This may not be new news to many of you, and it also 'potential' good news. Having been close to the peanut addenbrookes study and had our lives changed, I am always keen for any news of progress and development.
A parent I know tried to gain access to the studies but was told their child was currently too young which is tough news to take. However, they were also told the chances are the programme will be far more widespread, even on the NHS within 2 years.
Like I said, you may already know this and like any new therapy it could all change. However, I think it's amazing and the man in charge it a lovely genius.
Hope everyone is well xx
I have a niece who has a severe nut allergy so any positive news is always welcome.
babybarrister
Sun 29-Jan-12 07:09:56
Is this the desensitisation programme?
To add to the good news, they're also continuing studies to work out why the trial didn't work for a small number of participants.
I live in Cambridge and recently took my dd (aged 2) to Addenbrookes allergy clinic where she was diagnosed with a peanut allergy. We were told that by the time she has finished primary school she will almost certainly have had the chance to be desensitized. I know that the current trial are only taking kids who are 7 and older.
It's amazing progress from where we were 3 years ago, totally changed life and I'm extatic so many other kids and hopefully adults will be able to reap the benefits as our family has.
These studies are very interesting but am I right that they are only for peanuts? Does anyone know if there is anything similar proposed for other nuts?
babybarrister
Mon 30-Jan-12 12:11:43
DS has been offered dogs FWIW
babybarrister
Mon 30-Jan-12 12:12:45
also weta ds is doing milk - this is in France
alison222 - from a webchat Dr Andrew Clark (who runs the peanut immunotherapy study) did on MN in April 2010:
Many of you asked about other scenarios where immunotherapy could be used, for adults or in tree nut allergy for example. We are planning to study tree nut immunotherapy in the future, but this will be done after we have become confident that peanut immunotherapy is worthwhile and safe, so not for at least three to four years and then we will need to run similar studies. Immunotherapy against multiple nut types is going to be more complex and expensive, but it affects a third of nut allergic children so we do intend to pursue it.
here
I suspect ds will be too young to take part in any future study - he's only just coming up to a year old - but I am hopeful that in the future desensitisation will be available for his tree nut allergy.
thanks for the link.
I will look out for progress. Ds is now 11 so the allergies clearly are not going anywhere soon
Weta
Mon 30-Jan-12 18:16:28
Actually we're in Luxembourg but yes we are doing it for milk. Two years ago DS1 reacted at 0.75 ml of boiled milk, and he's now up to 200 ml a day, which is amazing. Next step is 250 (in a couple of weeks) and then we move on to yoghurt (home made with boiled milk).
Thanks so much to BlueBumedFly for her example, it really helped to give me the strength to attempt this!
topiarygal
Wed 01-Feb-12 14:47:50
starting grass pollen immunotherapy this year and tree pollen next year - yah! Feeling an element of control which has been wildly absent for the past 5 years ...
Ah Weta wow!! That is so wonderful and if we did anything to prod you in the right direction the all kudos to you for going for it. Keep us informed - all good new and progress must be shared for all our sanities!
Threads like this give me so much hope for my DD's allergies in the future. My DD is 22 months and allergic to milk, egg and nuts and I hope that one day she can be involved in somthing like this....weta I had no idea that it was possible with milk, thats brilliant.
I always hope that my DD will grow out of some or all of her allergies, but if not, at least there is lots of studies and research going into it now to give us hope for the future. My DD has a very varied diet so I dont feel that she misses out...what I want is less worry for us all, the ability to eat out more etc without worrying about cross contamination.
Sorry for my pointless post, just wanted to say it makes me feel a little better about things as I feel so anxious alot of the time about it all.
Allergy board posts are never pointless, we share and we care, that's what makes it the best part of MN in opinion.
