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AIBU?

15 weeks Monday and high screening for downs

8 replies

Stacy653 · 10/08/2019 18:14

Hi all,
I’m a mom of two girls, and was so overwhelmed to find out I was pregnant after 11 year gap, I’m 35, and my partner hasn’t got any children.
We had a routine scan and bloods taken.
The nt was 2.2 but my bloods was showing increased risk for Down syndrome.1/95.... we was offered a cvs but unfortunately baby was up front and placenta behind. However they did notice a leaky heart valve, We was then offered an nipt test which we paid for, results come back as high risk. Got to go for animosities on Monday at 9am, anyone else going throu this? Feel like my whole world is upside down.

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BeanBag7 · 10/08/2019 18:16

Sorry you're going through this, there is probably a board more suited for this sort of discussion in the pregnancy topics. Good luck x

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Stacy653 · 10/08/2019 19:33

Sorry didn't know thank you

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mcmen71 · 10/08/2019 19:47

Hi My silly went through all this they offered to terminate pregnancy thankfully she refused. They where told very little chance off survival but thankfully 6 years on he is thriving he does have down syndrome but makes him so loveable.
He had valve problems on heart and got operated as 1 week
So although it is a worry for you now
You will be blessed with a child.
Make the best decision for you and baby.

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Pimms0clock · 10/08/2019 20:20

Hi OP,

This must be such a shock for you and not the outcome you were expecting. I have no experience but can I recommended you have a read of m.facebook.com/dontbesorry2/
Sarah situation is different to yours but she will happily answer any questions you may have.

Big hug x

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DinoGreen · 10/08/2019 20:57

Hi OP. I had a TFMR a few weeks ago (I was 14 weeks) after a diagnosis of Down’s. I have a 3 year old DS already and my DH and I did not feel equipped to cope with bringing up a child with potentially significant disabilities, one of the biggest factors for me was the impact on my DS both now and in the future, as an adult having to take responsibility for his sibling when we are gone. It’s a very personal decision and very difficult. I found speaking to ARC very helpful.

www.arc-uk.org/

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Stacy653 · 13/08/2019 07:22

@dinogreen
Thank you will look into this.

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Raver84 · 13/08/2019 07:29

I've been through the same and I found ARC really helpful as pp has mentioned. Please speak to someone there.

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Gilbert82 · 13/08/2019 07:48

I have a child with Down syndrome, if you have any questions feel free to send me a message.
Also please remember even if your baby doesn’t have DS there are no guarantees that a “perfectly healthy” baby will not go on to have additional needs, autism, Aspergers etc. Wishing you all the best for the rest of your pregnancy whatever you decide x

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