19 month old still not walking or cruising but Dr can find nothing wrong with her! Any advice?

(118 Posts)
inadreamworld Tue 13-Nov-12 19:36:49

Hi - not sure if I am going to get any replies to this as I don't know anyone in my situation.

My 19 month old DD has been crawling since she was 12 months old. She was late rolling, sitting up and crawling but in all other ways is perfectly fine in her development. She is now just turned 19 months old and has never pulled herself to stand, never cruised round the furniture and certainly never tried to walk.

She crawls everywhere very fast. I have obviously been to the paediatrician at my local hospital. She has had blood tests for all possible muscle diseases/genetic diseases - all clear. Nothing wrong with her hips/knees/legs - they checked them out. She can actually stand up if you pull her up by her arms but she doesn't want to do it. The longest she has stood up for is when I made her hold on to a chair whilst standing to look at my Mums cat which was sitting on the table (she loves the cat).

All the paediatrician said is 'she might be a bit hypermobile'. She has been referred for physiotherapy at my local clinic (have appointment in a few weeks) but I just can't see how they will get her to walk when she doesn't even want to try!! Has anyone been in this situation - I know of children her age who are pulling up/trying to walk at her age but DD is not interested at all in trying and even has tantrums when I try to make her. Apart from this problem she is a chatty (over 20 words) bright and lively little girl. Advice really needed!!!!

inadreamworld Fri 01-Mar-13 23:27:16

Oh to answer your question Nancy the Dr didn't really say why he wouldn't give her the boots just kept saying there is nothing else wrong with her and kind of vaguely hinted she might get the boots a long time in the future if she didn't start walking.

Nancyclancy Sat 02-Mar-13 00:05:25

Congratulations on your new baby!

No, my dd ankles don't bend over. She stands perfectly straight. I got the boots as I just felt they were more secure for her and held her feet and ankles together more.
We've got a follow up appt at the physio next week. She's been seen once but they said there was nothing they could do for her as she seems fine. They said she lacked a bit of muscle tone but that was just because she wasn't moving much and they would build up as she uses them.
She definitely sits better now.

As far as socialising goes, she loves seeing people in supermarkets, adults and older children. Just other toddlers!

inadreamworld Mon 04-Mar-13 09:14:37

Nancy If her ankles are straight it looks hopeful for her to be walking soon surely...??? I started a thread in special needs about special boots for hypermobility and a couple of lovely people offered to send me their childrens grown out of boots for DD. So will try the boots and see if they work.

Charlz26 Sun 10-Mar-13 16:36:54

Hello everyone. I saw this post online and joined this group just so I could respond. First off nancy I know exactly how you feel and you are not alone. I don't really have advice for you but I am in a similiar boat..My DD is 18 months. She does not walk. She pulls to stand crawls etc but always met all her milestones later than other kids but we are seeing progress. She starts early intervention in a few months. I've taken her to many doctors including a ped recently who virtually said they did not know if it was anything serious or not. She is due to do a development test in the coming months. I often wonder about muscle tone problems. her arms seem overly flexible at times, and sometimes her Legs can seem to stiff. my oldest child was very advanced with Everything, however at age 3 still has turned in feet. There dad is rather tall, ( don't know if that has anything to do with it) and I am flat footed. The social worker who attended my home to assess my youngest said that she could be flat footed. I'm hoping and preying its something fixable like that. But at the same time if it's something more complex I suppose it's just. Matter of taking one day at a time. My daughter has been practicing to actually let go of furniture with one hand and stays standing for 2 seconds then drops to her bottom again. I've spent many nights awake worrying about her. but I've realized that does not help. The most greatest reward of having a child that is a little behind others, is that when they do make a slight improvement or new achievement, it really just means the world to us parents! Good luck with your little one and please do keep us posted. I'd love to hear how she goes.

Mummy from Australia <3

Charlz26 Sun 10-Mar-13 16:39:33

Hello everyone. I saw this post online and joined this group just so I could respond. First off nancy I know exactly how you feel and you are not alone. I don't really have advice for you but I am in a similiar boat..My DD is 18 months. She does not walk. She pulls to stand crawls etc but always met all her milestones later than other kids but we are seeing progress. She starts early intervention in a few months. I've taken her to many doctors including a ped recently who virtually said they did not know if it was anything serious or not. She is due to do a development test in the coming months. I often wonder about muscle tone problems. her arms seem overly flexible at times, and sometimes her Legs can seem to stiff. my oldest child was very advanced with Everything, however at age 3 still has turned in feet. There dad is rather tall, ( don't know if that has anything to do with it) and I am flat footed. The social worker who attended my home to assess my youngest said that she could be flat footed. I'm hoping and preying its something fixable like that. But at the same time if it's something more complex I suppose it's just. Matter of taking one day at a time. My daughter has been practicing to actually let go of furniture with one hand and stays standing for 2 seconds then drops to her bottom again. I've spent many nights awake worrying about her. but I've realized that does not help. The most greatest reward of having a child that is a little behind others, is that when they do make a slight improvement or new achievement, it really just means the world to us parents! Good luck with your little one and please do keep us posted. I'd love to hear how she goes.

Mummy from Australia <3

Charlz26 Sun 10-Mar-13 16:46:42

Sorry I thought the owner of the post was nancy! I obviously wasn't reading properly I meant to "Inadreamworld" that you sound as if your going through the same as I am with my DD at the moment x

inadreamworld Sun 17-Mar-13 11:38:45

Hi just an update - a couple of lovely mumsnetters sent me piedro boots that their children had grown out of because I posted a thread in special needs asking about boots. Now DD is able to walk holding one hand!! She is also a lot better at walking without the boots - she walks holding two hands when not wearing them. Her ankles are still a bit bendy when not wearing the boots but they seem to be straightening out a bit. She has only had the boots for a week so I am hoping she will take her first steps on her own by the time she is two (in 3 weeks!). Sometimes she gets tired and wants to go back to the knee walking - all her trousers have holes now at the knees!!!

Nancyclancy Sun 17-Mar-13 21:27:24

Yay!!! That's excellent progress, fingers crossed she'll be there by her 2nd Birthday! But even if she isn't she'll be very close.
We saw the physio last week ( follow up appt.) She was really pleased with dd progress and is confident there is no physical reason for her not walking.

She's still not pulling to stand, but is definitely thinking about it. She's constantly rolling around and moving now. Her whole way of moving is so different now. She's much more stronger. So I think she lacked muscle tone in general and is now building herself up.

I don't think she'll be walking by her first birthday ( early May!) But she has made good progress in the last few weeks - so maybe!

All the knees on her clothes are perfect, it's the bum she's wearing out! grin

Charlz26 you are right, when our dc finally get there it will mean so much more. Everyone we see, always asks after dd. so when she eventually gets there, the whole village will be excited!

Nancyclancy Mon 01-Apr-13 21:55:54

Well, this evening my dd (about to turn 23 months) STOOD UP for the first time!!! grin
We were sitting on the sofa watching tv, as she played on the floor. She came over and pulled herself up onto her knees. We weren't really paying any attention. Then I just happened to look over and there she was STANDING!!! Hallelujah!

inadreamworld Mon 01-Apr-13 22:12:41

That's great news Nancy!! Is she standing normally? No bendy ankles?? Am sure she will be walking in no time!!!

My DD will be two in just over a week. She is now walking holding on to our hands and can walk holding on to one hand - but no sign of doing it on her own yet. It all happened due to the special boots sent by a lovely couple of Mumsnetters!! She can walk holding on without the boots now but her ankles seem wobbly and bend a bit to the side. This is the hypermobility the paediatrician was on about I suppose.

Nancyclancy Mon 01-Apr-13 23:12:25

Her ankles are fine, she stands perfectly. When she pulled herself up to standing she was in a baby gro, so no shoes.

The hardest and most frustrating thing is, she won't accept help. She pushes all toys that could help her away and when we offer our hands to help her, she shakes her head and says no.

She can get herself off of the sofa into the standing position. Then she'll walk up and down the length of the sofa, but sideways like a little crab.

The physio came to our house to see how she was getting on a couple of weeks ago. She can't find anything wrong and that it really is a case of waiting.

We seem to have had a lot of conflicting advice regarding shoes. The physio and one paediatrician were against putting my dd in anything, yet another insisted we get her a pair. I personally think they give them more grip and support. Are your dd's ankles less bendy with her boots on?

inadreamworld Tue 02-Apr-13 18:31:54

The boots completely remove the bendiness so in the boots DD walks quite normally. Without them she walks on the outside of the bottom of her feet as the ankles are not quite straight. Physio says as the muscles strengthen to compensate for the bendy joints she will walk fine - hope this is true!!!

Waferthinmint Tue 02-Apr-13 18:35:50

21 months here. Crawled from 6 half months. One day she just got up and walked. Bizarre.

inadreamworld Tue 02-Apr-13 22:01:05

Wafer you mean she was crawling from 6 months until 21 months???!!

Waferthinmint Wed 03-Apr-13 09:30:43

Yes. Occasional pulling up on tables but certainly no 'cruising'. I honest,y believe she just couldn't see the point of walking! Her crawling was fast and effective. The GP and Hv were not at all concerned

inadreamworld Sun 07-Apr-13 22:15:07

DD took eight steps on her own today!! I don't think she realised that no one was holding her hand. She will be two in two days. I think 2nd hand piedro boots sent by a couple of lovely Mumsnetters have helped enormously.

Nancyclancy Sun 07-Apr-13 22:48:45

Hooray!!!! Those boots do seem to be helping. Maybe I should get my dd a pair. Her ankles and legs seem ok but they've got to be worth a go!

At least now you know your dd can do it, it's just the confidence. 8 steps is a fantastic start!

I had one of those days today where I've felt my dd is never going to walk. I took her to our big local park and she really wanted to get down but I couldn't let her bum shuffle on the concrete. She got really angry with me and had a screaming fit in front of everyone.

I hope it's not going to be too much longer. She's 2 on the 4th of May, but I'd be surprised if she is walking by then.

inadreamworld Mon 08-Apr-13 22:58:43

Hi nancy - getting the boots can't hurt but if your DD is just not interested in walking they won't help. But if it is because her ankles need support then they will help of course. However am sure she will get interested in walking soon - keep me posted - DD still goes round on her knees mostly but I hold her hand and make her walk properly as much as I can.

Housewren Wed 10-Apr-13 16:04:18

Hi
I have been looking for a information and found this thread about late walkers etc.
a bit of background; my son is 16 months old and is not standing let alone walking. He had torticollis (tight muscle on one side of his neck) as an infant along with plagiocephaly (flat head) both of which went undiagnosed for 7 months, I was constantly told his head position was normal. He had some physiotherapy about 6 sessions but due to billing (I currently live in the USA where there is only private healthcare) we had to stop going, plus they stopped being helpful.
These have lead to a delay in reaching gross motor skill milestones so he sat unsupported around 9/10 mth and he bum shuffled at about 14 mth once he learnt to get around he was no longer interested in trying to stand, if I helped him he would pull his legs up or just sit down.
After reading this thread I have put him in a pair of sturdy shoes as I think his ankles seem very bendy and weak and borrowed a walker to get him used to being in a standing position both of which seem to have helped. I don't think he has any obvious low muscle tone but he seems to take a long time to build up muscle to do big skills like the sitting etc.
So this long ramble is really a big thank you to everyone for posting their challenges and solutions as it has helped me and my son a lot

Nancyclancy Wed 10-Apr-13 17:36:04

That's really lovely Housewren it's just so reassuring knowing that there are others in a similar situation.
It's interesting that you've mentioned your sons head, because to begin with I wasn't concerned that my dd wasn't walking but she seemed to lack the general movement that babies have. She was quite stiff and although she was sitting at about 7 1/2 months, she couldn't roll until she turned 16 months. She couldn't get from laying down to sitting until 20 months.

Everyone kept saying that she'd do it in her own time, but I felt if she couldn't do the most basics, how could she possibly progress?
So, I took her to a Cranial Osteopath on the advice of a friend. I was a bit hmm at first.
But I do feel he helped release tension and he commented on her flat head. I did notice this but I hadn't thought it was particularly flat. Also my dd has alot of hair. He said that head shapes can be linked to the delay of gross motor skills in some cases.

We haven't been for a while because he's not cheap but I do think it was worth while. My dd rolls about all over the place now and does everything really except walk. It's not until I read back over this thread that I realised just how much our children have come on.

I think my dd was set back by general lack of muscle tone and is now simply catching up.

Housewren Wed 10-Apr-13 18:26:38

I was considering taking him to a chiropractor to see if that helps, as he seems to wants to extend more than flex and his general slow progress. he had to wear a helmet for 4 months to correct the plagiocephaly, it helped a lot but there is still a flat spot, he also had a lot of hair but his plagiocephaly was so significant that his skull basically shifted forward on one side, his ear and eye also moved position and his forehead bilged on one side, he is much better now and if you didn't know he had had a problem you couldn't tell.
I get a lot of the he will do it in his own time, which does not help at all,
It is definitely reassuring to hear other people have the same or similar challenges and managed to find solutions. He is still in his shoes atm and he is wanting to stand for short periods of time so I think I will continue doing the exercises in them an dose how we get on.
I am glad to read that yours is progressing well.
Xx

inadreamworld Sat 13-Apr-13 19:37:31

Hi I am the OP!! Wanted to update DD WALKED TODAY ON HER OWN ALL ROUND THE GARDEN!!! SHE ALSO GOT UP FROM SITTING TO STANDING WITHOUT NEEDING TO PULL UP ON ANYTHING!!!! SHE LOOKS SO PLEASED WITH HERSELF!!!!

She has had the support boots for just a month and I think they have helped massively. She should have had them earlier really but I believed the doctors when they said she didn't need them. Lovely Mumsnetters sent me their DCs hand boots for her and I will be buying new oned when she grows out of these. Even without the boots she can walk but is less confident and her ankles still a bit bendy but they are straightening out a lot.

Housewren glad this thread has helped. Do try her in the boots to see if they make a difference. I have also met another Mum in real life who has a 20 month old girl who is not walking. So it is not as unusual as we imagine.

holidaysarenice Sat 13-Apr-13 19:46:44

I used to be a physio with kids and lots didn't walk to this age, but I can understand why you haven't noticed others.

The pushing toys on her knees is a good sign! Its seen as a step between crawling and walking. Get her doing lots of this and lots of sitting at a low table playing, sitting on her knees (tall sitting). If she's reaching for things she is playing with, she won't notice as much that she's having to get higher on her knees etc.

Yes yes to sturdy shoes too, little ankle boot types are good for support. Geox and kickers are good.

And swimming all the time.

Hope it helps - I'm sure your physio will be ace.

holidaysarenice Sat 13-Apr-13 19:49:22

I've just read the rest of your posts! Just ignore mine its not relevant now!

Well done to your little girl!!!

inadreamworld Sat 13-Apr-13 22:40:19

Thanks anyway holidays it is helpful to know that DD is not alone in walking late! She did walk on her knees all the time and still does it sometimes even now she can walk unaided - because at the moment she can go faster on her knees than she can on her feet.

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