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Here are some suggested organisations that offer expert advice on special needs.

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31

Shineyshoes10 · 12/02/2016 14:44

OP's posts:
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Shineyshoes10 · 15/02/2016 19:35

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AgnesDiPesto · 15/02/2016 17:53

I would challenge 5 hours on the basis of CAMHS advice - guidance linked to above is clear its a collective decision not a lowest number trumps all. Ask for a meeting with paed and camhs to sort out their differences. You could for e.g. suggest a trial of increasing hours gradually and get paed / camhs to sign up to monitoring the impact. (suspect paed won't want to get involved in lots of meetings and on going monitoring) Ask for evidence the LA has sent the camhs advice on 15 hours to paediatrician or that the two have spoken about it.
Also apply for your child to have a social care assessment and you to have a carers assessment - contact a family have leaflets explaining process - that way you could access some respite that way.
the 5 hours should have started after 15 days

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Shineyshoes10 · 14/02/2016 11:52

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GruntledOne · 14/02/2016 10:30

I know a mum on here who covered the whole of the primary plant curriculum in one day at Kew gardens with her son!

But the point is that that isn't going to happen with one hour a day's tuition, is it, Ineed? And there is more to covering the curriculum than you can do in one day, otherwise the information learnt is never going to be embedded.

Absolutely for some children a mainstream school environment doesn't work, but for some they are going to go back into that or a special school and, as OP says, they need not to lose the habit of formal teaching and learning.

I don't think this has to be an either/or. OP's child is entitled by law to more than five hours a week, it cannot be assumed that the whole primary school curriculum including proper SEN support such as therapies is going to happen within that period, I can't see any reason not to push for as much tuition as he can cope with.

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Ineedmorepatience · 14/02/2016 10:24

Good luck with camhs I hope they are helpful!

Dont take your hat off to me! For me home ed is the easy option, fighting to keep Dd3 in school nearly broke me!

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Shineyshoes10 · 13/02/2016 21:30

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Ineedmorepatience · 13/02/2016 20:53

Sorry that your little boy has had such a difficult time! I am not the right person to talk to you about putting him back into school!

Dd3 is supposed to be going back in from yr 10 which is 18 months away but at the moment I dont know how that is going to work! We will have a lot of planning to do! For now we will carry on doing what we are doing because we are happy and its working!

I agree with bbkl about leaning on CAMHS to help you, LA's do do the minimum and often need pushing hard to do more than that!

I still stand by what I said earlier about being mindful about how intense one to one tuition could be!

Good luck whatever happens Flowers

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bbkl · 13/02/2016 20:38

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Shineyshoes10 · 13/02/2016 20:37

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Ineedmorepatience · 13/02/2016 20:19

That could well be right knitting! Sad

Dd3 visibly struggles if she is in a situation that looks or feels like school to her! Its horrible to see!

Luckily she doesnt self harm but I do think it is only by luck! I think we got her out just in time!

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knittingwithnettles · 13/02/2016 19:46

He probably doesn't want to go out, because he associates it with going to school Sad

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knittingwithnettles · 13/02/2016 19:40

*it won't harm his education in any way, he is little and has time on his side" - this.

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knittingwithnettles · 13/02/2016 19:38

I agree with you INeed.

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Ineedmorepatience · 13/02/2016 17:55

I know a mum on here who covered the whole of the primary plant curriculum in one day at Kew gardens with her son Gruntled! You wont ever convince me that children learn more in school than they do at home, whether they get one hour intensive tutoring or 5 hours of sensory bombardment, a bit of shouting, several lots of moving around to different places, confusion and goodness only knows what else!!

I am completely and utterly disillusioned with the system and I dont think there is anything you could say that would make me change my mind!

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GruntledOne · 13/02/2016 16:11

No-one thinks young children should be getting sufficient tuition to pass A levels, and obviously a child who is ill should only do as much as he or she is able to cope with. However, if the child can cope it remains the position that five hours a week is grossly inadequate. You only have to stop and think for a bit about all that is covered in the primary curriculum, and bear in mind that if the child is to go back in school he needs so far as possible to have covered the same ground as his classmates, otherwise the return to school may well be doomed to fail anyway because he will hate the fact that he is so far behind.

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Ineedmorepatience · 13/02/2016 15:33

Sounds like you are doing a great job shiney! We took Dd3 out of school in June 15 to home ed her, she was very low and wasnt coping at all. She had just transitioned to secondary.

Keep doing what you are doing! The system moves slowly but you can use this time to give your Ds some time out! It wont harm his education in any way, he is little and has time on his side.

Good luck Flowers

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Shineyshoes10 · 13/02/2016 15:08

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Ineedmorepatience · 13/02/2016 13:34

And for a child with MH issues who clearly isnt coping in school so probably isnt learning a fat lot anyway!!

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Ineedmorepatience · 13/02/2016 13:32

I dont mean enough to pass A levels!! I mean enough to cope with for now for a child with mental health issues!!

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GruntledOne · 13/02/2016 13:13

Five hours a week is highly unlikely to be enough. With all the timewasting in the world, how can one hour a day be equivalent to five hours in school?

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Ineedmorepatience · 13/02/2016 12:48

One thing you should bare in mind is how intense one to one tuition is going to be!

Schools waste a huge amount of time in between the teaching so although 5 hrs isnt a lot and I do agree that it isnt a lot, it could be enough! Especially as it is a stop gap while you wait for a specialist school and while he is unwell anyway!

Maybe you could use some if the spare time to visit places while they are quiet during the day and get out and about to have some fun and improve his mental health!!

Good luck Flowers

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GruntledOne · 12/02/2016 23:34

I think the 5 hours came from the previous version of the guidance. However, what that required was a minimum of 5 hours a week. A lot of LAs chose to interpret that as meaning that was all they had to provide, and they still do.

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Shineyshoes10 · 12/02/2016 23:29

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GruntledOne · 12/02/2016 21:45

There isn't any rule that the LA only has to provide 5 hours a week EOTAS for sick children.

The guidance is here. Note:

"LAs are responsible for arranging suitable full-time education for permanently excluded pupils, and for other children who – because of illness or other reasons – would not receive suitable education without such provision This means that where a child cannot attend school because of health problems, and would not otherwise receive a suitable full-time education, the LA is responsible for arranging provision and must have regard to this guidance."

" “Full-time education” is not defined in law but it should equate to what the pupil would normally have in school – for example, for pupils in Key Stage 4 full-time education in a school would usually be 25 hours a week."

However:

"The law does not define full-time education but children with health needs should have provision which is equivalent to the education they would receive in school. If they receive one-to-one tuition, for example, the hours of face-to-face provision could be fewer as the provision is more concentrated."

LAs like to propagate a myth that 5 hours a week is all you're entitled to, but it really is a myth. I've heard it said that, provided the child can cope with it, a primary aged child should get at least 10 hours a week, and secondary aged child 15. I suppose it's a sliding scale between those two, i.e older primary aged children should get more than 10 hours. Things like PE should be provided on top, e.g. through taking them swimming.

I suggest you write to them quoting the above and section 19 of the Education Act 1996 and tell them that you want at least 10 hours a week home tuition starting immediately after half term, including proper SEN provision, and it should move to 15 hours a week as advised by CAMHS within say 3 weeks after that unless he's back in school; and if it doesn't happen you will have to take judicial review proceedings. If that doesn't work, contact the solicitor at SOS SEN to see if they can send a formal pre-action letter to the council.

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bbkl · 12/02/2016 21:09

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