AIBU in thinking that Mumsnet needs a Chronic Pain Board

[Ouchwtfthistime]

Because we need to talk about:

1. Denial

1. Loneliness. Chronic pain seperates you from others.

1. Grief at adjusting to such a different life than expected.

Guilt. That I can't be the wife and mother my family deserve.

1. Fear. Not knowing if today will be a good (slightly less agony) or bad day.

1. Support no one understands the living hell it can be.

Spoons...why do I keep running out of spoons?!

And PIP

Yes please.

1. Ways in which you can learn to have a good quality of life despite the pain. (After 9 years I’ve got good at this via rigorous pain management )

I'm blessed to be free of my pain now, but in the midst of a long, long issue, I could have done with real help with pain relief options. Choosing on the hop in a 10 minute Drs appointment wasn't great.

1. Depression. Which everyone's response is "what do you expect?"

Inc. feeling a burden and your existence is worthless e.g. Especially related to why out of work.

The depression really gets to me, both for my CRPS and other conditions because it's totally normalised. Even when it's severe

Awareness.

According to google 28 million yes million people live with chronic pain the UK. Pain lasted more than 3months.

Number of vegans 600k (nothing against vegans but they have own board!

X-post make mine 7!!

Diagnosis.

Why does it take so long and why don't consultants listen?

8

Because if you get it, you get it.
I bloody wish 2 paracetamol and a bit of relaxing whale music would sort things out for me.

(Much less important than the points above!)

Place for people who love people with chronic pain to talk and learn about it.

Railing about (lack of/stress with) public services

I’d really like a chronic pain board waves at Mumsnet HQ

Living with it is SO isolating and I would love to have others to talk about it with. Family and friends are supportive (to a point) but don’t like burdening them. I’d rather burden strangers on the internet

If you ever talk about your pain relief you are told that you must have a codeine addiction because you refuse to stop taking your painkillers

I can't keep track of what number we're on but

So that we can discuss the challenges of coming off pain medication prior to TTC and discuss how to manage pain effectively whilst pregnant without being judged by those who don't get it for being a Mum with chronic pain.

@DunravenBadger

I can't keep track of what number we're on but

So that we can discuss the challenges of coming off pain medication prior to TTC and discuss how to manage pain effectively whilst pregnant without being judged by those who don't get it for being a Mum with chronic pain.

Yes to this!

Understanding. Most people can't fathom (and are frightened to find out) how debilitating living with chronic pain is. To be honest that would have been me before. Now when I say blow drying my hair was my biggest achievement today people don't get it as before I was superwoman who could have done that in my sleep whilst multitasking.

In real life people stop asking how you are because same old same old. Or you get used to hiding it because others can be less than sympathetic or you are just making a fuss.

I agree

The sheer relentlessness and people slowly dropping out of your lives as you can't socialise

Love to hear why people thinks it’s an unreasonable request. When it’s something affects millions of people, please enlighten us why it’s such a bad idea.