Mumsnetters aren't necessarily qualified to help if your child is unwell. If you have any serious medical concerns, we would urge you to consult your GP.

Oh god hold my hand.

(284 Posts)
OpheliasWeepingWillow Wed 12-Dec-12 16:04:04

Am in Asia and about to sleep but neurologist says dd who is in hospital (10 months) has delayed brain development. This is in conjunction with failure to thrive and a flatlining curve. They are looking at metabolic and genetic disorders and I am beside myself. Couldn't find Special Needs on my stupid phone.

Spinal tap tomorrow I think.

So scared. She is my world.

QODRestYeMerryGentlemen Wed 12-Dec-12 16:05:07

((((Holding your hand))))

hellhasnofurylikeahungrywoman Wed 12-Dec-12 16:06:33

Holding your hand tightly.

JKSLtd Wed 12-Dec-12 16:06:39

And me.

I have ds2 with delayed development now nearly 5 and doing very well at an sn sch. Hope that tests lead to some answers for you.

MammyKaz Wed 12-Dec-12 16:07:51

Giving your hand a big squeeze Ophelia.

It must be really worrying. The waiting to see what's wrong is often the hardest part. I hope you get some answers fast. Sending lots of wellness vibes to both DD & you.

Lougle Wed 12-Dec-12 16:09:27

www.mumsnet.com/talk/Special_needs - hand holding wherever you post.

Lougle Wed 12-Dec-12 16:10:12

www.mumsnet.com/Talk/special_needs that link again, sorry.

minmooch Wed 12-Dec-12 16:13:36

Holding your hand here too. I hope that you get some answers soon. I hope also that you have some RL support too.

<some more hand holding>

BeaWheesht Wed 12-Dec-12 16:24:52

Thinking of you

cappucinogirl4 Wed 12-Dec-12 16:26:15

Hand holding here in West Yorkshire.Hope you get some answers soon.

bishboschone Wed 12-Dec-12 16:28:31

We are going through a similar thing .. It's very scary .. We can hold hands together.. - holds out hand --

Hand holding from us in Scotland xx

bishboschone Wed 12-Dec-12 16:32:07

That wasn't supposed to be crossed through sorry blush

holding hand from Liverpool. Hope you get some answers soon. x

dikkertjedap Wed 12-Dec-12 19:41:22

Holding your hand.

Wishing you lots of strength after all what you have already been going through.

<hugs>

Hugs.

dm1mum Wed 12-Dec-12 20:55:43

Thinking of you. I hope you have some RL support there and that you find out more soon.

Pantofino Wed 12-Dec-12 20:57:09

Holding your hand too. Hope you soon find out what you are dealing with and can put some positive action into place.

Minichristmas Wed 12-Dec-12 20:59:16

Lots of people thinking of you. Praying it goes well. Hug

Hand holding, sending lots of strength <hugs>

JustFabulous Wed 12-Dec-12 21:05:57

I am such a wuss. Teary at all you lovely women offering support.

OP, I hope things aren't as bad as you fear and that your DD is okay.

marriedandwreathedinholly Wed 12-Dec-12 21:08:13

With love and prayers. At 7 months ds wasn't thriving and had had four hospital admissions for respiratory probs. He had all the symptoms of cystic fibrosis and although the sodium test was -ve he was referred to the Royal Brompton for further tests.

He is almost 18 and 6'2" so sometimes these things are not as bad as one thinks or as the doctors say.

Fingers and toes crossed OP. Good luck. Come back and back so we can carry on holding your hand. xxxxxx

Squiglettsmummy2bx Wed 12-Dec-12 21:09:07

Hugs x

kasbah72 Wed 12-Dec-12 21:17:08

More hand holding from here.

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