Hello, it's my first post in this board so please bear with me.
For the past 3 years I've been in constant pain. Aching, fatigue, just generally feeling like crap. I have a stressful job which I really enjoy but recently the pain is getting to a point that's making dealing with every day life difficult. I've so far not taken any time off work sick, and I don't intend to, but I'm at the point where I'm having to tell people a bit about my struggles.
I'm just in the process of being referred to rheumatology but the nurse says I have all the classic symptoms of fibromyalgia.
I'm embarrassed to tell people this due to the stigma associated with fibromyalgia. Unfortunately it is one of those illnesses where a lot of people seem to think it's all in the mind or you're making it up.
I'm so fed up of being in pain. I've probably not helped myself at work by being one of those people who doesn't moan and just gets on with stuff so no one has any idea how I've been getting worse and worse over the past few years... except for the brain fog! I've had quite a few of those moments in the office which I've just laughed off.
Have any of you had to deal with stigma at work and how have you dealt with it?
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Chronic pain
Embarrassed to tell people about fibromyalgia
fringeneedsatrim · 17/08/2021 13:26
OnlyAFleshWound · 22/02/2022 07:59
This is a very helpful explanation.
Fibromyalgia” is a medical UFO: the diagnosis is descriptive, not explanatory
Fibromyalgia is not an explanatory diagnosis. It sheds no light on the nature of the beast; it’s just a label for a distinctive but unexplained pattern of symptoms. It doesn’t “explain” the condition any more than “unidentified flying object” explains a mysterious object in the sky. Seeing a UFO doesn’t mean you have seen a vehicle piloted by aliens, and a “diagnosis” of fibromyalgia doesn’t imply any specific cause either: it’s just the word we use to describe feeling a certain way, badly enough, for long enough. Two cases of fibromyalgia might have completely different causes, for all we know.
YOU: I have unexplained chronic pain.
DOCTOR: You may have fibromyalgia.
YOU: That’s literally what I just said.
Thanks to this confusion, patients usually think the diagnosis is more meaningful than it is. Here’s a glaring example: “Finally, in 1998, McCullough was diagnosed with fibromyalgia, a condition that had only been given a name a decade before. After seven long years, she finally knew what was wrong.”6 But she knew no such thing; she had been labelled and classified as a patient, that’s all
Long but excellent article
www.painscience.com/articles/fibromyalgia.php
redpandaalert · 17/08/2021 13:32
You may not have fibromyalgia. They thought I probably had it other joint issues but after 4 years they now think it’s an autoimmune disease either Palindromic Rheumatoid or Lupus. You could also have the early stages of rheumatoid arthritis you need MRI, X-ray, blood tests. I think fibro can be a catch all sometimes you need to persevere
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