imagining for the next two years??

please outline all the tests which have been done and their results .

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