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7 year old chronic nausea, swollen stomach, pain after eating, always cold

(109 Posts)
SuperAmoo Sat 19-Jan-13 21:09:19

Hi just putting this out there for ideas - DD has had stomach problems all her life that we've managed at home. Mostly recurrent stomach bugs, feeling sick ( rennies have helped the past), intolerance to gluten, dairy, eggs and soya that comes and goes. Extreme vomiting has a baby up to about 10 months. She had a stomach bug on 16 Dec and was very sick, she seemed to recover but since 31 Dec she has been at home with stomach pains, hardly eating, unable to lie down flat to sleep and, especially in the mornings, turning white as a sheet or even green and nearly vomiting. She says she can't lie down flat because the food in her stomach feels stuck and it hurts. I've put her on a gluten, egg, dairy and soy free diet but it hasn't helped, instead she's getting worse. She looks so ill. In the morning when she has to get dressed, she turns blue with cold and is the same when she has to go outside. Going to talk to doc on Monday. Does this sound familiar to anyone? Really worried.

SuperAmoo Sat 19-Jan-13 22:28:19

Poor you that's awful. She only goes once a day generally but it does smell bad and it takes her 20 minutes - it's usually quite loose I think. She has other stomach-related things that make me think it probably isn't that though. She has really bad breath even just after brushing her teeth. She has violent attacks of hiccups that reduce her to tears sometimes because they hurt and her stomach sounds like it's going to come out of her mouth. And she also seemingly can't burp - even after two hours of hiccups and her stomach is moaning and groaning with all the air in there, she can't physically burp.

florry88 Sat 19-Jan-13 22:28:22

reread your post. Problems with temp control as classic with eosinophilic problems, my daughter is cold all the time and cannot stand playing in the snow etc

SuperAmoo Sat 19-Jan-13 22:35:22

Thank you florry88, I will mention that to the doc on Monday. Just read abit and it does sound quite like what she has albeit she doesn't have it so severely that she can't eat at all. And she has flare-ups - sometimes she's fine and other times she's like this.

CrazyOldCatLady Sat 19-Jan-13 22:35:33

Was reflux ever discussed when she was a baby?

Does she get rashes? Could it be something like angiodemA?

SuperAmoo Sat 19-Jan-13 22:38:46

Florry88 does your DD have sleep problems? My DD is still awake now - she found having a dummy extremely soothing and we let her have it till she was 4.5 but ever since we took it away, she tosses and turns till 10 most nights. She didn't sleep through till she was 5. And she wakes up looking like..crap basically.

SuperAmoo Sat 19-Jan-13 22:41:59

Hi Crazyoldcatlady - yes, I actually ran a website specialising in baby reflux products for three years because I had so many of the products in our house, I though I may as well sell them as well! She vomited 10-15 times after each feed as a baby. The pain she has now is around her belly button and always has been, so I'm sure it's not reflux to be honest.

SuperAmoo Sat 19-Jan-13 22:42:16

No rashes though

Push for an X-ray! Chech there's no kind of partial blockage that could be causing the pain and swelling and probably the other symptoms too. Is she on any vitamins at all?

SuperAmoo Sat 19-Jan-13 23:08:23

She used to be but lately they've started to make her feel so nauseous she's had to stop taking them.

If she's any worse tomorrow just go to hospital. It's not right at all sad better to wait three hours and sent home than miss something. I really hope that your appointment Monday can kick start the work up your dd needs. Don't be afraid to push, it's gone on
Long enough and drs aren't clued up really when it comes to allergies/ intolerances etc u may need to see a specialist.

SuperAmoo Sat 19-Jan-13 23:51:23

Thank you - I'll update on Monday.

Good luck tomorrow x

wannabestressfree Sun 20-Jan-13 19:27:02

Good luck x

Charmingbaker Sun 20-Jan-13 23:00:12

Hi, just wanted to say good luck tomorrow and don't leave your doctors surgery until you are satisfied that action us being taken. Both my boys are coeliac and have had symptoms very similar to your DD ( before they went gluten free). For both boys the GPs did nothing, even when DS1 had been vommiting daily for 3 weeks and had really obvious coeliac signs ( Kept telling me it was a virus and to come back if he was still ill in 6 weeks). I ended up refusing to leave until something was done, in my case they sent me off to A&E where they immediately realised something was wrong. Now both my sons are under a gastro consultant and the entire team are excellent. I'd recommend pushing for a gastro referral. It could also be worth trying to see a dietician, they will be able to offer support with the diet. Another thing to check is how dairy/ gluten/ soy/ egg free the foods you use are. I only know about gluten, but foods labelled gluten free are allowed to contain tiny amounts of gluten (20 parts per million) and whilst most coeliacs are fine with that, some do react to even that small amount.

StoicButStressed Mon 21-Jan-13 10:08:56

Hi Supersmile. HOPING YOU SEE THIS BEFORE GPs SO HOPE NOT TOO LATE! Right....CRITICAL immed advice, and then a couple of Q's...

NOW Am sending hugs for now, & would STRONGLY reiterate all advice above re FORCING GP for a Gastro. Consultant for referral. Stand your ground, insist on emergency referral, tell him/her you have just discovered 2 members of family FINALLY diagnosed with Coeliac (I know, lying not good, but sometimes GP's need that extra kick up the arse whilst they treat you as stupid or over-protective 'push' wink. Coeliac has a familial link, so say Aunt/Mum/Dad etc.) DO NOT LEAVE WITHOUT REFERRAL AND KNOW THAT YOU ARE NOT MAD (which, horribly, some GPs will act as if you areangry.

COUPLE OF Q'S I am NOT a GP but, without outing myself, have some knowledge of field. Please don't panic at Q's (esp Neuro ones!) as Q's are indicative of SYMPTOMS of what I'm thinking of, NOT of Neurological illness. Q's also might seem a bit random but just go with it for mo!

1) When DD gets out of bath/shower, can she dress immed or is skin uncomfortable/blotchy/v hard to get dressed straightaway?

2) Has DD had ANY Neuro symptoms? EG: Have you ever observed or she EVER reported to you (even in v child-like poss-not-making-much-sense-way) any of the following?

i) 'weird' head pain?
ii) Brain 'fuzziness'/brain-fog?
iii) Any vision disturbances - e.g. seeing 'golden rain' sheeting down across vision as she's been looking at anything?

3) Have you ever seen her fine(ish, given sounds like 'normal fine' not normal, but whatever HER 'normal' fine is), and then:

she's suddenly gone a bit grey?
appears to have rapidly worsened (in whatever way)?
almost appeared to have had a systemic 'attack' of some kind?
ever had a grey/blue 'moustache' above lip/under nose?

Again, do NOT panic here as asking the above as investigative Q's, NOT as those symptoms are - IF even present - issues in themselves.

Be good to hear how got on at docs and feel free mail anytime. Good luck at Docs and TAKE NO SH&T!!! grin thanks

How's your dd today? X

CrazyOldCatLady Mon 21-Jan-13 19:52:27

How did it go?

SuperAmoo Wed 23-Jan-13 22:16:34

Hi all, it went ...ok. Doc said yes it sounds like coeliac. Here's a script for the impetigo on her face - oral antibiotics - which I haven't given her. And here's a script for the nausea - domperidone - to quicken up her gastric empyting. Then after two to three weeks when it's settled, re-introduce gluten and then after 4 weeks we'll test her for coeliac. I am not impressed with her assuming it's coeliac and not testing for anything else. She didn't even feel her stomach. DD is awake now in a lot of pain, saying she's dizzy and it hurts when she breathes, laughs or wees. If she doesn't improve ALOT in the next hour, I'm taking to hospital and not taking any shit. Yes StoicButStressed she does have alot of the symptoms you've mentioned. Whatever that might mean.

I hope it doesnt come to
A&e but if it does fingers crossed for u that she gets looked over properly!!!

Charmingbaker Wed 23-Jan-13 22:31:29

Was it the GP who said no gluten now and re-introduce in a couple of weeks. I don't want to alarm you, but unless a gastro consultant told me that I would want a second opinion. Both my boys are coeliac, and once you take gluten out of a coeliacs diet they react much worse when gluten is re-introduced. If she already has gluten in her system they should be testing her now.
I have consistently had bad advice from GPs regarding coeliac, 1 weeks before DS1 was due to have his blood tests at the gastro consultant GP suggested I take him off gluten to help ease his symptoms, when I pointed out he needed gluten for tests to be accurate he just shrugged his shoulders.
With DS2 (who was diagnosed first), I had no joy with GP, but A&E were fantastic immediately realising something was wrong and knowing what to do, so whilst my experience of GPs has been poor when it comes to Coeliac, hospitals have been great. Good Luck

Charmingbaker Wed 23-Jan-13 22:33:28

Sorry meant to add, you can get lots of info from Coeliac UK website, and they have a phone number you can call for advice.

lisad123everybodydancenow Wed 23-Jan-13 22:35:01

Message withdrawn at poster's request.

SuperAmoo Wed 23-Jan-13 22:39:06

Thank you Charmingbaker - she's been off all grains today as I read that some coeliacs cant' cope with any gluten at all (even rice has some). In the States some doctors are calling for the definition of gluten to be changed to include rice, oat and corn gluten. So anyway, she's had no grain at all but instead of feeling better she's worse! She was already off wheat gluten when I went to see the doc so doc said settle stomach first with domperidone, then reintroduce. I haven't given her the domperidone. I can't STAND the way doctors prescribe things to mask symptoms when they haven't established the cause of the symptoms. I'm really not sure it is coeliac. I just don't know - all I know is, there is something seriously wrong but I don't know how to get that across to anyone.

super I think your right!! It will just mask symptoms of what's wrong. In a sense of a physical
Exam maybe you would be better to take her given it could be coeliac and something else or any combinations of things. sad

Sounds like drs under played it sad

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