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Wheezing into 2013 - Support thread for parents of asthmatics

(990 Posts)
Sirzy Wed 26-Dec-12 14:19:15

As the old thread is filling up I thought I would get a new one started!

This thread is for anyone with a child with asthma, or asthma type symptoms. Between us we have to much experience of inhalers, nebulisers, steroids, sats and all things asthma!

WellThatsLife Thu 29-Jan-15 13:17:08

dd had appointment with her consultant yesterday. As her peak flow has been up and down he has increased her seretide to 3 puffs twice a day(up to four if she gets really bad.). This is outside normal dosage but if this doesn't help she have to go on to daily pred which we want to avoid. I am just hoping she doesn't get the flu bug going round her school, out of about 700 kids over 200 are off today apparently and a lot of the teachers. There has been a shift in the viruses around and the flu jab may not give sufficient protection

lollipoppi Wed 28-Jan-15 20:00:30

I hope you get your results back soon Sirzy, with good news of course

Glad to hear your dd is getting better pebbles

Sirzy Wed 28-Jan-15 19:06:00

The scan is to check for any damage to the lungs and rule out any other cause for his problems

PeppaIsACowbag Wed 28-Jan-15 09:34:03

DD is doing a lot better after the pred thankyou. Hope you get good results for your ds sirzy.

lollipoppi Tue 27-Jan-15 20:28:23

What does the CT scan test for ?

Fingers crossed it's good results

Sirzy Tue 27-Jan-15 15:57:23

Yes he had it yesterday under GA. Just waiting of results now

lollipoppi Mon 26-Jan-15 19:01:36

Hi all how's everyone doing?

I've not posted for a while as DS has been doing really well and I don't want to jinx it! He has had a couple of colds and for the first time ever not been admitted to hospital with it.

Pebbles how's your dd doing now on the pred?

Sirzy has your DS had his CT scan now? Did they have to sedate him this time round?

PeppaIsACowbag Thu 22-Jan-15 18:15:48

DD started a course of pred today, wheezing a fair bit. Bloody cold weather!

PeppaIsACowbag Tue 20-Jan-15 19:26:05

Hi sirzy glad your ds is doing well. DD is ok but got bad cold and night time cough at min so were on double preventer dose and montelukast for a month. Her asthma nurse didn't want her to have another course of pred so soon after the last one so seeing how she gets on with that, plus 4 hourly ventolin.

Sirzy Mon 19-Jan-15 19:02:38

Hello all hope we are all well. DS is plodding on nicely managed to go a few weeks without major problems which is good, got his ct scan next week so hopefully that will give us answers.

PeppaIsACowbag Sun 18-Jan-15 19:42:30

Hope your ds is feeling better weazy.

PeppaIsACowbag Sun 18-Jan-15 19:40:55

Hope your ds is feeling better weazy.

Lones80 Fri 16-Jan-15 13:56:55

Sorry to hear you are back in Weazy. I hope he's feeling better now. It's been a few months since we were in (the preventer seems to be working), but I think he had to sleep unaided with a saturation of at least 92 before he could go home.

Weazy123 Tue 13-Jan-15 19:25:10

Hi, we're in hospital again. 4th time in 2 months. Thankfully he responds quickly to a couple of nebulizers and oxygen. He is asleep now with oxygen at 91 - what should it be?

PeppaIsACowbag Sun 11-Jan-15 21:50:50

How's everyones dc doing? We are just starting a 30 day course of montelukast over here.

PeppaIsACowbag Wed 31-Dec-14 21:31:39

Here here wine

Sirzy Wed 31-Dec-14 21:08:37

Yes it's settled thankfully.

Here is to a healthy 2014 for all our little ones

PeppaIsACowbag Wed 31-Dec-14 20:54:50

How's ds temp sirzy? Hope he's settled down now.

Hope your ds is better too tortoise. It took me a while to get DD a diagnosis of asthma, she had 6 chest infections in a year and they still wouldn't look into it, not until she had her first attack.

Can I just thank who gave the tip to do countdown then blast off really helped me get DDs pumps down smile

Sirzy Tue 30-Dec-14 17:54:53

Hopefully the increased steroid inhaler helps.

DS was doing better but finished antibiotics and has a low level temp at the moment so keeping a close eye on it for now

TortoiseInAShell Tue 30-Dec-14 13:24:23

FWIW the GP said not asthmatic, just bronchiolitis, so he's been treated accordingly. So looks like I didn't come to the right place here at all after all.

PeppaIsACowbag Tue 30-Dec-14 12:44:39

She's doing ok thanks sirzy, still a bit wheezy though even after ten pumps of ventolin. Her asthma nurse has increased her steroid pump to 4 puffs morning and night so seeing if that helps.

Has your ds chest infection cleared up yet?

Sirzy Sat 27-Dec-14 15:21:04

Sounds like typical asthma you are describing. I would push for a steroid inhaler (like you said beclemathazone is the normal starting point) and then if that doesn't work (or the GP says no) then insist on a refferal to a peditrician.

TortoiseInAShell Sat 27-Dec-14 15:09:40

Hi parents of asthmatic children - I apologise for not reading the tread but I saw you've reached the 900+ mark and it will take me forever! I don't know if I qualify to put in an appearance as my barely 18 month old hasn't been diagnosed asthmatic, but since his first winter he has suffered repeated bouts of chesty coughs and wheeze. I think at times we've also had nocturnal stridors, but each time I take him to the GP (which is a LOT!) we are sent away with different antibiotics and prednisolone.
I'm always grateful to at least get that because it dampens down the cough and reduces the wheeze, but this winter it is much worse and simply won't clear up completely.

I've had it suggested to me that I don't take no for an answer and worse than that, if he is not treated correctly, he could have lasting lung damage. I feel awful for finding this out because I have worked so hard to constantly pester the GP for continuous steroids and antibiotics, and I had no idea I could be seriously letting him down by accepting this from the GP. hmm

So I came to the child health thread to talk to the real experts on the ground. I want to be armed with information on Monday and so I can fight my case well.

I wonder if anyone can tell me:

He often vomits when he coughs, is that specifically whooping cough or can it happen with asthma?

He is on atrovent and ventolin which I give 3 times a day. I was told give one puff but to be honest I give two because he struggles with the aerochamber and we only get about 3 or 4 breaths each time.

I wondered when they might prescribe beclomethasone inhaler and not atrovent, I know there was talk of salbutamol being unsuitable for infants as it isn't proven to work, but they gave it anyway, yet haven't given steroids except orally.

Is there anything else he should have?

Do your DC rattle much worse after eating and drinking? And do they keep getting runny noses every 3-4 weeks as though an infection keeps popping back up regularly and just isn't being controlled?

Sorry for all the questions, please be kind! I know I have probably foolishly accepted what the medics told me and so trusted their direction, when you all probably would have fought from day one. FWIW I thought I was fighting but constantly going back to them for more prescriptions. I want to go in with as much knowledge as I can next week. Thanks in advance.

Sirzy Sat 27-Dec-14 07:45:00

How is she peppals?

DS is currently on his second lot of antibiotics/steroids for a tough to clear infection but it seems to be working.

PeppaIsACowbag Thu 25-Dec-14 14:47:15

Hi hope you are all having a great Christmas. DD is struggling today keeping it under control with ventolin at the minute but fearing a hospital trip later sad

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