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Any one else got a child with IBS? Advice wanted please....

(18 Posts)
ilikesweetpeas Mon 28-Jan-13 19:41:43

Thank you very much to all of you who have posted, this is all so helpful. She hasn't had any tests so am going to leave any dietary changes for now, keep giving her the anti spasmodic, which is helping, and ask for a referral to a gastro.

Bumply Mon 28-Jan-13 08:23:57

Has your dd been tested for coeliac?
If not don't go gluten free without asking if that's a possibility, as the blood test only works if they are currently eating gluten.
It's still woefully undiagnosed (1/100 incidence in uk) and can mimic IBS.

Rainbowinthesky Mon 28-Jan-13 08:16:43

Completely agree about it being generic diagnosis. I am very dubious about it especially as dd was diagnosed with a more serious condition at same time and told both unrelated.

CecyHall Mon 28-Jan-13 08:02:14

Agree with getting a referral- my DS was diagnosed after lots of different tests to eliminate any other causes for the symptoms, he had blood tests, exclusion diets, camera in both ways.

I'll be honest I'm still not 100% sure that IBS wasn't a 'we don't really know, go away' diagnosis, bbut that might just be my overprotective mother side, we have no medication he continues to suffer, I continue to be brushed off.

BeaWheesht Mon 28-Jan-13 07:53:44

Excuse post in wrong place! I have IB myself and its awful hmm

Charmingbaker Sun 27-Jan-13 21:16:56

If you do get a gastro referral (and I would advise refusing to leave without one- I had to do this once, generally I'm quite non-confrontational, but it was one of the best things Ive done for my kids) don't exclude any food groups until you see them, some tests are reliant on still having certain foods and it can be hard to re-introduce them.

ilikesweetpeas Sun 27-Jan-13 19:08:54

Thanks rainbow and charmingbaker, that's really helpful advice, I am going to ask GP for referral to gastro and dietician. Would like to get more info an see if avoiding foods lessens the need for medication

BeaWheesht Sun 27-Jan-13 18:55:06

Ds is 6 but watches you've been framed, it's a knockout, animal programmes and anything science based.

Rainbowinthesky Sun 27-Jan-13 17:52:11

I agree re other stuff. Dd was diagnosed with other more serious stuff by gastro.

Charmingbaker Sun 27-Jan-13 17:18:44

Insist on a gastro referral, without wanting to alarm you its not uncommon for other conditions to be misdiagnosed as IBS so I would want a gastro consultant to rule these out. You should also get the support of a dietician, my DCs have a dietician ( for a different condition) and although I manage their diet fine, it's reassuring to have that support, and they are also often aware of new products and good at giving advice when eating out and travelling.

Rainbowinthesky Sun 27-Jan-13 16:14:12

She is fine with those and was tested for celiac.

ilikesweetpeas Sun 27-Jan-13 16:10:44

Thanks rainbow, so is your daughter ok with gluten and wheat which from what I've seen seem to be triggers for many?

Rainbowinthesky Sun 27-Jan-13 15:44:09

We went back and still do for reviews with gastro.

Rainbowinthesky Sun 27-Jan-13 15:43:39

Pretty much had instant effect after years of gong to a and e and GPs about pain. List was gas forming food e.g. No deep fried food, no caffeine, no choc, no fizzy drinks, no peppers, broccoli, onions, no take away, no spices, no tomatoes, no coated foods like fish fingers, oven chips etc.

ilikesweetpeas Sun 27-Jan-13 15:33:34

Thanks for such a speedy response Rainbow - tbh I hadn't thought of a gastro referral but I am going to see GP without Dd and will ask for this. May I ask what foods your daughter avoids, and does this help? It seems like everything could be a trigger and I don't want to just cut things out. The medication is helping relive her wind and therefore pain but I don't want to keep giving that, would rather find the cause

Rainbowinthesky Sun 27-Jan-13 15:26:44

I would insist on referral tbh.

Rainbowinthesky Sun 27-Jan-13 15:26:03

Dd is 9 and was diagnosed when she was 8 by gastroenterologist along with other stuff. We were given a list of foods to avoid and no medication for ibs.

ilikesweetpeas Sun 27-Jan-13 15:24:21

DD, age 5 has just been diagnosed with IBS. Her main symptoms are constipation and stomach ache. Have been prescribed an anti-spasmodic medication which is helping her but I would like to see off we can find a food trigger rather than rely on meds once she has symptoms. The constipation is a big problem. At present she eats a good varied diet. I am planning on keeping her diet the same for now and starting a food diary to see if I can pinpoint any triggers but am reluctant to withdraw a food group from a child of this age without medical advice. Does anyone have any experience of IBS in a young child? It is possible to have allergy testing or see a dietician? When the GP made a diagnosis I was too surprised to ask sensible questions! Thanks in advance for any help...

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